by e-Patient Dave | Dec 22, 2011
One of the highlights of 2011 for me was the introduction in May (see our post) of the Engagement Behavior Framework by SPM member (and JoPM founding co-editor) Jesse Gruman. She and her team methodically identified 43 behaviors to be done by an engaged patient or...
by e-Patient Dave | Dec 21, 2011
As you can see in the later comments on Tuesday’s post, @Xeni’s first MRI did not go well. She was given no hint of what the experience would be like – the horrible banging and clanging in the claustrophobic space – and the tech operating the...
by e-Patient Dave | Dec 21, 2011
In the Society for Participatory Medicine we talk about patients shifting “from being mere passengers to responsible drivers of their health.” Two posts Tuesday from SPM members provide some great specifics. First, orthopedist @HJLuks published Your Role...
by e-Patient Dave | Dec 20, 2011
This post contains street language about body parts, harvested from Twitter last night with Xeni’s permission. This is a story of a non-medical person getting it in gear when she finds herself in need, and what happens when she does. A famous blogger/journalist...
by e-Patient Dave | Dec 19, 2011
Important update: I just learned that the full text of these articles is open access! Thanks to the Annals for giving patients access to the text – since it is, after all, about patients see the information. OpenNotes article: “Inviting Patients to Read...
by e-Patient Dave | Dec 14, 2011
I’m no expert on the FDA but my science antennas are twitching nervously about this, so I’ll post and invite discussion. In a surprising move last week, President Obama and HHS Secretary Sebelius overrules (basically, vetoed) the FDA’s recommendation...
by e-Patient Dave | Dec 12, 2011
We’re thrilled to welcome well-known quality and safety authority Michael Millenson as the newest member of the Society for Participatory Medicine. Here is his first guest post, referring back to his popular article in our Journal. He illustrates how recently...
by e-Patient Dave | Dec 12, 2011
Katie Matlack at SoftwareAdvice.com has posted an interactive timeline of EHR history. Interesting to see how things unfolded long ago. Note, too, two long-ago pivotal moments: The late 1960s introduction of Larry Weed, MD’s Problem-Oriented Medical Record,...
by e-Patient Dave | Dec 7, 2011
As often happens, a Susannah Fox post has led to lingering questions. This time I’ve figured out what I want to say.:-) Last week, in a side note on her World AIDS Day post, she inserted this: … Let’s review the basic math of health services delivery in...
by e-Patient Dave | Dec 4, 2011
We’re taking a page from our good friend @Berci, whose ScienceRoll blog has won numerous awards. He frequently runs an introduction post for new subscribers, to show them around the place and let them know all the things he’s up to. We’re stealing...
by e-Patient Dave | Dec 3, 2011
If you’re interested in a responsible approach to one’s own death, you’ll want to read How Doctors Die, on the Zocalo Public Square blog. It’s not a frequent topic of discussion, but doctors die, too. And they don’t die like the rest of us. What’s...
by e-Patient Dave | Dec 2, 2011
New SPM member @AfternoonNapper Sarah Kucharski was just featured on the Stanford School of Medicine blog, for a conversation she had on their Medicine X blog (emerging technologies) about how web-savvy patients are changing what’s acceptable in medicine. Well...
by e-Patient Dave | Dec 2, 2011
A prime benefit of individual membership ($30) in our Society for Participatory Medicine is the right to participate in our members-only listserv. It was pretty sleepy a year ago, but these days it’s a hotbed of juicy discussions. Here’s something that...
by e-Patient Dave | Nov 30, 2011
We’ve often cited Gary Schwitzer’s Health News Review (@HealthNewsRevu on Twitter) as an invaluable e-patient resource. With a structured ten point evaluation process, the site’s many trained reviewers evaluate the reporting of health news. We...
by e-Patient Dave | Nov 28, 2011
The excellent ICMCC daily newsletter just alerted me to this item from Permanente Journal: Interview with Lawrence Weed, MD — The Father of the Problem-Oriented Medical Record Looks Ahead. I hope to absorb it in the next day or two, and I invite people who know...
by e-Patient Dave | Nov 27, 2011
Cross-posted from my own site. Last night a dear and inspiring friend breathed her last. Monique Doyle Spencer, metastatic breast cancer patient, died at home as she wished. All knew the end was near. A couple of weeks ago she happily attended her daughter’s...
by e-Patient Dave | Nov 25, 2011
Wow. Todd Park, Chief Technical Officer at HHS, ought to be jumping out of his skin with joy at this one. This time, House, M.D. fans, it was lupus. The article “Evidence-Based Medicine in the EMR Era” published in the Nov. 10 issue of the New England Journal of...
by e-Patient Dave | Nov 22, 2011
As in 2009 and 2010, this year too we donate our top post at Thanksgiving to the Engage With Grace movement, encouraging people to participate in this very important discussion, at the time of year when we’re most likely to be together with families. Because it...
by e-Patient Dave | Nov 16, 2011
Usually we talk about participatory medicine at the level of the individual care relationship, but increasingly we’re seeing the need to “Design and create a safe, decent, patient centered healthcare system.” And as we start to get real about that –...
by e-Patient Dave | Nov 10, 2011
To read this post in English, click here. Hacía tiempo que teníamos en mente la posibilidad de llevar a cabo la traducción del Libro Blanco de los e-Pacientes al Español, ya que con más de 420 millones de hispanoparlantes en todo el planeta, nuestro idioma es ya la...
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