e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
The e-patient white paper: Seven Preliminary Conclusions
One year ago today I finished reading e-Patients: How they can help us heal healthcare, the e-patient white paper. It turned my head around because although I'd experienced excellent care in almost all ways, it showed that I as a patient have far more to contribute...
Clinical trials: Unfavorable results often go unpublished (Science Blog)
E-Patient Dave spotted an informative post on the Science Blog about an inherent shortcoming of the publication process: failed trials don't get published, so others don't have the chance to learn from them. His post about it here. (Where did he learn about it? In his...
Moving from “medicine as individual heroism” to “medicine as a team sport”
This topic isn't directly in our wheelhouse here in the e-patient movement ("empowered, engaged, equipped and enabled"), but as I continue one patient's odyssey in learning about healthcare, a discussion on Paul Levy's blog has taught me a lot. So I'm posting it for...
An e-patient call to arms
E-patients, this is a call to action. Now. I want you to go express yourself on Paul Levy's blog. Most readers of health policy blogs know what a costly, inefficient mess healthcare in America has become. Paul Levy would like the people in his business to work...
Health Care Law Slides
Bob Coffield's slide set, Consumer Driven Health Care: The Impact of Social Media and Health 2.0, is a lawyer's eye view of the current market. Plus he included a couple neat Wordles.
In the Spin III: The Smart Resident
My quest for a second qualified opinion on an abnormal mammogram (microcalcifications) began in October, Breast Cancer Awareness Month. Two days before the end of the year, a sharp surgical resident put an end to the spin. The solution was simple – and not high tech....
FDA Gives Light Scrutiny to Investigators’ Financial Ties
Via Twitter, from the Wall Street Journal Health Blog: "The FDA should do a lot more to police potential conflicts of interest among researchers conducting clinical trials of experimental drugs and medical devices, a government watchdog says. Read the report, out...
Teens, Sex and Technology
Our own John Grohol has an interesting article up on PsychCentral about teens, sex, technology, and the online disinhibition effect (comments are also open on Well). For us: Does online disinhibition play a role in everyone's use of online health resources?
Physicians as coaches, part 2: “Embrace knowledge symmetry”
I don't get surprised these days as easily as I used to before I got "e." But something popped my eyes open last weekend, and I dug into it. It goes to the heart of where the power is, in the doctor-patient relationship. But not just the power – the responsibility for...
Doing Our Best to Blow Your Minds (Emerging Trends in Chronic Disease Care)
Here is my third post in a series of look-backs at the November 2008 Chronic Disease Care conference in San Francisco. (OK, yes, it's now January 2009 -- I'm savoring the experience, not Twittering it!) The first post was about spreading improvement beyond early...
“Physicians are coaches. Patients are players.”
I don't know who Stanley Feld is, but he just became my friend, with a terrific post on doctor as coach, patient as player. It starts: The role of patients with chronic diseases and their physicians must be clear to both patients and physicians. Physicians are...
Patient Voices at CHCF’s Chronic Disease Care Conference
This is the second in a series of posts about the California HealthCare Foundation’s Chronic Disease Care conference (the first was Happy Dogs in a Pile of Sticks). Patient Voices: Managing Chronic Conditions, Living our Lives Ted Eytan snapped a photo that captured...
