e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Readers Digest: “Doctors confess their fatal mistakes”
My mom shot me a note today about this cover story in the new Reader's Digest. Unhappy reading but good patient education. Cites some familiar names, e.g. Peter Pronovost and Robert Wachter. It's good to see "wake up" messages in the mass media, as with Elizabeth...
e-Patient Connections 2010
Kevin Kruse and his team have put together another incredible event in Philadelphia: e-Patient Connections 2010. Follow the tweets by searching for #epatcon or read the excellent summaries being written in real-time by Leigh Householder and Seth Quillin on the blog...
“Another Devastating Diagnosis”: JoPM Editor Jessie Gruman undergoes surgery for a fourth cancer
Jessie Gruman, PhD, Co-Editor-in-Chief of our Journal of Participatory Medicine, underwent surgery today in New York to address the fourth cancer-related diagnosis of her life. Today she released a blog post about it. Jessie has been a natural choice to co-lead our...
What is the ROI on love?
Last week's Mayo Transform symposium was a two-day excursion into the world of science, data, design, and the secret ingredient to health: love. Patch Adams, MD, kicked things off in grand style. If you've never seen him speak, treat yourself to a hit of his energy:...
Article: The Rise of the Empowered Patient
Pathways, a Scientific American magazine, has a long new article The Rise of the Empowered Patient. It quotes, among others, our friend Lucien Engelen (@Zorg20, which is Dutch for Health 2.0). I'm starting an all day meeting so I can't absorb yet - please discuss!
What can surgeons learn from patients?
I'm going to be on a panel at the American College of Surgeons 96th Annual Clinical Congress on October 5 in Washington, DC. The session title is pretty provocative: To Tweet or Become Extinct?: Why Surgeons Need to Understand Social Networking and my part of it uses...
Journal of Participatory Medicine Releases New Content
The Journal of Participatory Medicine (JoPM), the online peer-reviewed, open access publication of the Society for Participatory Medicine, has released new content for its 2010 volume. The journal's mission is to transform the culture of medicine from a delivery...
Truth is stranger than fiction – and deceptive websites are all too plentiful
By Lisa Neal Gualtieri. (Her earlier much-commented post on this subject is here.) The Boston Globe reported this month on the sentencing of a former US Airways Express pilot, Stephen Sharp, "for selling a powdered drink mix over the Internet that he claimed was '100...
Informed Medical Decision-Making: the challenges of doctor-patient communication
You can't be well empowered if you hear advice wrong. That's why, in a participatory relationship, an essential skill is accurate handoff of information. The Foundation for Informed Medical Decision Making, catchily pronounced "fimdim," has been working for years to...
The Unwilling E-Patient: Learning to use my mother-of-a-patient voice
One of the essential enablers of participatory medicine is that the internet brings patients together with information and with each other. Sometimes those connections seem improbable, such as when an acute cancer patient finds much in common with patients who have a...
The Power of Mobile (Video)
The video of my Mayo Transform 2010 speech, The Power of Mobile, is now up on the conference site as well as on YouTube. It was an honor to be part of this event. Many thanks to David Rosenman and his team for inviting me!
NPR: Three Tips for Picking a Better Doctor
On Monday NPR's Scott Hensley posted: "Between the Internet and all the data insurance companies and the government collect on doctors, you'd think it would be a lot easier than it used to be to find a good one. But it's not." Sound familiar around here? See his...
