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PCORI and Just-in-Time Decisions

by e-Patient Dave | Dec 30, 2012

SPM member Danny van Leeuwen @HealthcareHatsis an active member of PCORI’s patient engagement workgroup. A month ago he mentioned a post about PCORI on WBUR’s CommonHealth blog, Medical Research: By Law, It’s All About You. I said “You should make...

“The Patient as Partner” in Medical Research at Radboud University

by e-Patient Dave | Dec 29, 2012

This encouraging news is adapted from the November cover story of Radboud University’s magazine Radbode (PDF, in Dutch, 1.6MB). Thanks to @LucienEngelen, initiator of this project, for forwarding it to us. Not surprisingly, Lucien’s also the creator of the...

PCORI Puzzle: Can a Marriage of Goo-Goos and Pinky-Ringers Transform Health Care?

by Michael Millenson | Dec 11, 2012

The new Patient-Centered Outcomes Research Institute (PCORI) has been asking different stakeholders about the most important issues to address with the hundreds of millions of dollars the quasi-governmental group will shortly be doling out in grants. Not surprisingly,...

PCORI Workshop post 3: Danny van Leeuwen (@HealthHats)

by e-Patient Dave | Nov 1, 2012

Next in our series of posts by SPM members on their experience at last weekend’s PCORI workshop. See Monday’s introductory post. I recently met (face to face) Danny van Leeuwen, one of the newer members of our society. He’s a sensitive, caring...

PCORI Workshop post 2: Kathy Day RN (McCleary MRSA Prevention)

by e-Patient Dave | Oct 31, 2012

Second in a series announced yesterday of posts by SPM members who attended last weekend’s PCORI workshop. This one’s from Kathy Day, an avid e-patient advocate from Maine. This originally appeared here on her blog, on Monday. Why PCORI made me endure...

PCORI Workshop post 1: Kelly Young (@RAWarrior)

by e-Patient Dave | Oct 30, 2012

As noted in today’s earlier post, we’re starting a series of posts by SPM members who participated in last weekend’s PCORI workshop. Kelly Young (@RAWarrior) is one of the smartest e-patients I’ve ever seen anywhere. Aside from her technical...