by Kathleen O'Malley | Sep 15, 2011
E-Patient Dave’s post about the Green Button idea generated a lively and substantive discussion in the Comments section. The idea of making it easy for patients to anonymously share their data online for the benefit of research is apparently one whose time has...
by e-Patient Dave | Sep 10, 2011
I’ve long been surprised that Planetree.org is not better known by everyone who talks about patient-centered care, patient engagement, etc. I attended one of their webcasts in April and wrote about a great booklet they discussed. I’m taking the liberty of...
by Gilles Frydman | Sep 4, 2011
I have known Sharon Anderson for many years and watched her eAdvocacy evolve.  A nine year leiomyosarcoma (LMS — a very rare cancer) survivor, Sharon has tirelessly used her social work skills to help LMS patients directly while actively promoting an increase in...
by e-Patient Dave | Sep 2, 2011
Today I heard from a friend who’s had a tumor discovered. S/he decided to fire the current doctor, who would not return phone messages and was “intellectually lazy” – not interested in pursuing ideas my friend brought up that might require some...
by e-Patient Dave | Aug 31, 2011
Guest post by SPM member Gangadhar Sulkunte. We posted his family’s e-patient story two years ago. The FDA’s Risk Communication Advisory Committee has published a PDF book called  “Communicating Risks and Benefits: An Evidence-Based User’s...
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