e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Opening the Door to Closeted Science
NOTE: We're happy to welcome back Sarah Greene, one of the founding members in 2009 of SPM and its journal. She left a while ago for London, where she's continued her work at the leading edge of thought about medical knowledge. Sarah is ahead of most of us. Only in...
“I have a right to my damn data”: Hugo Campos in the Mercury News
Well, SPM's resident ICD patient is getting quite a lot of attention these days! First a feature in MIT Technology Review in November, then his TEDx video was released this month, leading to a spot on NPR's On The Media on 1/20, and now he's on the front page of...
TED talk on doctors’ mistakes
TED.com has posted physician Brian Goldman's very engaging presentation from November 2011, "Doctors make mistakes: can we talk about that?" Goldman discusses the impossibly high expectations we all have of doctors -- doctors themselves especially -- and calls for a...
“That means there is hope” – Atul Gawande at #CISummit
Edits made in the discussion at bottom, 1/27. Quick post from the media table at today's Medicare Innovation Summit: Deservedly famed surgeon & author Atul Gawande just put together a bunch of thoughts into a potent summary. Paraphrasing from memory: There is a...
Medical Devices: Another take on “We want Access to our Damm Data”
Another potent guest post by SPM member Alexandra Albin, @MsAxolotl. If this doesn't give you a sense of who is "the ultimate stakeholder" in health matters, nothing will. Remember, "patient" is not a third person word. Your time will come. A conversation on the SPM...
Hugo Campos on NPR’s “On The Media”
Read to the end... Our man Hugo Campos (see Friday's post) is becoming a media star! TEDx, then MIT Technology Review, now NPR's "On The Media"! From SPM co-founder Joe Graedon, of People's Pharmacy, on the SPM listserv - see also the items below ... ----------...
Hugo Campos at TEDx Cambridge: “Gimme My Damn Data,” Defibrillator Edition
We often say here "Gimme my damn data," referring to our sentiment that data about our health is our data, about us, created for our well-being. And as the saying goes, "Nothing about me without me." And where, we might ask, is that more vital than in the heart? SPM...
Scrubs N Suits posts a good intro to SPM and e-patients
Thanks to Ellen Khalifa at Scrubs and Suits for a nice introduction to SPM, "A Chance to Get behind the Wheel: the Society for Participatory Medicine." http://bit.ly/wFd9Ep "For decades baby boomers have been associated with movements advocating equality, cooperatives...
The Rise of the e-Patient
Lee Rainie, director of the Pew Internet Project, presented this wonderful overview of the Project's health findings at Providence St. Joseph Medical Center in Burbank, CA, on January 12. The Rise of the e-Patient View more presentations from Pew Research Center's...
e-Patient hits the mass media: WBZ Radio and Angie’s List magazine
It's one thing when we "talk amongst ourselves" in our own circles; it's a whole different thing when the message starts popping up in *mass media*, where it reaches people who had no idea. So it's big news that we've had TWO mass-media developments this week with...
Peter Elias: Empowerment and collaboration
Guest blogger Peter Elias, MD, a family physician, raises some interesting questions about the nature of patient empowerment and explores its implications regarding patient-physician collaboration. This piece originally appeared on the author's blog, PeterEliasMD...
OpenNotes helps me prep for a visit
My annual physical is this Friday. Â Since my doctor and I were among the guinea pigs participants in the OpenNotes project, I just got this reminder email: Message Date/Time:Â 1/17/2012 10:00:06 AM Read Date/Time:Â 1/18/2012 7:19:08 AM From:Â OpenNotes, Study...
