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“No MU without ME”: join the campaign to fight health data hiding

by e-Patient Dave | Apr 16, 2015

Several edits made, 1-2pm There is a movement underway – a movement for patient liberation and autonomy – and the empire is striking back, interfering with our efforts. We – the whole movement, not just SPM – need your help. If you’re in...

PHI Data Breaches May be Increasing, But It’s Not Impacting Our Sharing

by John M. Grohol, Psy.D. | Apr 15, 2015

According to a new study in JAMA, data breaches into people’s protected health information (PHI) records are increasing: “[The] study that found almost 30 million health records nationwide were involved in criminal theft, malicious hacking or other data...

“Lighting Goes to Ground”: Peter Elias responds to Paul Levy in JoPM

by e-Patient Dave | Apr 10, 2015

Perhaps it’s time for an argument about how we’re doing this. Many of us in the Society for Participatory Medicine have long noted that what we’re up to here is nothing less than full-bore culture change. In my own speeches I often note that culture...

SPM survey in Times Square: “Americans believe their medical data should be shared with their providers”

by e-Patient Dave | Apr 8, 2015

National Survey Also Shows 87% Think Health Information Exchange Should be Free First paragraph updated next day In case you missed it last month, there was an unprecedented, huge moment in SPM’s history – we collaborated in a national survey of...

Health Affairs: patient activation impact on cost + outcome

by Casey Quinlan | Mar 2, 2015

In a study report hitting the digital wires on Health Affairs at 4pm Eastern time today (March 2, 2015), a group of researchers are reporting the results of a longitudinal study of Patient Activation Measure (PAM) impact on cost and outcome metrics from a large study...

NLM Director Donald Lindberg is retiring. Speak up: what’s next for the Library?

by e-Patient Dave | Feb 17, 2015

Dr. Donald Lindberg, long-time director of the National Library of Medicine, is surely the single most-quoted authority from “Doc Tom” Ferguson’s e-Patient White Paper. In almost every speech I’ve given in the past five years I’ve used...