by e-Patient Dave | Oct 6, 2012
I’ve often said that we won’t really be making a dent until our conversations show up in the popular culture – outside health and technology circles. Well, I just spotted a great example: yesterday Janet Gallin, host of the San Francisco talk show...
by e-Patient Dave | Oct 4, 2012
We’ve often written here about what a visionary our movement’s founder “Doc Tom” Ferguson was. As the medical editor of The Whole Earth Catalog and publisher of the magazine and book Medical Self-Care , he saw the role of the patient and family...
by e-Patient Dave | Oct 1, 2012
Regular readers know that we’ve long anticipated the result of the OpenNotes project. Our first post about it was in June 2010: “OpenNotes” project begins: what happens when patients can see the physician’s visit notes? It tied the issue all the way back to...
by e-Patient Dave | Sep 30, 2012
I’ll be blunt here: three years ago, late 2009, when I gave my first keynote speech ever, many observers said “Well Dave, that’s fine for you, but you’re the only one.” I replied: if I’m the only one, there’s nothing to talk...
by e-Patient Dave | Sep 20, 2012
I was in Maine last night, speaking to the annual meeting of the excellent (and very E) Maine Quality Counts, which is one of the sixteen Aligning Forces for Quality (@AligningForces) communities, a project of the Robert Wood Johnson Foundation’s Pioneer...
by e-Patient Dave | Sep 10, 2012
In yet another terrific discussion on our members’ listserv, Casey Quinlan of Mighty Casey Media (Twitter @MightyCasey, @CancerForXmas) gave powerful voice to a patient’s perspective on controlling medical costs. I asked her to write it up. Go, Casey!...
by e-Patient Dave | Sep 4, 2012
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn. Here’s how to become a Society member, individual or corporate. Our publications: This blog...
by e-Patient Dave | Aug 30, 2012
SPM member Brian Ahier @Ahier is one of the best known and most respected voices for patient engagement in the “health IT geek” world. He’s Health IT Evangelist for Information Systems at Mid-Columbia Medical Center in The Dalles, Oregon, which is a...
by e-Patient Dave | Aug 30, 2012
Yes, “Regina” – you know who I mean.:-) You know someone’s a star in the firmament when they gain first-name status. (Especially in healthcare, where “the other Regina” happens to be Surgeon General!) As we reported here in June,...
by e-Patient Dave | Aug 30, 2012
Our friend Jim Conway, revered advocate for better care, writes: To my colleagues in the patient and family centered care, personal and public engagement community. On September 6th the IOM will release a new report on building a learning healthcare system, “Best Care...
by e-Patient Dave | Aug 24, 2012
Over on Mind The Gap, Steve Wilkins (Twitter) has a poster about patient engagement that annoyed me:-) right out of the box – because although I pretty much like everything he does, the poster starts with what I find to be the ouchiest mental disconnect in all...
by e-Patient Dave | Aug 16, 2012
We’re not in it for “the eyeballs,” as they say in the world of website marketing: this isn’t a blog that obsesses about pageviews, unique visitors etc, for purposes of selling ads. (We don’t do ads, we don’t do link exchanges,...
by e-Patient Dave | Aug 16, 2012
For a couple of years I’ve been wondering when controversy and snark would hit this movement. Looks like it showed up this morning. Today one of our members posted on our members-only email group: I was on a phone call recently with some colleagues in health IT...
by e-Patient Dave | Jul 31, 2012
As noted a few days ago, I’ve been at the ABIM Foundation Forum. This is, frankly, the most heartening event I’ve been to: the Foundation people are working hard to generate real transformation in the practice of medicine, including the new Choosing Wisely...
by e-Patient Dave | Jul 28, 2012
What is the role of the patient? As we noted in April, TEDMED and the Robert Wood Johnson Foundation have designated “The Role of the Patient” as one of the twenty TEDMED Great Challenges for 2013, and the TEDMED site will host a big conversation about it...
by e-Patient Dave | Jul 24, 2012
Think everything in your medical record is spotless and flawless? Think again: almost everyone I know who’s checked their record has found flaws, omissions, orders that were never carried out. There’s a lot we can do, e-patients, engaged consumers, to...
by e-Patient Dave | Jul 23, 2012
The ever-vigilant Ted Eytan MD writes: I recommend taking a look at this and seeing if the proposed changes are more patient friendly, or if they go far enough to allow patients to see their health data online. At issue is a bill in the California legislature to...
by e-Patient Dave | Jul 23, 2012
Last summer I visited Health Literacy Missouri, and summed up the great work I saw there in Clarity is Power. Today’s Boston Globe has another example – the illustration at right, what’s known as a decision aid, to help patients engage in making...
by e-Patient Dave | Jul 17, 2012
As Meaningful Use rolls out, and providers are required to share data with us, there are a lot of concerns about whether their lives will spin out of control as patients besiege them with ignorant questions. We’ve discussed this in our many posts about the...
by e-Patient Dave | Jul 1, 2012
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn. Here’s how to become a Society member, individual or corporate. Our publications: This blog...
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