e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Practice variation and shared decision making on CBS Evening News
In December we posted about practice variation and shared decision making (SDM), a field of research originated at Dartmouth decades ago and best known as publisher of the Dartmouth Atlas, which describes the amazing amount of unexplained variation in how many doctors...
Healthcare Out Loud
Last fall, at the e-Patient Connections conference, I gave a sneak preview of some survey results which are set to be have been released on the Pew Internet site on Monday, Feb. 28. I hoped to spark new ideas for a savvy, plugged-in audience and I ended up surprising...
Lack of “innovation” as vendors focus on meaningful use?
EMR and HIPAA is a great blog about health IT technology - well written, thoughtful, with personality. But I disagreed today with a post about the huge HIMSS conference (Health Information Management Systems Society) that ends today in Orlando. John wrote that with...
Putting patients into “meaningful use”
The Health Research Institute at PricewaterhouseCoopers released a report today entitled Putting patients into "meaningful use." It begins with the anecdote I've blogged about previously regarding a diagnosis by Facebook in lieu of a PHR, which some have highlighted...
ABCNews.com: “The Biggest Wasted Resource in Health Care? You.”
ABCNews.com has posted a great new piece by Roni Zeiger MD, "The Biggest Wasted Resource in Health Care? You." Subtitle: How Your Internet Research Can Help Your Relationship With Your Doctor. It's well reasoned and clearly written, and continues the trend we cited a...
Invitation: crowdsource the definition of “Patient Centered Outcomes”
Our next guest post from SPM member Gangadhar Sulkunte (Twitter @gangadhargs). See also his family's intense personal e-patient story from 2009. Gangadhar has responded to his experience by becoming participatory, even seeing where we need to participate in defining...
IHI releases video of SPM’s keynote
The Institute for Healthcare Improvement (IHI) has generously released the session video of the keynote that SPM president Dr. Danny Sands and I delivered at the IHI's annual Forum in December. At this event the IHI did two extraordinary patient-oriented things: they...
Patient Experience of Care: Measuring and Incentivizing High Performance
There is a growing recognition within the medical-industrial complex that the patient is a key element of the enterprise, and that patient satisfaction, patient experience, patient engagement, patient activation, patient-centeredness are very important. Some research...
Documenting and promoting Open Innovation: The Open 100 wiki
We in the "open health" community need to add to this new wiki. Who's better than the Society for Participatory Medicine?? Specifically: Last week Aman Bhandari (@GHIdeas - Global Health Ideas) tweeted about something that's exciting because it's thought-provoking and...
Guest Post Guidelines
This page is obsolete. For blog posts, see the https://participatorymedicine.org/epatients/GuestPosts page. Articles for our Journal of Participatory Medicine: see guidelines here.
A Health Information Divide
This post is first and foremost a thank-you note. Thank you to everyone who posted a comment, emailed me, or tweeted a suggestion in response to my request for input last July: Crowdsourcing a Survey. Six new topics came directly from those conversations. Thank you to...
February retrospective on e-patients.net
Researching recently I wound up looking at where we were two years ago -Â February 2009, just as the Society for Participatory Medicine (SPM) was forming. Fascinating to see what topics were live then and are still relevant today - this community has focused on some...
