e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Hm: Because of viewing my visit notes, I did something better.
Earlier this month I wrote that the OpenNotes project had kicked off. It's important - if you haven't read about it, please click that link. My primary physician and I are participating, but candidly I didn't expect to get much out of it: as I told a friend, "I'm not...
“You’re 100% alive or 100% dead at any given moment”
A recurring training topic on this blog, originally for e-patients but also for clinicians and policy people, is understanding statistics. (See posts in that category.)Â Not only are statistics often misinterpreted; even when they're correctly understood, patients too...
National Library of Medicine’s ePatient Conference
The e-patient movement is so real that in April the National Library of Medicine had its first ePatient Conference. Yes, that's what they called it. The event is covered on the inside front cover of the current Medline Plus, including Society co-chair e-Patient Dave....
Paul Roemer’s e-patient story: Cancer, who’s in charge here?
Paul Roemer (LinkedIn, Twitter ) is speaking this Thursday at Health 2.0 in Bethesda. He's a Twitter friend who has a lot in common with me: a cancer kicker with a business background, who now sees himself as an e-patient. There’s one big difference: he went through...
Patient Communities… at Walgreens?
In May, I spoke at the Chronic Care and Prevention Congress about my most recent report, "Chronic Disease and the Internet." I talked about the social life of health information and the internet's power to connect people with information and with each other. Living...
Health Geek Tip: Abstracts are ads. Read full studies when you can.
Ivan Oransky, executive editor of Reuters Health, provided excellent evidence yesterday regarding the need to look past abstracts of journal articles if accuracy matters to you: His own post on Embargo Watch: "More thoughts on ASCO: How the embargo policy can lead to...
OpenNotes background information: WIHI webcast and Ted Eytan post
It's bonanza time for people intrigued with the OpenNotes project, which we mentioned Saturday. While looking for something else tonight, I ran across this, about OpenNotes, from December: “Concern that sharing information with patients may cause sustained...
“Over My Dead Body”: Why System Usability Matters
It's widely rumored that a health IT industry executive was unhappy about suggestions that systems have to be usable in the eyes of employees who use them while caring for us. (Us. The patients. Your mother.) According to the rumor, the exec said "Over my dead body."...
Innovators speak up! How should we rename “Community Health Data Initiative”?
Todd Park is the "entrepreneur in residence" (aka Chief Technical Officer) for the US Department of Health & Human Services (HHS). He's an awesome (and I mean it) speaker, articulate and inspiring. Watch his 9:39 talk at O'Reilly's "Gov 2.0 Expo" conference last...
“OpenNotes” project begins: what happens when patients can see the physician’s visit notes?
The opening anecdote of the e-patient white paper tells of a patient who impersonated a doctor in 1994, to get his hands on an article about an operation he was about to have. He got busted. Two years later episode 139 of Seinfeld had something similar - Kramer...
Nice summary of definitions of “Health 2.0” etc
Tom Van De Belt @Tom_Zorg20, Lucien Engelen @Zorg20 and others have published a nice "line in the sand" article in JIMR (the Journal of Internet Medical Research), surveying the scientific and "gray" (Web) literature to collect definitions of Health 2.0 and Medicine...
e-Patients and doctors both, wise up. If you haven’t already.
I've only been studying healthcare for two years - far less than most people on this blog - and I hesitate to be overly assertive. But I have, finally, reached the point where I feel confident in citing cases where people are simply being unscientific: ignoring...
