by David Harlow | Sep 23, 2013
[Note added by e-Patient Dave: this is such a big deal that I’m taking the rude step of adding highlights [bold] to Attorney Harlow’s post!] We’re inching closer to promulgation of final regulations that will likely make all lab test results more...
by e-Patient Dave | Sep 15, 2013
Monday Sept. 16 is the 2013 Consumer Health IT Summit. That means we, the patients, are the focus – we and our data, of course! – along with the providers (doctors, nurses, practices, hospitals) who serve us. You can watch live, online, without prior...
by Ileana Balcu | Sep 11, 2013
SPM is launching a tweetchat series this Saturday, Sept. 14 at 3pm Eastern, 7pm GMT (use The World Clock [link: http://www.timeanddate.com/worldclock/converter.html] to find your time zone). The chat will be led by Casey Quinlan, @MightyCasey; Ileana Balcu,...
by e-Patient Dave | Sep 8, 2013
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here’s how to become a Society member, individual or corporate. Our publications: This...
by e-Patient Dave | Sep 4, 2013
Updated Sept. 6: I’d forgotten that as we posted in June, Cleveland Clinic announced open access too, adding a half million patients to the total. Big news is emerging from the OpenNotes® project: big institutions are making patient access to the medical record...
by David Harlow | Aug 28, 2013
There’s a new index in town. This week’s entrant is the EveryMove 100, a ranking of health plans across the US “based on how they engage with and empower consumers to manage their own health.” according to the presser. (EveryMove is a health...
by e-Patient Dave | Aug 4, 2013
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here’s how to become a Society member, individual or corporate. Our publications: This...
by e-Patient Dave | Jul 31, 2013
I’ve just attended John Moore MD’s “defense,” as they call it – his presentation of the results from his PhD thesis project at the M.I.T. Media Lab. The project has participatory medicine written all over it: it’s about Developing...
by e-Patient Dave | Jul 24, 2013
I’m thrilled to say that Dr. Ivan Oransky is now VP and editorial director of MedPage Today. From the announcement in Crain’s New York: “Dr. Oransky, previously on the editorial staff at Scientific American and The Scientist and most recently...
by e-Patient Dave | Jul 15, 2013
Just a quick note on something I’m happy to say we’ve been hollering here for years: A lot of what passes for “evidence” from peer reviewed medical journals is scientifically weak, and has never been verified by an independent lab. That means...
by Nancy Finn | Jun 13, 2013
A recent report by CMS detailed statistics on how many health providers had actually received Meaningful Use (MU) incentive payments. As of March, 2013, 160,890 eligible professionals had received Medicare incentive payments and 83,765 professionals had received...
by David Harlow | Jun 5, 2013
ONC is sponsoring the Blue Button Plus Challenge — putting up some prize money to incentivize teams of developers to come up with solutions to the problem of getting patient data to patients. The first phase of the challenge is crowdsourcing ideas from patients...
by e-Patient Dave | Jun 2, 2013
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here’s how to become a Society member, individual or corporate. Our publications: This...
by e-Patient Dave | May 30, 2013
See my post about this on Forbes. This is as close as a call to arms as we ever get around here, given how collaborative we are. But this is a case of bad science and/or bad reporting, with clear harm to the participatory medicine movement. Whatever the reason, it...
by David Harlow | May 20, 2013
Going public recently with her story of a prophylactic double mastectomy after testing positive for BRCA1 (a gene linked to breast cancer) via an op-ed piece in the New York Times, Angelina Jolie is clearly trying to get the message out that radical choices must...
by Nancy Finn | May 14, 2013
From the lens of a patient who recently experienced major surgery, I now realize how difficult it is to be participatory when you are in pain and taking large doses of pain medication which dulls the senses and puts you in a place where you are not really thinking...
by Susannah Fox | May 12, 2013
We have posted many stories featuring mothers over the years. In celebration of Mother’s Day, a compilation: A Lifetime of Participatory Medicine Can Start With Maternity Care Through the Land of Smoke and Mirrors: An e-Patient’s Odyssey (“Mama Lion”...
by David Harlow | May 12, 2013
The FDA launched an impressive patient network website this month, after nearly four years of research, focus groups, usability testing and more. The twin goals for this website are promoting the educational mission of the FDA, and promoting opportunities for patient...
by David Harlow | May 8, 2013
The new darling of the online educational community is Massively Open Online Courses (MOOCs). The example which figures most prominently in the popular imagination is the Khan Academy, though its founder says otherwise, noting that MOOCs are merely online...
by e-Patient Dave | May 6, 2013
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here’s how to become a Society member, individual or corporate. Our publications: This...
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