e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
We’re all in this together
A guest post from member Jeffrey Halbstein-Harris - this is a small slice of a longer piece he used as the basis for a speaking engagement. This is a call to consumers: my brothers and sisters who rely on healthcare and its infrastructure’s support throughout their...
Sep 26 – Patient Summit on Diagnosis in Alexandria, VA
To all in the Washington/Baltimore/northern Virginia area (and elsewhere if you care to travel!): The patient committee of the Society for Improved Diagnosis in Medicine would like to invite you to our second annual Patient Summit on Diagnosis. The summit is part of...
The Medical Humanity of Oliver Sacks: In His Own Words
We science-medicine-poetry junkies, along with a sizeable portion of the world’s population, are mourning the death of Oliver Sacks, the neurologist and author who died last Sunday from metastasized melanoma. And as enthusiasts of Dr. Sacks’ catechisms on the soul of...
Monthly introduction to e-Patients.net
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn. Here's how to become a Society member, individual or corporate. Our publications: This...
Crohnology blog: “Doctor Thyself: How Patients Self-Care”
The site Crohnology, well known patient community for patients with IBD (Inflammatory Bowel Disease), recently started focusing their blog on explaining IBD- focused research to patients. Their most recent blog post describes a study that studied what patients with...
“We demand a medical record SPIGOT!”
The GetMyHealthData site was taken down at the end of 2022. Updated links here go to the page's history on Archive.org. Please see my long-overdue post contributing to the @GetOurHealthData movement, on their blog. The more I've thought about all the different issues...
Monthly introduction to e-Patients.net
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn. Here's how to become a Society member, individual or corporate. Our publications: This...
Happy Birthday Medicare, Medicaid and Social Security
On July 30, 2015, Medicare and Medicaid will celebrate their 50th birthday. In August of 2015 Social Security, celebrates its 80th birthday. Amendments to the Social Security Act (Title XIX) that established guaranteed basic health coverage programs for all elderly,...
Partnering with Patients – From Theory to Practice: #HealthcareTransformers
Three continents. Five patients. Three conferences. Dramatic change is occurring in healthcare where patients, “the true transformers in care”, are changing the playing field, and redefining how they want to engage and affect change. The Society for Participatory...
A Turing test for diagnosis: BMJ evaluates online symptom checkers; good Globe article
A new article in the BMJ this week reports on a good, clever evaluation of 29 online symptom checkers, showing that some have a clue and some don't. I love it; in my view the bottom line is "Some are better than nothing, none is near perfect, and some are junk. Learn,...
Monthly introduction to e-Patients.net
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn. Here's how to become a Society member, individual or corporate. Our publications: This...
Conference Organizers to Affected Patients: “Go Fund Yourself”!
SPM member MaryAnne Sterling is Co-founder of tech startup Connected Health Resources - she's a healthcare transformer and person-centered care activist whose motto is: no family caregiver left behind. A recent experience, what she calls her "go fund yourself" moment,...
