by e-Patient Dave | Mar 23, 2012
It’s terrific that so many members of the Society for Participatory Medicine are contributing guest posts that share their e-patient story or how they came to know and care about participatory medicine. This one, by Akiva Zablocki (@iPatchMan), is extraordinary,...
by e-Patient Dave | Mar 23, 2012
The Center for Democracy and Technology (CDT) is one of my favorite sources for accurate information on the rules about our rights to access our medical records. Their wizard Deven McGraw is widely recognized as one of the best authorities anywhere on HIPAA –...
by e-Patient Dave | Mar 21, 2012
Update 3/23: here’s the transcript of the event. Remember December’s post about the #firstMRI idea, to help poor unsuspecting patients prepare for the “monkeys banging on garbage cans” experience? It’s a project now! Join us for...
by e-Patient Dave | Mar 16, 2012
Beyond question, the “gimme my damn data” rock star of 2012 is ICD patient Hugo Campos. (See our past posts about him, including his TEDx Cambridge talk and other media coverage.) I just learned about this well produced short version of his story and his...
by e-Patient Dave | Mar 16, 2012
Associate Editor Aubrey Westgate has a good, solid new piece in the March Physicians Practice magazine about interacting with patients who get engaged with their care by seeking health information on the internet. SPM member Trisha Torrey of Every Patient’s...
by e-Patient Dave | Mar 15, 2012
Update 12:41 pm: fixed the first link. Michael Millenson, whom we welcomed to SPM in December with his first post here, submits this, about his latest work: How has listening to the patient’s voice grown from an ethical demand of the patient rights movement into...
by e-Patient Dave | Mar 14, 2012
Twitter friend @Scanman submitted this one. Robert Krause was diagnosed with diabetes in 1926, at age 5, shortly after insulin was introduced. What a story of a patient who was engaged in his care – starting at age 6. He died this month, just before turning 91....
by e-Patient Dave | Mar 14, 2012
We often hear lately that physicians don’t KNOW what things cost, and are thus disempowered from helping patients control costs. This item arrived today from The Medical Professionalism Blog, the blog of the ABIMF, the American Board of Internal Medicine...
by e-Patient Dave | Mar 11, 2012
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here’s how to become a Society member, individual or corporate. Our publications: This blog...
by e-Patient Dave | Mar 1, 2012
Nancy has quite a publicist for her book “e-Patients Live Longer,” which is spreading the e-patient message… here’s an interview with FoxNews.com.
by e-Patient Dave | Mar 1, 2012
SPM member Regina Holliday is known for her “Walking Gallery” of painted jackets, each telling one person’s healthcare story, which she relates in an accompanying post on her blog. On Tuesday she became the latest e-patient to testify at a meeting of...
by e-Patient Dave | Mar 1, 2012
This was originally posted on my own site. Social media response has said the examples of dialog help people envision how they can express things with their providers. There’s a new ending, at bottom. There’s nothing here that will be a surprise to any...
by e-Patient Dave | Feb 27, 2012
At last week’s enormous HIMSS (health IT) conference, ONC (the Office of the National Coordinator for health IT) announced the long-awaited rules for Stage 2 of meaningful use. (These are the rules that must be met, for health IT systems to qualify for Federal...
by e-Patient Dave | Feb 15, 2012
Over on The Health Care Blog, John Lumpkin MD posted a good essay about the proposed ONC rules to let patients automatically see their lab test results. The SGIM Forum (newsletter of the Society for General Internal Medicine) ran a debate about it, and...
by e-Patient Dave | Feb 12, 2012
It’s funny how things turn out sometimes. Lately I’ve written a lot here about e-patients taking an active role at a new level in healthcare, not just engaging in their care, but actually defining what it should be. Well, wouldn’t you know it, life...
by e-Patient Dave | Feb 7, 2012
A note on the SPM member listserv from Alexandra Albin, frequent guest contributor here – ———- Forwarded message ———- From: Alexandra Albin Here is an article I came across with some relevance to S4PM. 4Â Reasons why Patients...
by e-Patient Dave | Jan 31, 2012
Corrected 6:50 pm – the Medical Professionalism Blog belongs to the ABIM Foundation, not to the Board. ABIM is the American Board of Internal Medicine, one of the two U.S. organizations that certifies internal medicine physicians. Their The ABIM...
by e-Patient Dave | Jan 30, 2012
Well, SPM’s resident ICD patient is getting quite a lot of attention these days! First a feature in MIT Technology Review in November, then his TEDx video was released this month, leading to a spot on NPR’s On The Media on 1/20, and now he’s on the...
by e-Patient Dave | Jan 26, 2012
Edits made in the discussion at bottom, 1/27. Quick post from the media table at today’s Medicare Innovation Summit: Deservedly famed surgeon & author Atul Gawande just put together a bunch of thoughts into a potent summary. Paraphrasing from memory: There...
by e-Patient Dave | Jan 24, 2012
Another potent guest post by SPM member Alexandra Albin, @MsAxolotl. If this doesn’t give you a sense of who is “the ultimate stakeholder” in health matters, nothing will. Remember, “patient” is not a third person word. Your time will...
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