e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Consumer Reports: “Respectful” treatment key to patient safety?
In a report released today (December 16, 2014), Consumer Reports shares insights from a survey of 1,200 people who were recently hospitalized. SPM is not surprised by the findings, which include the fact that patients who said they received respectful treatment by...
What happens when patients can accurately make their own diagnosis?
A physician friend once shared his belief that the main product of a physician’s productivity is the diagnosis. Setting aside feelings about the notion of a work product in medicine, I’ve quite liked the simplicity of his distillation. The diagnosis is the...
Engaging Patients in Safety: Naughty or Nice?
This post by long-time SPM member Michael Millenson first appeared on the EngagingPatients.org blog. We're re-posting it here to both put it on the membership's radar, and to invite comments on Michael's POV that "As much as we can argue that patient engagement with...
Sequencing Your Genome: Opportunities and Challenges
Rapid advances in the technologies giving scientists the ability to analyze, understand and identify the unique characteristics in the genome of every human being are now being translated into clinical applications that are actually prolonging the life of many...
A Case for Autonomy & The End of Participatory Medicine
Guest post by Hugo Campos; introductory note from Society for Participatory Medicine president Nick Dawson Every movement evolves. And as a grassroots social justice movement, the Participatory Medicine Movement is also growing, changing and evolving. Something I've...
Evidence: “Patients value direct, independent access to their medical exams.” Who knew??
Edited an hour later - added Business Impact section at end Healthcare providers who are tracking patient experience and patient satisfaction, take note: a new study reported yesterday in Science Daily provides evidence that we patients really like it when we can view...
“Activate your super-patient powers”: Public event (free!) at Brown next Monday
Cross-posted from my own site. This is about a free, non-commercial event that's intended to be a radical exploration of a new way to discuss participatory thinking with people who don't live in health policy circles - ordinary citizens! ______ For years I've been...
#epatient – Are Millennials Born That Way?
Reposted from the Mighty Mouth blog Most of the people I meet in my voyages ’round healthcare system transformation, grassroots edition, arrived at the portal of #epatient via a trip through the medical-industrial complex. Either they, or someone they cared for, wound...
Digital Technology in Health and Participatory Medicine Recognized in UN Forum
The Commission on the Status of Women (CSW) was established by the United Nations Economic and Social Council (ECOSOC) in 1946. It is the principal global policy-making body dedicated exclusively to gender equality and advancement of women. The active...
Count the e-patient takeaways: “What I learned going down an emergency slide”
Susannah Fox, long one of our most popular and prolific bloggers, is roaming to wider audiences these days. She's entrepreneur-in-residence at Robert Wood Johnson, she has her own site, and she's just started writing on the hip-hip site Medium.com. We've long said...
Inaugural Emerging Leader Award from CCFA- DC Chapter for Carly Medosch
Society for Participatory Medicine member Carly Medosch and her mother Mary Jo have run the Crohn's and Colitis Foundation of America's Fredericksburg, VA support group for the past 6 years. Crohn's disease and ulcerative colitis are two forms of imflamatory bowel...
WHO in Geneva – SPM in the house!
SPM member Casey Quinlan (who's posting this) was invited to attend an event at the WHO in Geneva. This post originally appeared on her Mighty Casey Media blog, and is reposted here in its entirety by SPM request. Guess who got invited to WHO? No, really. The World...
