by e-Patient Dave | Dec 31, 2012
Some things are what they call “evergreen” – persistent value, never out of date. Two come together for this year-end post. __________ A lot’s changed since our society was formed in 2009, but year after year a core skill for participatory...
by e-Patient Dave | Dec 30, 2012
SPM member Danny van Leeuwen @HealthcareHatsis an active member of PCORI’s patient engagement workgroup. A month ago he mentioned a post about PCORI on WBUR’s CommonHealth blog, Medical Research: By Law, It’s All About You. I said “You should make...
by e-Patient Dave | Dec 29, 2012
This encouraging news is adapted from the November cover story of Radboud University’s magazine Radbode (PDF, in Dutch, 1.6MB). Thanks to @LucienEngelen, initiator of this project, for forwarding it to us. Not surprisingly, Lucien’s also the creator of the...
by Michael Millenson | Dec 11, 2012
The new Patient-Centered Outcomes Research Institute (PCORI) has been asking different stakeholders about the most important issues to address with the hundreds of millions of dollars the quasi-governmental group will shortly be doling out in grants. Not surprisingly,...
by e-Patient Dave | Nov 1, 2012
Next in our series of posts by SPM members on their experience at last weekend’s PCORI workshop. See Monday’s introductory post. I recently met (face to face) Danny van Leeuwen, one of the newer members of our society. He’s a sensitive, caring...
by e-Patient Dave | Oct 31, 2012
Second in a series announced yesterday of posts by SPM members who attended last weekend’s PCORI workshop. This one’s from Kathy Day, an avid e-patient advocate from Maine. This originally appeared here on her blog, on Monday. Why PCORI made me endure...
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