e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Randy Pausch, empowered patient / participatory medicine
Chapter 12 of Randy Pausch’s best-selling book The Last Lecture opens with a classic anecdote of what it looks like when an empowered patient practices participatory medicine with an equally […]
Consumers? Wha?
Update 5/19: Wonderful news! Today I was invited to represent the consumer perspective at this event! Kudos and thanks – I intend to add real value. Investors and disrupters to […]
Sheryl Stein’s info hunt: an e-patient odyssey
Sheryl Stein’s e-patient interview was great in its own right, but she struck bonus paydirt when she responded to this question: You say “So I began to research ITP and […]
Participate in defining “Health 2.0”
e-Patients, alert! Time to participate in creating the lexicon. Ted Eytan MD is open to suggestions on his definition of Health 2.0 – he’ll be giving a talk soon and […]
Upcoming Conferences
I’ll be in Boston tomorrow for a World Congress Leadership Summit. The organizers certainly use all the right key words to describe the event; I’m kind of hoping the presenters […]
E-patient Interview: Sheryl Stein
Sheryl Stein, known to many as “wrekehavoc,” dispenses her wisdom and humor on a 6,000-member online community of parents (using good old listserve technology) and on her blog. In this third edition of our e-patient interviews, Sheryl talks about the power of...
The Wisdom of Patients Report
The California HealthCare Foundation published a report the other day entitled The Wisdom of Patients: Health Care Meets Online Social Media (PDF) which is a nice overview of the current […]
E-patients Unite To Document Problems with Generic Drug
For over 30 years at The People’s Pharmacy, we have been guided by a respect for people’s ability to make informed decisions about their health. We have always welcomed input […]
Why Doesn’t My Doctor Answer My Email?
Because he or she is afraid — afraid of being overwhelmed by one more responsibility, of not being reimbursed for time spent answering emails, of patient privacy, of HIPAA, and […]
Wikipedia’s Arcane Rules Censor Health Information
I don’t know of a living soul who views Wikipedia as any type of authoritative resource. Why? Because no single person takes responsibility for any article’s content or quality. Some […]
E-patient Interview: Amy Tenderich
Amy Tenderich is the engine behind DiabetesMine, "a gold mine of straight talk and encouragement for people living with diabetes." Hearing her speak at Health 2.0 was a highlight of the conference for me and she just co-authored a book, so I wanted to bring her over...
CNN Takes on Doctor Ratings… And Gets it Wrong
CNN has recently published an article about what to look for in a doctor rating website. Unfortunately, they repeat some misconceptions and errors about these services. The most serious error […]
