e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Diabetes patient leaders: apply by 2/15 for fully funded #MasterLab Leadership Institute
Now THIS is what we call #PatientsIncluded. Twenty patient leaders will be fully funded to attend a new "MasterLab Leadership Institute" in the San Francisco bay area March 31-April 2. Click here (or the graphic above) to learn more and apply by next Wednesday, Feb...
Precision Medicine For Me (a new open collaboration) launches at #PMWC17
Today at 3 pm ET, at the Precision Medicine World Conference #PMWC17 in Silicon Valley, a new open collaboration called Precision Medicine For Me was announced, to help patients and clinicians everywhere make the most of the potential of precision medicine. Our...
Apply by 1/23: PCORI grant to fund e-patients at palliative care summit!
Intro note by e-Patient Dave: What a great development!  CCCC is an organizational member of our Society, and last year we blogged CCCC conference announces inaugural class of palliative care e-patients, and now, even better news: e-patient participation is getting...
Angela Lundberg: Health Insurance & RA: Dangerously Uncovered
Member Angela Lundberg's blog article was just published for RheumatoidArthritis.net. It discusses the high out-of-pocket costs of health insurance for people who already have insurance. https://rheumatoidarthritis.net/living/dangerously-uncovered/comment-page-1/...
History lesson! “LINC with Tomorrow”: Warner Slack on “educational TV,” 1967
The much-quoted line "Patients are the most under-used resource in healthcare" was first uttered in the 1970s by Warner Slack, MD, when he was a young doctor in Madison, Wisconsin. It's seen many versions and incarnations since then, but...
Person-Centered #CarePlanning – What data?
Last month, in Communicate What? #CarePlanning, I declared the #CarePlanning hashtag, and told from personal experience the importance of communication in enabling participatory care. I ended with this - my perspective as the person who has the problem and the...
The S’mores Circle
This time of the year is often filled with reflection and a retrospective review of our lives with a focus on lifestyle changes we hope to attain in the New Year. It’s a time where regrets can be erased by future aspirations. Many of us set resolutions, which I...
Communicate What? #CarePlanning
I want to share a family story and show how it connects to something we'll all face, where real participatory thinking - and communication - make all the difference. My wife and I built a house together - the whole house, everything except drilling the well. While...
Thanksgiving Letter to my Doctor
Coming from Romania 15 years ago, Thanksgiving was not a big thing for me. I didn’t quite grasp the holiday. My husband cooked and celebrated, and I helped and observed it in a detached way. 11 years ago, it was the Wednesday before Thanksgiving. I was 22 weeks...
A first: Participatory Medicine thinking in the Harvard Business Review
As kindlers and promoters of a social movement, our Society for Participatory Medicine keeps a keen eye out for signs of traction in credible places for what we've been advocating since 2009: Participatory Medicine is a model of cooperative health care that seeks to...
OpenID HEART: Sharing our data gives patients power
On September 26, 2016, President Obama recognized Health IT Week by saying: We have worked to clarify an individual’s legal right to access their health information and transmit it where they choose—whether it’s to a family member or to their smartphone. These efforts...
NEJM Data Analysis Challenge: can others create value by seeing researchers’ data?
This is big. Please share it with anyone you know who's a believer in open data. You may have heard that back in January the New England Journal of Medicine created a firestorm by saying "parasites" about people who want to see a researcher's original data. Many...
