e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Medical Errors: Will We Act Up, Fight Back?
(Originally published on the CFAH Prepared Patient Forum January 16, 2013) Sometimes, angry patients and dissident doctors and nurses warn us about the impending patient revolution – how health care is so unsafe, of such poor quality and so expensive for us patients...
Our latest “doctor as e-patient”: SPM member Leana Wen
It's less common today but people used to think empowered patients were anti-doctor. One part of our response on this blog was to point out the many clinicians who are e-patients themselves, as in Let’s hear it for the d-patient e-patients (with dozens of comments)....
Research – Route funding through consumer organizations
This is the third of 3 recommendations a group of Boston-based PCORI Ambassadors made to the PCORI Board in November. The first was Expanding the Scope of Research Questions Funded, the second, Micro-contracts. Researchers typically struggle to include...
Health Online 2013: survey data as vital sign
Survey data is a snapshot of a population, a moment captured in numbers, like vital signs: height, weight, temperature, blood pressure, etc. People build trend lines and watch for changes, shifting strategies as they make educated guesses about what's going on. What's...
Meaningful Use Stage 3 – Society for Participatory Medicine Comments on Proposed Objectives
The Health IT Policy Committee of the Office of the National Coordinator of Health IT released its proposed Stage 3 objectives for Meaningful Use. Â "Eligible Providers" that meet these objectives share in the federal electronic health record incentive program under...
Heads up: New Pew Internet report coming out tomorrow
The report was issued overnight - see Susannah's post here about it, media coverage (via Google), and blogs. I'm stealing some Susannah Fox thunder here because I can't wait, and you should carve out a spot in your calendar tomorrow. Here's her tweet just now:...
Monthly introduction to e-patients.net, blog of the Society for Participatory Medicine
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here's how to become a Society member, individual or corporate. Our publications: This blog...
Finally! An initiative from *within* science to reproduce studies. (And not everyone likes it.)
Addition Oct 2014: added link to the Reproducibility Initiative, now at validation.ScienceExchange.com Correction Monday morning: the project is called the Reproducibility Initiative, not Project. Also, note that we got a comment from co-founder Elizabeth Iorns -...
PCORI and Micro-Contracts
Susan Woods responded to my previous post, PCORI and Just-In Time Decisions with the research funding system doesn't really work for anyone. It is in concrete, Agreed.  Micro Contracts could be a small intervention that could help move the dial. (As a reminder, the...
Science Fraud site is shut down by legal threats
Jan. 3 update: See important update at bottom - the site owner has identified himself. I'm extremely troubled by this development, so much so I'm stopping a tight-deadline task to write this. Let's hope that as things unfold this will resolve. Ivan Oransky, executive...
“Arm” ourselves with information: Health News Review and 2009’s “war on cancer” post
Some things are what they call "evergreen" - persistent value, never out of date. Two come together for this year-end post. __________ A lot's changed since our society was formed in 2009, but year after year a core skill for participatory medicine is ability to think...
PCORI and Just-in-Time Decisions
SPM member Danny van Leeuwen @HealthcareHatsis an active member of PCORI's patient engagement workgroup. A month ago he mentioned a post about PCORI on WBUR's CommonHealth blog, Medical Research: By Law, It’s All About You. I said "You should make short blog posts...
