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Community Health Data Initiative: vast amounts of health data, freed for innovators to mash up!

by e-Patient Dave | Jun 6, 2010

A big deal happened in Washington Wednesday – something I barely knew was happening: The Community Health Data Initiative (CHDI) was announced at the Institute of Medicine. It’s exciting to me, because at long last we’re getting the chance to let...

e-Patient Judy Feder’s time runs out

by e-Patient Dave | May 26, 2010

As many of you know, a hard part of being in the world of cancer fighters is that sometimes we lose one. I’m sad to report the passing on April 23 of Judy Feder, who shared her powerful e-patient story here just a year ago. Please re-read how, through her...

Patients Like Me beats Lancet Neurology by a mile

by e-Patient Dave | May 18, 2010

Patient networks for the win! MIT Technology Review: “Earlier this month, the journal Lancet Neurology published a study showing that the generic drug lithium did nothing to slow the course of ALS … Eighteen months earlier, PatientsLikeMe, a for-profit...

Frequently Asked (But Unanswered) Questions About E-patients

by Susannah Fox | May 11, 2010

As I’ve written before, I love questions. It’s an honor to be handed someone’s nascent idea and to help them shape it (which is what I think a question really is). But this time I’m asking for YOUR input. These excellent questions were sent to...

A Patient-Centric Definition of Participatory Medicine

by Gilles Frydman | Apr 2, 2010

Participatory Medicine is a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and in which providers encourage and value them as full partners. This new definition devised by the board of the Society of...

Why is participatory medicine such a tough sell?

by Susannah Fox | Mar 22, 2010

Kevin A. Clauson, Pharm.D. is an associate professor at the College of Pharmacy and adjunct associate professor at the College of Medicine – Biomedical Informatics Program at Nova Southeastern University in Fort Lauderdale, FL. He teaches a course on Consumer Health...