by e-Patient Dave | Dec 1, 2010
Social media brings unexpected connections, which lets us combine thoughts and forces. This summer we connected with “Rheumatoid Arthritis Warrior” Kelly Young (see her great post here, Learning to use my mother-of-a-patient voice), which led to being...
by e-Patient Dave | Sep 17, 2010
One of the essential enablers of participatory medicine is that the internet brings patients together with information and with each other. Sometimes those connections seem improbable, such as when an acute cancer patient finds much in common with patients who have a...
by Eric Bersh | Feb 14, 2023
Throughout my time as a psychotherapist specializing in end of life diseases, primarily cancer, I have spent many hours talking with both patients and medical teams about the importance of authentic communication and end of life planning. I see this kind of planning...
by e-Patient Dave | Jan 26, 2020
Many people are asking if they can add their stories or their signatures. Please do so in comments! We’ll copy signatures into the body of the post as time allows. We, the undersigned, are patients, family caregivers and advocates who are desperate to receive...
by Susannah Fox | Mar 6, 2008
The Health 2.0 conference was an opportunity to learn about an amazing array of emerging technologies and, for me, to connect them to a bigger vision of what’s happened and what’s next. Here is the text of my remarks, annotated with as many links as I can...
Technology, Health Equity, and Participatory Medicine in the Care Management of Sickle Cell PatientsApril 26, 2024
Driving Transformation: Change Management Strategies for Integrating Participatory Medicine in HealthcareApril 6, 2024
The Challenge for Medicare Part D Patients: Inability to Utilize Pharmaceutical Programs to Reduce Medication CostsMarch 29, 2024
Shared Decision-making: Becoming a Better Advocate for your HealthcareMarch 28, 2024
2024 SPM Update from Board Chair Mary HenningsJanuary 17, 2024
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