e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
What if we treated substandard *info* like substandard drugs? (Riff on an IOM report)
Major typo fix, 3:23pm - "they're giving" is not same as "they're given"! Sorry. This note arrived today from the Institute of Medicine. I'm in DC at the moment, at a big briefing by the Health Affairs policy journal about patient engagement, and a key issue keeps...
Closed systems collapse, open ones thrive: the Health Design Challenge
Next guest post by SPM member and former health system executive @NickDawson. Ilya Prigogine received in the Nobel Prize in Chemistry in 1977. His work largely focused on Non-equilibrium thermodynamics. What he found is as fascinating for scientists and non-scientists...
Cristin Lind: My new litmus test for patient-centeredness
Guest blogger Cristin Lind is an e-caregiver and e-patient; her personal blog is called Durga's Toolbox. When trying to find a definition for what real patient- or family-centered care looks like, I can easily to get caught up in inspirational jargon. But a recent...
Monthly introduction to e-patients.net, blog of the Society for Participatory Medicine
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn. Here's how to become a Society member, individual or corporate. Our publications: This blog...
Minnesota Supreme Court sides with patient on social media defamation suit
Guest post by SPM member @NickDawson, a former health system executive now focused on patient experience, staff happiness and healthcare innovation. He works for Frontier Health in Richmond, Virginia. There's a moment where something changes direction, irreversibly,...
Final HIPAA Privacy & Security Rule – What’s in it for Patients?
After years of delay, the federales finally finalized the HIPAA Privacy, Security, Breach Notification and Enforcement Rules. Introduction The Final Rule offers significant changes to patient rights and patient protections. (There is much more to the rule, but other...
How to Provide Emergency Medical Services to Everyone
News outlets across the country reported recently that the 2013 flu season is bringing so many people to the emergency departments of hospitals throughout the country that many hospitals are setting up tents to handle the overflow. The ED has been a...
The Case for Being On Top of Your Case
Guest post by Elaine Waples, one of our new (today) members of SPM (with her husband Brian Klepper). This story illustrates one of the core dysfunctions in American medicine today - lack of coordination - and makes a compelling case for patients and families to be...
Eric Topol at Rock Health
Thanks to Carla Berg for sharing this: Eric Topol was on Rock Center tonight. He talked about the patient empowerment and give us our data themes he brings up towards the end, he did everything but mention #gmdd and patients in the drivers seat explicitly. The key to...
HIMSS blog featured e-Patient Dave
The HIMSS blog features e-Patient Dave, the 5 Es of e-Patients and how social media can help. http://blog.himss.org/2013/01/25/part-1-value-of-social-media-in-healthcare-is-already-outlined-just-not-realized/ For whatever reason – whether it’s budget, time, buy-in or...
Thoughts on requirements for Patient-Centric HIT Systems
The latest buzzword in the Healthcare IT (HIT) world is “patient-centric”. It seems that everyone’s device/software/solution is designed to be patient-centric. On the Society for Participatory Medicine’s internal listserv we discussed what does it take for an HIT...
1 Million VA Patients Can Now Access Their Complete Health Record
This weekend is momentous not only for the 2nd inauguration of the President. History will say the Veterans Health Administration is innovative, truly patient centered and even a bit risky. Today, VA patients can view, print and download ALL their health record data...
