by e-Patient Dave | Apr 7, 2012
One of the principal areas to be understood and developed as we expand participatory medicine is decision making. As patients become “responsible drivers of their care, and providers welcome and value them as full partners,” patients participate in...
by e-Patient Dave | Mar 20, 2012
This is longer than it might be, because this point is essential. If this subject is familiar to you, skip to the heading “Today’s update.” As we said in December, an e-patient essential is sorting out what writings to trust, whether we find them...
by e-Patient Dave | Jan 31, 2012
Corrected 6:50 pm – the Medical Professionalism Blog belongs to the ABIM Foundation, not to the Board. ABIM is the American Board of Internal Medicine, one of the two U.S. organizations that certifies internal medicine physicians. Their The ABIM...
by Kathleen O'Malley | Dec 6, 2011
Guest blogger Kathy Kastner shares her experience as an SPM member. Her website, Ability4Life, offers resources for participatory family caregivers. When I first heard the words “Participatory Medicine” I felt fully in synch, even without delving into its...
by John M. Grohol, Psy.D. | Oct 16, 2011
We eagerly invite guest posts by members of our Society (not non-members), per the guidelines below. Contact information Blog curators: blog _at_ participatorymedicine.org Volunteering: volunteer _at_ participatorymedicine.org General information about our Society:...
by e-Patient Dave | Mar 11, 2011
It is a capital mistake to theorize before one has data. Insensibly one begins to twist facts to suit theories, instead of theories to suit facts. Sherlock Holmes, in Scandal in Bohemia I’ve been reading Jack Wennberg’s new book Tracking Medicine, which is about his...
by David Harlow | Feb 23, 2011
The Health Research Institute at PricewaterhouseCoopers released a report today entitled Putting patients into “meaningful use.” It begins with the anecdote I’ve blogged about previously regarding a diagnosis by Facebook in lieu of a PHR, which some...
by e-Patient Dave | Jan 13, 2011
A recurring theme on this blog is the need for empowered, engaged patients to understand what they read about science. It’s true when researching treatments for one’s condition, it’s true when considering government policy proposals, it’s true...
by e-Patient Dave | Dec 20, 2010
Headline and body edited Oct 6, 2013: the original post talked about “practice variation,” but that was bad wording. The problem is unwarranted practice variation: variation that, when studied, is not warranted by actual differences between cases....
by e-Patient Dave | Jul 20, 2010
Gary Wolf of Wired has posted a whizbang write-up that came out of a whirlwind one-hour 12-way Skype chat about personal health data. Sound frenetic? It was. (I participated. It was, well, 12-way.) I can’t imagine how to model what happened, except to say that...
by Susannah Fox | Jun 8, 2010
I think conferences are deeply affected by the spirit of their host city. San Francisco has its hackers and dreamers, Boston has its entrepreneurs and ivy, Paris has its pomp and worldliness. At Health 2.0 DC yesterday, my city showed that it has passion and...
by Danny Sands, MD | Mar 8, 2010
A joint post by e-Patient Dave and Dr. Danny Sands, written from alternating points of view. Danny: An important moment happened a few months ago during office hours – important because it brought a profound shift in Dave’s view of the doctor-patient...
by e-Patient Dave | Jan 2, 2010
Guest post by Alan Viars (@Aviars), CEO of Videntity Systems, Inc. This past year my father required open heart surgery. This is a short article about the hurdles we (his family) encountered along the way. I’ve changed the names, because it is not my intention to...
by e-Patient Dave | Sep 15, 2009
Actor Dennis Quaid has become an advocate for electronic medical records. In 2007 his 12 day old twins received a massive accidental overdose (10,000 units of heparin instead of 10 units), a near-fatal error that could have been prevented by the kind of bar code...
by e-Patient Dave | Jun 6, 2009
Last Tuesday, June 2, I was on a consumer panel at a board meeting of the National eHealth Collaborative. This is a heady group to be addressing; as this press release says, nine of these people are on the advisory committees that are working directly with David...
by e-Patient Dave | Apr 21, 2009
Preface by e-Patient Dave: This is a story of bad data gone wild, wrong info that spreads. It starts with a story from the 1600s, which applies all too aptly to our EMR situation today, in which there are inadequate controls on data quality, and errors that leak can...
by e-Patient Dave | Mar 5, 2008
Today outside Boston I attended a “lunch-n-learn” session of the Massachusetts Technology Leadership Council, titled “Patient, Heal Thyself: How to Succeed with Online Consumer Health Sites.” At first I thought it was going to be about creating...
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