e-Patient Dave, Author at SPM Blog

NEJM Data Analysis Challenge: can others create value by seeing researchers’ data?

by e-Patient Dave | Nov 11, 2016

This is big. Please share it with anyone you know who’s a believer in open data. You may have heard that back in January the New England Journal of Medicine created a firestorm by saying “parasites” about people who want to see a researcher’s...

e-Patient alert: “Are sites like WebMD healthful?” Dive in on NYTimes debate

by e-Patient Dave | Aug 29, 2016

Thanks to @SusanCarr, the highly patient-centered editor of Patient Safety & Quality Healthcare, for this tipoff this morning. I only have time right now to post this & run out the door. Click the image to visit the piece on the Times site, but first,...

OpenNotes hits TEN MILLION patient level

by e-Patient Dave | Aug 9, 2016

As regular readers know, for years we’ve been blogging here about OpenNotes, in which patients and their designated caregivers can read every word their clinicians write, so they can be more informed. The OpenNotes tagline, “Doctors and patients on the...

How can we cope with uncertainty?

by e-Patient Dave | Aug 9, 2016

We’ve written often about uncertainty, which is a recurring challenge in medicine and especially in participatory medicine, where issues of relationship and decisions are core. Some doctors have told me they were trained to display certainty even when things...

e-Patients as journal authors: Sean Ahrens self-experiment published in a major journal

by e-Patient Dave | Aug 8, 2016

We’d love to start a list of other patient-authored papers and posters – let us know in the comments! We know of Dana M. Lewis & Scott Leibrand’s poster about #OpenAPS in June – who else?? We’ve written before about e-patient Sean...