by e-Patient Dave | Dec 18, 2009
Cross-posted, with prolog, from the blog of Ted Eytan MD. Yesterday the Institute for Healthcare Improvement’s “WIHI” series hosted a terrific webcast on the Open Notes project that’s being funded by the Robert Wood Johnson Foundation. (I need...
by e-Patient Dave | Dec 10, 2009
There’s new validation that participatory medicine is an idea whose time has come: the co-chairs of the Society for Participatory Medicine (my primary physician Dr. Danny Sands and I) are on this year’s list of 20 People Who Make Healthcare Better, an...
by e-Patient Dave | Dec 5, 2009
Some people think e-patient ideas are new. They’re not. I’d like to give credit to a noble antecedent, and ask for your support. Shortly after I discovered this blog (February ’08) I recognized two strong precedents from earlier in my life:...
by John M. Grohol, Psy.D. | Nov 21, 2009
Imagine a world you live in where every insurance offering is accompanied by a creepy set of Big Brother-like ongoing investigations into your life. Everything will be used as evidence against you. Yes, even your Facebook profile. That world is here. Well, not right...
by e-Patient Dave | Nov 15, 2009
Ten years ago this week, 11/18/99, Linda Kenney was scheduled for ankle replacement surgery. She woke up three days later in the ICU. Her chest had been cut open. She was in the hospital ten days. And nobody talked about what had happened. What had happened is that...
by e-Patient Dave | Oct 12, 2009
Next week at the Connected Health Symposium in Boston, the Society for Participatory Medicine will launch its new journal. In keeping with the society’s spirit of physician-patient partnership, the Co-Editors in Chief are a physician and a patient: Charlie...
by e-Patient Dave | Oct 5, 2009
“While other industries take as their focus such shallow concerns as the making of money, the health care profession prides itself on dealing with matters of life and death. But that’s not the only thing distinguishing health care from other industries: it is...
by e-Patient Dave | Oct 3, 2009
That’s the strongest language yet in our “Why Participatory Medicine” series. And it’s not our words – it’s the words of a board certified neurosurgeon after he heard the Participatory Medicine message at Medicine 2.0 last month....
by e-Patient Dave | Sep 29, 2009
A guest post by John Sharp of the Cleveland Clinic: If you have not read the e-Patient White Paper, you do not understand the future of medicine. Being an e-Patient is beyond being empowered. The subtitle of the paper, “How they can help us heal healthcare,” describes...
by e-Patient Dave | Sep 27, 2009
Fair warning: in the weeks leading up to the October 21 launch of the Journal of Participatory Medicine, just about everything you see here is going to tie in to the society and journal. A fundamental tenet of PM is that patients (ordinary citizens, toi et moi) have...
by John M. Grohol, Psy.D. | Sep 18, 2009
I hear it time and time again in the e-health industry: “If only we had everyone on an electronic medical record, all of our security and privacy issues would be solved!” Really? Perhaps I should introduce you to a little something psychologists like to...
by Susannah Fox | Sep 17, 2009
What would you say to policymakers who are discussing the implementation of a national health information infrastructure? Here’s what I’d say: E-patients want access to tools and information. Many will find what they need, many will not. You can help....
by e-Patient Dave | Sep 12, 2009
We’ve written here before about Regina Holliday (follow her blog), whose husband Fred died June 17. In today’s edition of the British Medical Journal, her mural is the picture of the week: Ted Eytan MD took the picture and posted it on Flickr. Today he...
by e-Patient Dave | Sep 1, 2009
I can barely contain my happiness (oh heck, I’ll let it spill) at this: participatory patients and physicians creating educational content, using free internet software tools, and posting it for people to read (free) around the world. I’m a member of the...
by e-Patient Dave | Aug 10, 2009
Good piece on NPR this morning about what a KQED correspondent found when she went to Canada and talked to citizens and doctors about their experience of wait times. Click to go to their site and listen. One might ask, what does this have to do with patient...
by e-Patient Dave | Jul 28, 2009
After hearing about 800 million mentions of “healthcare reform” in the past couple of months, this weekend I visited my normal (not-HC-geek) family in Maryland for Mom’s 80th birthday. (Woohoo! Large clan descends, six siblings and most of the...
by e-Patient Dave | Jul 15, 2009
Important addition 7/16/09 6:40 pm EDT: Be sure to read the HIPAA clarification by commenter “SLC” below, and any subsequent discussion. Dorothy Tillman was requesting her aunt’s records, not her own. This doesn’t change the need (IMO), but it...
by e-Patient Dave | Jul 10, 2009
I am sick of hearing politicians and money-making parties talk about savings projections “over ten years.” It’s STUPID. We’re stupid if we listen. Nothing (and I mean nothing) happens as projected ten years ago, not even five. It’s...
by Susannah Fox | Jul 8, 2009
The poli-tech tribe gathered in New York last week for the Personal Democracy Forum and, as Craig Newmark put it, welcomed “our new nerd overlords.” Esther Dyson, Jamie Heywood, Rep. Jerry Nadler (D-NY), and I were asked to take on a breakout panel...
by e-Patient Dave | Jun 23, 2009
Aliya Sternstein writes for NextGov, a site devoted to “technology and the business of government.” We spoke last week for her piece about the White House’s use of social media. There are some people who, when you speak with them, the conversation...
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