by e-Patient Dave | May 4, 2012
Doctoral student Mohamed Chekli met SPM member Matthew Katz MD (radiologist), and asked for help with a survey: Would you please put me in touch with people in your network who are offering personal health records (or patient portals) to individuals dealing with...
by e-Patient Dave | May 4, 2012
Cross-posted from the ICMCC blog, a post by its chairman, Lodewijk Bos, a Dutch cancer patient who is a great advocate for information, technology, and patient engagement. The ICMCC news feed is a terrific daily compilation of health IT news. A long-time advocate for...
by e-Patient Dave | May 3, 2012
I should have announced this long ago but I’ve just been too busy for my own good. Go register now! FREE! Attendance is limited to 1,000. (It’ll be archived online of course.) Or click the graphic to register: Why this matters: Data quality is important,...
by e-Patient Dave | May 2, 2012
[Reminder: The place to register an official comment to the government is this page on Regulations.gov. Monday May 7 is the last day.] ____________ New, 11pm ET on May 2: See Regina Holliday’s addition at bottom. Evening addition: In a comment below, SPM policy...
by e-Patient Dave | Apr 25, 2012
From Nadia Dawson at Ogilvy, the PR firm that’s handling AHRQ (the Agency for Healthcare Research & Quality) – ———- Forwarded message ———- From: Nadia Dawson Date: Wed, Apr 25, 2012 at 6:34 PM Subject: Cancer...
by e-Patient Dave | Apr 25, 2012
I participated today in a webinar  hosted by eHI. My slides arrived (ahem) too late to be broadcast, so I posted them online, with comments, on my site. In case you don’t click through to the whole thing, here’s a quick excerpt: Long ago in another career...
by e-Patient Dave | Apr 19, 2012
From SPM communication team leader Ileana Balcu: Lisa Fields @PracticalWisdom hosted an wonderful chat last night on the topic of patient presence at conferences. Lisa was a great host and we had a record number of paticipants. Please skim through the transcript on...
by e-Patient Dave | Apr 19, 2012
What news to wake up to – SPM’s “resident artist” Regina Holliday is in Newsweek. It’s not a happy story – nothing about her story is – but it’s good to see such things getting the visibility they deserve. The article,...
by e-Patient Dave | Apr 17, 2012
Updates: The text below the video was added later on 4/17, and the graphic was added 4/18. For me the evidence highlight of TEDMED last week was a talk by Ben Goldacre MD (@BenGoldacre), a charming and articulate doctor who’s dug deeply into what seems to be...
by e-Patient Dave | Apr 16, 2012
Thanks to SPM co-founder Joe Graedon of PeoplesPharmacy.com for this note about today’s special section in the Wall Street Journal on healthcare innovation. (Some of the content requires a subscription, but you can register for 8 weeks free.) Joe’s note,...
by e-Patient Dave | Apr 16, 2012
One of the best-known sad stories in the e-patient movement is that of SPM member Regina Holliday, her husband Fred, and their two children. Fred died three years ago of kidney cancer in a series of failures of American healthcare, leaving a story that Regina now...
by e-Patient Dave | Apr 15, 2012
SPM member Brian Ahier posted this petition notice – and call for comments to the government – on the SPM member listserv. Written by Dave Chase of Avado, it deserves public attention. ONC: Strengthen the Patient Engagement requirements of Stage 2...
by e-Patient Dave | Apr 13, 2012
We posted Wednesday about the Great Challenges program at TEDMED, created by TEDMED and the Robert Wood Johnson Foundation. We said, “We must vote.” You did. We’re in. To see all the challenges that were accepted, go to Challenges.TEDMED.com, and...
by e-Patient Dave | Apr 11, 2012
Correction 4/12: I’m glad to say that there are in fact several patient speakers at TEDMED. There was a massive communication disconnect in the months leading up to this TEDMED, leading to my impression that there were no patient speakers; I hope to find out how...
by e-Patient Dave | Apr 7, 2012
One of the principal areas to be understood and developed as we expand participatory medicine is decision making. As patients become “responsible drivers of their care, and providers welcome and value them as full partners,” patients participate in...
by e-Patient Dave | Apr 1, 2012
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here’s how to become a Society member, individual or corporate. Our publications: This blog...
by e-Patient Dave | Mar 31, 2012
When Medicine Really Gets Personal:Â The DIY Clinical Trial – Health Blog – WSJ http://blogs.wsj.com/health/2012/03/30/when-medicine-really-gets-personal-the-diy-clinical-trial/
by e-Patient Dave | Mar 27, 2012
SPM member Eve Harris, on her “Healthy Piece of My Mind” blog, has a potent post on yesterday’s Supreme Court decision about the BRCA1 and BRCA2 patents held by a private company. The patents have restricted patients’ and families’ access...
by e-Patient Dave | Mar 26, 2012
Since November I’ve been blogging on my personal site about what happens when a patient tries to help control costs, in my cost cutting edition posts. Most recently I noted that this stuff takes time, especially since our glorious American healthcare system...
by e-Patient Dave | Mar 24, 2012
In the latest post in our Why I Joined SPM series, guest blogger Dr. Nabin Sapkota shares his story of discovering that patients like to be taught what’s going on, and how this replaced what he’d lost when he gave up doing teaching rounds. Every “why...
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