by e-Patient Dave | Jun 23, 2012
In our Society for Participatory Medicine we define this new approach to medicine as …a movement in which networked patients shift from being mere passengers to active drivers of their care, and providers encourage and value them as full partners. An article in...
by e-Patient Dave | Jun 19, 2012
Our Doc John” Grohol received this inquiry along from a writer who’s doing a story about physician conflicts of interest and patient care. If this is of interest to you, please contact the writer directly. Thank you! ____________ I’m writing an...
by e-Patient Dave | Jun 19, 2012
Our Doc John” Grohol received this inquiry along from a writer who’s doing a story about physician conflicts of interest and patient care. If this is of interest to you, please contact the writer directly. Thank you! ____________ I’m writing an...
by e-Patient Dave | Jun 19, 2012
Susannah Fox’s post about this two years ago pretty much went over my head: I didn’t get how important it was. But at this month’s White House conference on patient-generated data, I met Nikolai Kirienko, who was the central specimen in her post. The...
by e-Patient Dave | Jun 19, 2012
Shortcut: to respond to this Federal request, go to this post on the government’s blog. Update 9 a.m. 6/19: Josh Seidman, author of this post, says there’s no specific deadline; these comments will feed into HITPC )the Health IT Policy Committee), which...
by e-Patient Dave | Jun 14, 2012
Yesterday, in an email to our Society’s membership, Regina Holliday announced an amazing event that will happen as summer ends. It arose out of an episode with the “Partnership For Patients” program, whose title many of us felt revealed a...
by e-Patient Dave | Jun 12, 2012
I’ve received an interesting request: Women Executives in Healthcare, a Hartford professional organization, will hold a meeting this fall themed around “Who owns your data?” And they asked, what are patients’ top five issues? Of course I have...
by e-Patient Dave | Jun 3, 2012
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here’s how to become a Society member, individual or corporate. Our publications: This blog...
by e-Patient Dave | May 31, 2012
From SPM member Gangadhar Sulkunte: This article is very powerful. How the parents had to go through genomic hell to track down which genetic ailment was killing their son. Lots of useful information on genetic disorders, gene mutations here:...
by e-Patient Dave | May 28, 2012
Quick update before I go out and play: SPM member @AfternoonNapper just notified me that two more of us, Katherine Kelly Leon and Sharonne Hayes MD, are also on NPR today! Patients Find Each Other Online To Jump-Start Medical Research I awoke this holiday morning to a...
by e-Patient Dave | May 24, 2012
From SPM member Keith Boone, author of the e-Patient Rap, whose first verse I did in my TEDx Maastricht talk: My daughter did something interesting a couple of weeks ago when we went to her pediatrician’s office. We asked for her records, and she told the clerk...
by e-Patient Dave | May 20, 2012
Guest post from SPM member Adrian Gropper, MD of HealthURL.com. Information is the foundation for patient engagement. Nothing about me without me. Although personal medical information starts out with your various institutions and doctors, it doesn’t just stay with...
by e-Patient Dave | May 19, 2012
KQED blogger and SPM member Eve Harris has written a great brief piece on Hugo’s desire to access the data from his implanted defibrillator, beginning: Hugo Campos was apologetic about postponing a scheduled interview with me two weeks ago. In a midday email he...
by e-Patient Dave | May 19, 2012
Here’s a quick starter note – I hope to say more later. Health FOO is a by-invitation “unconference” from O’Reilly Media and Robert Wood Johnson Foundation this weekend at Microsoft’s development center in Cambridge, MA. Â SPM...
by e-Patient Dave | May 10, 2012
SPM member Hugo Campos has had much coverage here and in the media (NPR, SF Chronicle, San Jose Mercury-News) for his desire to see the raw data coming out of his implanted defibrillator. The vendor, Medtronic, feels that its responsibility is to give Hugo’s...
by e-Patient Dave | May 6, 2012
[Reminder: The place to register an official comment to the government is this page on Regulations.gov.] SPM member Brian Ahier is Health IT Evangelist at Mid-Columbia Medical Center in The Dalles, Oregon. Today he posted this on Google+; reposted here with...
by e-Patient Dave | May 6, 2012
[Reminder: The place to register an official comment to the government is this page on Regulations.gov. Monday May 7 is the last day.] How slowly culture changes. In September 2009, at the founding of our Society for Participatory Medicine, the cover of Health...
by e-Patient Dave | May 6, 2012
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here’s how to become a Society member, individual or corporate. Our publications: This blog...
by e-Patient Dave | May 5, 2012
Afternoon additions: You too can submit your opinion on the official public comment site. They even allow uploading attachments. As I just told a friend on Facebook: “How often, before this administration, did Washington make it truly easy for anyone to tell...
by e-Patient Dave | May 4, 2012
Doctoral student Mohamed Chekli met SPM member Matthew Katz MD (radiologist), and asked for help with a survey: Would you please put me in touch with people in your network who are offering personal health records (or patient portals) to individuals dealing with...
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