by e-Patient Dave | Nov 10, 2011
It’s been a  long time coming, but it’s here! From the English “e-Patients: How they can help us heal health care,” you can now click to download the Spanish e-Pacientes: cómo nos pueden ayudar a mejorar la salud. To read this post in Spanish,...
by e-Patient Dave | Nov 7, 2011
“Patients are overwhelmingly interested in gaining rapid access to their notes … doctors have not experienced significant disruptions to their work.” Hear hear! That’s from a new commentary published Monday in Modern Healthcare about the...
by e-Patient Dave | Nov 2, 2011
Science seeks certainty. The problem in medicine is, the body is complex and our knowledge is incomplete. People who want certainty – physicians or patients – are kidding themselves. And if we expect docs to be perfect, it’s a setup for dysfunction....
by e-Patient Dave | Oct 27, 2011
We’ve sometimes written about doctors as e-patients. (There are a lot!) Here’s the next. SPM member Howard Luks MD, orthopedist, had some symptoms. He spoke to his physician and GI doc, who gave him pills. It didn’t make sense to him. So he did what...
by e-Patient Dave | Oct 22, 2011
Corrections 8:45 pm ET Monday 10/24: This post’s title originally said HHS was seeking patients. Actually it’s PCORI, a new non-government agency, as described below. Both affect the future of healthcare, but PCORI isn’t part of HHS. The title also...
by e-Patient Dave | Oct 20, 2011
An essential aspect of participatory medicine – and Federal meaningful use criteria – is patients having a copy of their health data, so they can (a) understand it and (b) take it wherever they want. That includes radiology images. This is not a new issue...
by e-Patient Dave | Oct 20, 2011
It’s wise to make healthy things fun, and even wiser to make them social (as touted by SPM member Phil Baumann RN’s Health Is Social). This week at the Mayo Center for Social Media, guru Lee Aase (@LeeAase) introduced a program that does both: a catchy...
by e-Patient Dave | Oct 19, 2011
Last week at a gala in Beverly Hills, our society’s co-founder Dr. Alan Greene was honored for his amazingly effective, empowering, democratizing WhiteOut initiative, which in six months has radically altered pediatricians’ recommendations about...
by e-Patient Dave | Oct 14, 2011
In any movement there’s a stage of maturation, where aspirations get fleshed out with specifics. That time is arriving for participatory medicine. As patient engagement (aka consumer engagement) Â earns attention, the question increasingly arises: “Where do...
by e-Patient Dave | Oct 11, 2011
Participatory medicine requires an empowered partnership, in which patients express their wants and pursue their goals in partnership with providers who hear them and work together. And that’s not just about the biology. In this powerful narrative, a hospital...
by e-Patient Dave | Oct 5, 2011
We’ve often said here that when an e-patient wants to be responsible for treatment decisions, it’s essential to know how to evaluate the research about each option. A common mistake is to trust, blindly, news reports about a treatment, or even to trust,...
by e-Patient Dave | Oct 2, 2011
Emmi Solutions, a provider of great interactive patient education tools, is running its second health literacy series on their blog “Engaging the Patient.”
by e-Patient Dave | Sep 29, 2011
Yesterday the New York Times reported that some health insurers have applied to regulatory agencies to push premiums sharply higher – usually double-digit increases, while citizens are suffering.  This falls on top of the 11 year history reported last year by...
by e-Patient Dave | Sep 23, 2011
In the past year I’ve come to see medical decision making as one of the key crucibles in which participatory medicine plays out. We’ve blogged several times about shared decision making (SDM), and by its nature it requires participatory thinking. A new...
by e-Patient Dave | Sep 18, 2011
Tessa Richards, assistant editor at the British Medical Journal, has posted a well reasoned commentary on the BMJ site, “Enlist the patients’ help.” I’m no expert on the UN’s work here but what we seem to be seeing is, once again,...
by e-Patient Dave | Sep 17, 2011
Another post from the Inspire.com network of patient commuÂniÂties. This one’s from New Hampshire resident Linnea Duff, an active Inspire participant who has Stage IV NSCLC (non-small-cell lung cancer). She blogs at Life And Breath. It’s often been said...
by e-Patient Dave | Sep 10, 2011
This is a guest post by SPM member John Sharp, Manager of Research Informatics at the Cleveland Clinic. John gets it about how information empowers healthcare and e-patients. I first met him at Medicine 2.0 in Toronto, 2009, after which he wrote an article for our...
by e-Patient Dave | Sep 10, 2011
I’ve long been surprised that Planetree.org is not better known by everyone who talks about patient-centered care, patient engagement, etc. I attended one of their webcasts in April and wrote about a great booklet they discussed. I’m taking the liberty of...
by e-Patient Dave | Sep 2, 2011
Today I heard from a friend who’s had a tumor discovered. S/he decided to fire the current doctor, who would not return phone messages and was “intellectually lazy” – not interested in pursuing ideas my friend brought up that might require some...
by e-Patient Dave | Sep 1, 2011
Big news from Down Under: the Sydney Morning Herald reports that a group of fifty consumer health advocates has unanimously backed an “opt-out” process for enrollment in electronic health records, reversing their previous position. The issue is whether by...
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