e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Tune in for Patient Reviews of Physicians: The Wisdom of the Crowd?
Patient Reviews of Physicians: The Wisdom of the Crowd? Google Hangout On Air Hosted by David Harlow with Niam Yaraghi and Casey Quinlan Wed, Jun 24, 3:00 PM - 4:00 PM ET Presented by David Harlow (aka HealthBlawg) in association with The Society for Participatory...
The Role of Dignity in Health Care
Every patient wants to be treated with dignity. However, when you are sitting in a doctor’s exam room, holding together a hospital gown that somehow does not want to completely fit around you, or close properly, it is difficult to feel that you have any dignity. ...
Guest Post by Matthew Katz, MD: E-Patients Deserve E-Doctors
Matthew S. Katz, MD, is the Medical Director of Radiation Oncology at Lowell General Hospital and a lifetime member of S4PM. He is former Chair of Communications Committee for the American Society for Radiation Oncology (ASTRO) and external advisor for Mayo Clinic’s...
“Inside Medicine at Weill Cornell: Meeting in the Middle”
Weill Cornell produced a series of mini-documentary style videos showcasing mentoring at their institution. This final video specifically focuses on how patients mentor their students....
“Taxpayers need better access”: Last day to comment to CMS on #NoMUwithoutMe
Today (11:59pm ET) is the deadline for public comments on the proposed rollback of "Meaningful Use 2" regulations for patient access to their medical records. SPM feels that this is a major issue for enabling patient-provider partnerships; as SPM co-chair Dr. Danny...
“The perfect thing a doctor can tell a patient with chronic illness”
That's the title of a new post on the Mighty blog written by Catherine Richardson, a 23-year-old chronic illness patient from Vancouver, Canada, who also blogs at findingmymiracle.com. It's about something simple, but helpful, that her doctor told her, which...
Guest post by Annette McKinnon: Power Equality: Not Even on the Radar
This blog welcomes guest posts from SPM members on relevant topics. This is a blog post by Annette McKinnon, an e-patient in Canada. Annette is an enthusiastic advocate for patient inclusion in research and healthcare decision making. She has had rheumatoid...
Guest post by Duncan Cross: I Sent This Letter To A Doctor Who Pissed Me Off
Ordinarily we limit guest posts to current members of SPM, but this is an extraordinary case. Duncan Cross's post illustrates so many aspects of how empowered, engaged, activated patients view their lives, and how important it is to have an effective partnerships with...
New Participatory Medicine Resources for Providers
Ever since the formation of the Society for Participatory Medicine we have discussed curating and sharing resources about participatory medicine. The resources might be videos, websites, blog posts, tutorials, and other online resources that could benefit patients,...
BREAKING: Susannah Fox is HHS’s new Chief Technology Officer
A quick first post, copied from Facebook: "Hugest news EVER! Susannah Fox is the new Chief Technology Officer at U.S. Department of Health and Human Services. How amazing is that??" My comment on Susannah's short post: "This wins my prize as the biggest...
Add Your Voice: Meaningful Use Regulations Mustn’t Leave Patient Engagement in the Dust
There are two sets of Meaningful Use draft regulations out for comment at present: (1) Proposed revisions to Meaningful Use Stage 2 (“MU2”), with comments due June 15 and (2) Proposed Meaningful Use Stage 3 (“MU3”) regulations, to be effective in 2017 at the earliest....
Announcement: SPM to advise ACP’s new Center for Patient Partnership in Healthcare
SPM co-founder and co-chair Dr. Danny Sands is appointed our first representative On Friday the following notice was distributed to members of our Society for Participatory Medicine. What a wonderful sign of medicine's growing acceptance of the importance of...
