e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Crohnology blog: “Doctor Thyself: How Patients Self-Care”
The site Crohnology, well known patient community for patients with IBD (Inflammatory Bowel Disease), recently started focusing their blog on explaining IBD- focused research to patients. Their most recent blog post describes a study that studied what patients with...
“We demand a medical record SPIGOT!”
The GetMyHealthData site was taken down at the end of 2022. Updated links here go to the page's history on Archive.org. Please see my long-overdue post contributing to the @GetOurHealthData movement, on their blog. The more I've thought about all the different issues...
Monthly introduction to e-Patients.net
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn. Here's how to become a Society member, individual or corporate. Our publications: This...
Happy Birthday Medicare, Medicaid and Social Security
On July 30, 2015, Medicare and Medicaid will celebrate their 50th birthday. In August of 2015 Social Security, celebrates its 80th birthday. Amendments to the Social Security Act (Title XIX) that established guaranteed basic health coverage programs for all elderly,...
Partnering with Patients – From Theory to Practice: #HealthcareTransformers
Three continents. Five patients. Three conferences. Dramatic change is occurring in healthcare where patients, “the true transformers in care”, are changing the playing field, and redefining how they want to engage and affect change. The Society for Participatory...
A Turing test for diagnosis: BMJ evaluates online symptom checkers; good Globe article
A new article in the BMJ this week reports on a good, clever evaluation of 29 online symptom checkers, showing that some have a clue and some don't. I love it; in my view the bottom line is "Some are better than nothing, none is near perfect, and some are junk. Learn,...
Monthly introduction to e-Patients.net
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn. Here's how to become a Society member, individual or corporate. Our publications: This...
Conference Organizers to Affected Patients: “Go Fund Yourself”!
SPM member MaryAnne Sterling is Co-founder of tech startup Connected Health Resources - she's a healthcare transformer and person-centered care activist whose motto is: no family caregiver left behind. A recent experience, what she calls her "go fund yourself" moment,...
No Rhyme or Reason
We have read and heard a lot about the disparities in the cost of care from one hospital or clinic to another. We have read and heard a lot of grumbling about the uneven availability of health care services in this country. Many of us have been outraged to learn that...
Healthcare Econ 101 from SPM’s Nick Dawson
Our fearless leader, Nick Dawson, has a terrific piece up on RVANews.com about the issues around building a children's hospital in Richmond, Virginia. An excerpt: 100% of healthcare costs are passed onto the public. Most costs seem to be borne by insurance companies....
On Making Patient Reviews of Physicians More Useful
I recently hosted a Google Hangout on Air entitled Patient Reviews of Physicians: The Wisdom of the Crowd? (presented by The Harlow Group LLC in association with The Society for Participatory Medicine). I spoke with Niam Yaraghi (Center for Technology Innovation, The...
SPM applauds King v Burwell – “making healthcare accessible & participatory for all”
The Society for Participatory Medicine believes that an effective healthcare system is a collaborative one, where care providers and the patients and families they care for work together toward the best possible health outcomes. The importance of this partnership...
