e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
National Library of Medicine’s ePatient Conference
The e-patient movement is so real that in April the National Library of Medicine had its first ePatient Conference. Yes, that's what they called it. The event is covered on the inside front cover of the current Medline Plus, including Society co-chair e-Patient Dave....
Paul Roemer’s e-patient story: Cancer, who’s in charge here?
Paul Roemer (LinkedIn, Twitter ) is speaking this Thursday at Health 2.0 in Bethesda. He's a Twitter friend who has a lot in common with me: a cancer kicker with a business background, who now sees himself as an e-patient. There’s one big difference: he went through...
Patient Communities… at Walgreens?
In May, I spoke at the Chronic Care and Prevention Congress about my most recent report, "Chronic Disease and the Internet." I talked about the social life of health information and the internet's power to connect people with information and with each other. Living...
Health Geek Tip: Abstracts are ads. Read full studies when you can.
Ivan Oransky, executive editor of Reuters Health, provided excellent evidence yesterday regarding the need to look past abstracts of journal articles if accuracy matters to you: His own post on Embargo Watch: "More thoughts on ASCO: How the embargo policy can lead to...
OpenNotes background information: WIHI webcast and Ted Eytan post
It's bonanza time for people intrigued with the OpenNotes project, which we mentioned Saturday. While looking for something else tonight, I ran across this, about OpenNotes, from December: “Concern that sharing information with patients may cause sustained...
“Over My Dead Body”: Why System Usability Matters
It's widely rumored that a health IT industry executive was unhappy about suggestions that systems have to be usable in the eyes of employees who use them while caring for us. (Us. The patients. Your mother.) According to the rumor, the exec said "Over my dead body."...
Innovators speak up! How should we rename “Community Health Data Initiative”?
Todd Park is the "entrepreneur in residence" (aka Chief Technical Officer) for the US Department of Health & Human Services (HHS). He's an awesome (and I mean it) speaker, articulate and inspiring. Watch his 9:39 talk at O'Reilly's "Gov 2.0 Expo" conference last...
“OpenNotes” project begins: what happens when patients can see the physician’s visit notes?
The opening anecdote of the e-patient white paper tells of a patient who impersonated a doctor in 1994, to get his hands on an article about an operation he was about to have. He got busted. Two years later episode 139 of Seinfeld had something similar - Kramer...
Nice summary of definitions of “Health 2.0” etc
Tom Van De Belt @Tom_Zorg20, Lucien Engelen @Zorg20 and others have published a nice "line in the sand" article in JIMR (the Journal of Internet Medical Research), surveying the scientific and "gray" (Web) literature to collect definitions of Health 2.0 and Medicine...
e-Patients and doctors both, wise up. If you haven’t already.
I've only been studying healthcare for two years - far less than most people on this blog - and I hesitate to be overly assertive. But I have, finally, reached the point where I feel confident in citing cases where people are simply being unscientific: ignoring...
Why a Patient 2.0 Panel at the Health 2.0 DC conference?
This is the first of two posts about the inspiring Patients 2.0 panel I helped organized at Health 2.0 DC. This one will explain the rationale for organizing such a panel. The second will provide a link to all the presentations and to the panelist biographies. A while...
Health 2.0 DC: Passion and Execution at Scale
I think conferences are deeply affected by the spirit of their host city. San Francisco has its hackers and dreamers, Boston has its entrepreneurs and ivy, Paris has its pomp and worldliness. At Health 2.0 DC yesterday, my city showed that it has passion and...
