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e-Patients Blog

Our blog highlights items of interest to those in the world of e-patients and participatory medicine. Some of our most popular topics include e-patient stories, e-patient resources, problems in healthcare, medical records, news & gossip, patient networks, policy issues, positive patterns, patient/doctor co-care, patients as teachers, reforming healthcare, trends & principles, and why participatory medicine. Our newest blog posts are below. You can also subscribe to our blog via email.

So, about this “big data” thing …

On Facebook last Friday our member Carla Berg Nelson posted briefly about a new Psychology Today blog post, Data: the New Window into Humanity, by John Nosta. She tagged a number of other members (and non).  I know and respect Nosta from his days creating a LinkedIn...

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Meetin’ Up and Building SPM Community in Chicago

Meetin’ Up and Building SPM Community in Chicago

In Chicago, SPM members have been getting together for regular meetups. It’s been fun and exciting, and lots of us think it would be great to offer the idea to other areas. Here's how we started and how we do it - take it on and make it your own! This time last year...

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Gail Phillips: My journey to the Society for Participatory Medicine

SPM’s team leadership search for 2019

Our Society for Participatory Medicine is growing in membership and in projects and teams. If you're a member, have you considered leading a team? If you're not, have you considered joining? The message below was posted last weekend by co-founder and chairman Dr....

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Pay people for their data – yes, or no?

Pay people for their data – yes, or no?

SPM members Casey Quinlan (yes, yours truly) and Jan Oldenburg were part of a trinity of folks debating the idea of paying people for the data they contribute to the digital economy, in healthcare and in all other sectors. Here's the full version of the conversation...

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Getting Your Doctor to Really See You

Getting Your Doctor to Really See You

Doctors are regularly deluged with advice on how to engage patients. But how can you, as a patient, get your doctor to truly engage with you as a person? Your health and even your life could depend upon it. By “engage,” I don’t mean just the doctor not interrupting...

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Doc Tom Awardees Announced at SPM2018 Conference

Doc Tom Awardees Announced at SPM2018 Conference

On October 17th, the Society enjoyed their 2nd conference in Boston. Filling a larger room than last year, attendees - in person and virtual - enjoyed an impressive lineup of speakers. The passion in the room was palpable. Much more to come on that. A momentous...

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Whither Cochrane, for e-patients and everyone else?

Whither Cochrane, for e-patients and everyone else?

This will be the third, and last, in my short series on attending the Cochrane Colloquium in Edinburgh in September of this year. In the first post, I talked about what that conference was like; in the second, I shared an overview of Cochrane as a global movement to...

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The who, what, when, where, and why of Cochrane

The who, what, when, where, and why of Cochrane

If you've been paying attention, you know that yours truly got the chance to attend the annual Cochrane Colloquium in Edinburgh in September this year, thanks to a travel stipend from SPM, a #PatientsIncluded bursary from Cochrane UK, the hosts of the 2018 Colloquium,...

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