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e-Patients Blog

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HIMSS blog featured e-Patient Dave

The HIMSS blog features e-Patient Dave, the 5 Es of e-Patients and how social media can help. http://blog.himss.org/2013/01/25/part-1-value-of-social-media-in-healthcare-is-already-outlined-just-not-realized/ For whatever reason – whether it’s budget, time, buy-in or...

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Thoughts on requirements for Patient-Centric HIT Systems

The latest buzzword in the Healthcare IT (HIT) world is “patient-centric”. It seems that everyone’s device/software/solution is designed to be patient-centric. On the Society for Participatory Medicine’s internal listserv we discussed what does it take for an HIT...

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NEJM: Post-Hospital Syndrome

SPM member Marge Benham-Hutchins (see her December post) spotted this item. It's a vital point for patient and family awareness, leading to patient engagement - patients as responsible drivers of their health. I added the italics below. From a recent Perspectives...

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Breaking news: HHS publishes long-awaited HIPAA rule changes

On Twitter @HCI_GPerna just posted that the Dept of Health & Human Services has announced the long-awaited rule changes to HIPAA, the Health Insurance Portability and Accountability Act of 1996. These are the changes to implement HITECH, the 2009 stimulus bill...

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Medical Errors: Will We Act Up, Fight Back?

Medical Errors: Will We Act Up, Fight Back?

(Originally published on the CFAH Prepared Patient Forum January 16, 2013) Sometimes, angry patients and dissident doctors and nurses warn us about the impending patient revolution – how health care is so unsafe, of such poor quality and so expensive for us patients...

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Our latest “doctor as e-patient”: SPM member Leana Wen

It's less common today but people used to think empowered patients were anti-doctor. One part of our response on this blog was to point out the many clinicians who are e-patients themselves, as in Let’s hear it for the d-patient e-patients (with dozens of comments)....

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Research – Route funding through consumer organizations

This is the third of 3 recommendations a group of Boston-based PCORI Ambassadors made to the PCORI Board in November. The first was Expanding the Scope of Research Questions Funded, the second, Micro-contracts.  Researchers typically struggle to include...

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Health Online 2013: survey data as vital sign

Survey data is a snapshot of a population, a moment captured in numbers, like vital signs: height, weight, temperature, blood pressure, etc. People build trend lines and watch for changes, shifting strategies as they make educated guesses about what's going on. What's...

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Heads up: New Pew Internet report coming out tomorrow

The report was issued overnight - see Susannah's post here about it, media coverage (via Google), and blogs. I'm stealing some Susannah Fox thunder here because I can't wait, and you should carve out a spot in your calendar tomorrow. Here's her tweet just now:...

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The Society for Participatory Medicine’s ePatients blog highlights items of interest to those in the world of e-patients and participatory medicine. Some of our most popular topics include e-patient stories, e-patient resources, problems in healthcare, medical records, news & gossip, patient networks, policy issues, positive patterns, patient/doctor co-care, patients as teachers, reforming healthcare, trends & principles, and why participatory medicine. Our newest blog posts are below. You can also subscribe to our blog via email.

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