by Eric Bersh | Jan 5, 2022
When Regina Bertlich was diagnosed with metastatic pancreatic cancer, her doctor referred her to palliative care and never told her that clinical trials could be an option. Regina’s daughter, Ines Bertlich, MD, decided to do her own research. Ines and her father and...
by Lisa Gualtieri, PhD, ScM | Nov 22, 2021
The answer is probably not your medicine cabinet. The answer may be your nightstand, kitchen counter, or a variety of other locations in your home. The question is, where do you store your prescription medications? I became interested in medication adherence through...
by Geri Lynn Baumblatt | Oct 11, 2021
I have attended hundreds of conferences: patient experience, patient education, health tech, health literacy, shared decision making — and the best part has always been meeting other advocates, patients, and family caregivers. Too often, unfortunately, these...
by Danny Sands, MD | May 14, 2021
The pressures of healthcare payment has forced physicians to move patients through the office as quickly as possible, and that is robbing us of high-value services that we can provide, particularly to educate and engage in shared decision making with our patients. I...
by John Novack | Sep 7, 2018
The Society for Participatory Medicine advocates for transforming the culture of care, so we watch for signs that the culture is changing. A newly released peer-reviewed article hints at progress: formally introducing patient perspectives into not just the practice of...
by e-Patient Dave | Jun 5, 2018
Great update 20 months later: UCSF Hospital announced Jan 10, 2020 that they’ve made radiology images available through their MyChart portal, and Dr. Mark Kohli tweeted that it’s due to the speech that resulted from this blog post!  Here’s their...
by Sarah Krüg | Jan 4, 2018
Language has a magical influence on the lives we lead, with an impact on our thoughts, emotions, and/or actions. The words we use are one of the most potent ingredients in the science of language. Words have the power to heal, guide and motivate. They can confuse,...
by Linda Stotsky | Sep 27, 2017
I’m known in social media for my role as @EMRAnswers. Most people don’t know the personal and family pain that makes me know how important this is. Here it is. (That’s me above, sharing my story at the Walking Gallery meetup at HIMSS in 2015 –...
by Carla Berg | Sep 13, 2017
(part three of three) Lessons from Quebec for Choosing Wisely and Less is More Medicine After a busy few days tracking topics around the researchers and policy-makers at a recent “Preventing Overdiagnosis” conference in Quebec aimed at reducing...
by Carla Berg | Aug 18, 2017
(Part one of three) You Are (Almost) There Have you ever been to a big trade event in a hot sector like healthcare or tech? If you are a member of S4PM, perhaps it was at CES or HIMSS or Health 2.0 or a MedX or a TedMed event. If such a scene is familiar, then...
by e-Patient Dave | Mar 22, 2016
We’ve often written here about open access medical literature (freely available) vs “paywalled” journals. It’s a controversial subject, and this guest post is about an idea I’ve never heard of: a hackathon to explore the subject. (In the...
by Casey Quinlan | Mar 8, 2016
SPM members Randi Oster of Help Me Health and Casey Quinlan of Mighty Casey Media made up two thirds of a three woman panel, “Patient Leaders Want To Kill Pharma TV Ads, Right Now,” at the 2016 ePharma Summit in New York last week (February 29 through...
by e-Patient Dave | Feb 11, 2015
This is a great week for SPM, for our colleagues at the Stanford Medicine X conference, and for everyone else who’s been working for years to shift medicine’s thinking about the role of the patient: Yesterday the BMJ (formerly British Medical Journal)...
by Casey Quinlan | Nov 17, 2014
Reposted from the Mighty Mouth blog Most of the people I meet in my voyages ’round healthcare system transformation, grassroots edition, arrived at the portal of #epatient via a trip through the medical-industrial complex. Either they, or someone they cared for, wound...
by Susannah Fox | Apr 2, 2013
Four years ago this week, e-Patient Dave published, “Imagine someone had been managing your data, and then you looked,” and forever changed the national conversation about health data. I have described that post as an earthquake — a surprise to those...
by e-Patient Dave | Feb 18, 2013
This is the big update to our preview post last November. There’s a stage in a movement where it starts to get serious media coverage, and ours is coming of age. We’ve documented the progress: 2009: Susannah Fox was on NPR’s Morning...
by e-Patient Dave | Jan 10, 2012
Edited a few minutes after the original post. Over on the Harvard Business Review blog a post yesterday is stirring up discussion. I hope well-informed SPM members can help shed some light in the comments there, citing as many specifics as you can. (As I compiled the...
by e-Patient Dave | Oct 22, 2011
Corrections 8:45 pm ET Monday 10/24: This post’s title originally said HHS was seeking patients. Actually it’s PCORI, a new non-government agency, as described below. Both affect the future of healthcare, but PCORI isn’t part of HHS. The title also...
by e-Patient Dave | Sep 29, 2011
Yesterday the New York Times reported that some health insurers have applied to regulatory agencies to push premiums sharply higher – usually double-digit increases, while citizens are suffering.  This falls on top of the 11 year history reported last year by...
by e-Patient Dave | Sep 18, 2011
Tessa Richards, assistant editor at the British Medical Journal, has posted a well reasoned commentary on the BMJ site, “Enlist the patients’ help.” I’m no expert on the UN’s work here but what we seem to be seeing is, once again,...
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