e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
A wide-open brainstorm: let’s list clinicians’ skills, beyond diagnosing
During a conversation with a friend last week I had a hare-brained thought - not rare, as friends know, but this one was thought-provoking. So, patients and providers and everyone else, let's talk about this: If diagnosis magically became automated - if some...
“My Health Counts: e-Patients” (coming soon from WNED, PBS Buffalo!)
Check this trailer for a new program, to be launched in January, produced by WNED, the PBS affiliate in Buffalo: One of the challenges of starting a movement like this, especially a Society with little budget, is that you have to bootstrap, like any modern business:...
“Vote No on Suffrage: 90% don’t care”
Oh lordy, do I love this U.S. Election Day tidbit. Translate all the ideas from men/women to doctor/patient, and you'll have the response I sometimes get when I lecture about participatory medicine. Thanks to one of SPM's newer members, Cristin Croghan Lind, for...
Monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here's how to become a Society member, individual or corporate. Our publications: This blog...
Sincerity in the storm (welcome to our world)
Hurricane Sandy "slapped the snark out of Twitter" for media reporter David Carr. In his column today, Carr discusses a newfound sense of community, which will sound familiar to anyone who uses social media to navigate an acute or chronic health condition: - Twitter...
PCORI Workshop post 3: Danny van Leeuwen (@HealthHats)
Next in our series of posts by SPM members on their experience at last weekend's PCORI workshop. See Monday's introductory post. I recently met (face to face) Danny van Leeuwen, one of the newer members of our society. He's a sensitive, caring patient and RN, and one...
PCORI Workshop post 2: Kathy Day RN (McCleary MRSA Prevention)
Second in a series announced yesterday of posts by SPM members who attended last weekend's PCORI workshop. This one's from Kathy Day, an avid e-patient advocate from Maine. This originally appeared here on her blog, on Monday. Why PCORI made me endure flying through...
PCORI Workshop post 1: Kelly Young (@RAWarrior)
As noted in today's earlier post, we're starting a series of posts by SPM members who participated in last weekend's PCORI workshop. Kelly Young (@RAWarrior) is one of the smartest e-patients I've ever seen anywhere. Aside from her technical expertise (a superbly...
Beginning a series: SPM members’ thoughts on the PCORI workshop
All: I'd like to collect a list of all blog posts about this PCORI weekend, from SPM members (our Society) and anyone else. Please write to blog@participatorymedicine.org, and disregard the auto-reply that you'll get. __________________Â This post started as a prolog...
Nancy Finn: Collaborative Teams that Include Patients Make Care Coordination Possible
Today's guest blogger, author and SPM Secretary Nancy Finn, originally posted this essay on her personal blog. Care coordination requires that the right information reaches the right people within an optimal time frame, so that a patient's full information is always...
No-brainer alert: sign this now! O’Reilly letter on “give us our lab data”!
Quick, quick, do this now! Â Go add your signature to the hundreds who have already signed - this is about getting us access to our lab results, the same as any other health data! How important is this? Â Here's a video of SPM member Ann Waldo discussing it with awesome...
Be informed. Hospital quality varies widely by state, within states, even within hospitals
USA Today has a piece today on HealthGrades, one of the sites that provide information on medical outcomes and safety. The data show that quality varies widely. Experienced e-patients know this, and will learn what they can about their local treatment options....