e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Hugo in the San Francisco Examiner – in a *non-medical* column
I've often said that we won't really be making a dent until our conversations show up in the popular culture - outside health and technology circles. Well, I just spotted a great example: yesterday Janet Gallin, host of the San Francisco talk show Love Letters...
Fact checking at Medicine X
(A cross-post from susannahfox.com) I had the great honor of being part of the first Medicine X conference at Stanford University last weekend. I presented a sneak preview of new survey results collected by the Pew Internet Project and the California HealthCare...
What Bryant and Katie saw, while Doc Tom was seeing the future
We've often written here about what a visionary our movement's founder "Doc Tom" Ferguson was. As the medical editor of The Whole Earth Catalog and publisher of the magazine and book Medical Self-Care , he saw the role of the patient and family in healthcare. And when...
OpenNotes: The results are in. GREAT news for patient engagement.
Regular readers know that we've long anticipated the result of the OpenNotes project. Our first post about it was in June 2010: “OpenNotes” project begins: what happens when patients can see the physician’s visit notes? It tied the issue all the way back to the...
Crossing a threshold: the e-Patient movement enters wave 2
I'll be blunt here: three years ago, late 2009, when I gave my first keynote speech ever, many observers said "Well Dave, that's fine for you, but you're the only one." I replied: if I'm the only one, there's nothing to talk about. And they were wrong: the e-patient...
Health Affairs: An Evidence-Based Approach To Communicating Health Care Evidence To Patients
This blogpost by Chuck Alston and Patrick McCabe originally appeared on the Health Affairs blog. Many thanks to SPM member Michael Millenson for alerting e-Patients.net to this piece. It has been 22 years since David M. Eddy -- the heart surgeon turned mathematician...
Marya Zilberberg: ACOG’s dysmenorrhea FAQs: Evidence of propaganda?
Guest blogger Marya Zilberberg is the author of Between the Lines: Finding the Truth in Medical Literature. She originally posted this piece on her blog Healthcare, etc. I have been looking up information on endometriosis for a friend of mine, and came upon this from...
Participatory Medicine and e-Patient on morning TV! Good Day Maine
I was in Maine last night, speaking to the annual meeting of the excellent (and very E) Maine Quality Counts, which is one of the sixteen Aligning Forces for Quality (@AligningForces) communities, a project of the Robert Wood Johnson Foundation's Pioneer Portfolio....
Medicine 2.0 Day 2 – Magnificent!
Following up on Susannah Fox's superb summary of Medicine 2.0 Day One, I would like to offer some overview and comments about day two. This was my first Medicine 2.0 meeting. I had heard a lot about Gunther Eysenbach, MD, MPH, and his merry band of "disruptors" but I...
Neel Shah: Costs of Care Essay Contest 2012 for Patients and their Caregivers to Improve Healthcare Value
Guest blogger Neel Shah, MD is the Executive Director of Costs of Care and a chief resident in obstetrics and gynecology based at Harvard Medical School. As a presidential election looms and the American economy struggles to recover, the spiraling costs of healthcare...
Medicine 2.0 Day One
My schedule only allowed me to attend Day One of the fantastically rich Medicine 2.0 Congress being held this weekend in Boston. I thought I'd share my impressions and notes in case they spark inspiration for other people, as each presenter and hallway conversation...
Susan Mende: Making Health Care Decisions Easier — and Reliable
Guest blogger Susan R. Mende, BSN, is a senior program officer at the Robert Wood Johnson Foundation, the nation’s largest philanthropy devoted exclusively to health and health care. She is engaged in the Foundation’s efforts to help consumers take an active role in...
