e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
The Waiting Room
Check out the documentary film, The Waiting Room, set in the emergency department of Highland Hospital in Oakland, CA. I wrote a post about a screening and discussion in DC last night and I'm hoping to get a report from tonight's Cambridge, MA, event. If it's not...
When is patient data not patient data? When a patient wants his or her ICD data
The latest news story to examine the issue of patient access to implantable cardiac defibrillator data (a variation on the theme of "gimme my damn data") is an in-depth, Page One Wall Street Journal story featuring Society for Participatory Medicine members Amanda...
Wall Street Journal – Heart Gadgets Test Privacy-Law Limits
Our members Hugo Campos and Amanda Hubbard featured in this great piece in the Wall Street Journal Heart Gadgets Test Privacy-Law Limits http://online.wsj.com/article/SB10001424052970203937004578078820874744076.html?mod=WSJ_hpp_LEFTTopStories Very extensive and well...
New Hospital Safety Score data: a key enabler for informed choice
The PDF at right is a summary of sample data from this new dataset. The Leapfrog Group is a highly respected patient safety organization. They've earned a reputation for carefully and thoughtfully assessing providers' actual performance in quality and safety. Their...
Engage with Grace
A guest post from the Engage with Grace team... One of our favorite things we ever heard Steve Jobs say is… ‘If you live each day as if it was your last, someday you'll most certainly be right.’ We love it for three reasons: It reminds all of us that living with...
Rural e-patients face access challenges
David Gorn, a reporter for California Healthline, contacted me after the release of the Pew Internet/California HealthCare Foundation's Mobile Health 2012 report and asked if there were interesting findings on rural Americans. Indeed there are and I wish I'd thought...
Danny van Leeuwen: The Right Information in My Health Record
Danny van Leeuwen, Opa MPH RN CPHQ is a patient (Multiple Sclerosis), a caregiver, a nurse, and a leader. A version of this piece originally appeared on his blog, Health Hats. What do we e-Patients need in our electronic health records? Help by sharing in the...
A wide-open brainstorm: let’s list clinicians’ skills, beyond diagnosing
During a conversation with a friend last week I had a hare-brained thought - not rare, as friends know, but this one was thought-provoking. So, patients and providers and everyone else, let's talk about this: If diagnosis magically became automated - if some...
“My Health Counts: e-Patients” (coming soon from WNED, PBS Buffalo!)
Check this trailer for a new program, to be launched in January, produced by WNED, the PBS affiliate in Buffalo: One of the challenges of starting a movement like this, especially a Society with little budget, is that you have to bootstrap, like any modern business:...
“Vote No on Suffrage: 90% don’t care”
Oh lordy, do I love this U.S. Election Day tidbit. Translate all the ideas from men/women to doctor/patient, and you'll have the response I sometimes get when I lecture about participatory medicine. Thanks to one of SPM's newer members, Cristin Croghan Lind, for...
Monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here's how to become a Society member, individual or corporate. Our publications: This blog...
Sincerity in the storm (welcome to our world)
Hurricane Sandy "slapped the snark out of Twitter" for media reporter David Carr. In his column today, Carr discusses a newfound sense of community, which will sound familiar to anyone who uses social media to navigate an acute or chronic health condition: - Twitter...
