by e-Patient Dave | Aug 31, 2011
Guest post by SPM member Gangadhar Sulkunte. We posted his family’s e-patient story two years ago. The FDA’s Risk Communication Advisory Committee has published a PDF book called  “Communicating Risks and Benefits: An Evidence-Based User’s...
by e-Patient Dave | Aug 30, 2011
SPM member John Novack of Inspire.com sent this, about a project some members of an Inspire patient group created. They got the Mayo Clinic to explore whether a clinical trial can be done in a very unconventional setting: across the internet, instead of within one...
by e-Patient Dave | Aug 30, 2011
Today’s New York Times has a review of two new books, Doctors with Plenty of Time for Patients. Reviewer Abigail Zuger MD says “Suppose … you could actually rent the doctor’s attention for as long as you needed it?” In these books two doctor...
by e-Patient Dave | Aug 23, 2011
Stop what you’re doing, as soon as possible, and spend 20 minutes watching this. It’s the most powerful short talk I’ve ever seen about health care. Our e-patient white paper is titled “e-Patients: How they can help heal healthcare.” In...
by e-Patient Dave | Aug 17, 2011
Anytime Susannah Fox tweets “I am fascinated by…,” I stop what I’m doing and click. Today it’s this: “I am fascinated by this healthcare costs blog: healthcaresavvy.wbur.org Thanks @agropper @WBUR @stephenjdowns.” It’s...
by e-Patient Dave | Aug 17, 2011
I’m visiting yesterday and today with some marvelous kindred spirits: Health Literacy Missouri (Twitter @HealthLitMo, Facebook). Their thoughts are very aligned with participatory medicine. It’s like we’ve been ships in the night – not crossing...
by e-Patient Dave | Aug 9, 2011
I’m at the second face-to-face meeting of the Consumer Consortium of the National eHealth Collaborative, a gathering of 180+ stakeholder groups working on the consumer engagement aspect of health IT. Everyone talks about PHRs as Personal Health Records, but one...
by e-Patient Dave | Aug 8, 2011
Guest post by SPM member Nancy B. Finn, author of the forthcoming book e-Patients Live Longer: The Complete Guide to Managing Your Health Using Technology. Participatory medicine depends on the availability of health information to all members of a care team....
by e-Patient Dave | Aug 7, 2011
An SPM member [name redacted – wishes to remain anonymous :–)] emailed this, with the playful subject line “A New e-Patient”: (Click the image to go to the high-res on the comic’s site; © Copyright 2011 King Features Syndicate, all rights...
by e-Patient Dave | Aug 6, 2011
O’Reilly Media’s Alex Howard, who tweets as @Digiphile, dropped this gem in the stream today: “1991: “The WWW project aims to allow links to be made to any information anywhere”-@timberners_lee http://j.mp/r8bckt /HT @Zee” Well...
by e-Patient Dave | Aug 5, 2011
One of the most common questions about e-patient skills is how to tell the difference between good and bad information, as we research. A wonderful resource just passed its first birthday: Retraction Watch, a blog that digs into the details when science falls short....
by e-Patient Dave | Aug 5, 2011
I’m about to board a plane at 5 a.m. so this is a quick preliminary note. One of the key skills an engaged, informed patient needs is how to find good quality care. Today USA Today reports that Medicare has just released information that I think we’ve had...
by e-Patient Dave | Aug 2, 2011
The Society for Participatory Medicine  recently named three new board members. They’ve been introduced to the members on our private listserve, and we’ve been thinking about introducing the new leadership to the public here. One is Sue Woods MD MPH, a...
by e-Patient Dave | Jul 27, 2011
SPM co-founder and co-chair emeritus Alan Greene MD, of DrGreene.com, just posted this tasty numerical comparison. Remedy, he says? “Working together can be one of the best ways to prevent errors, which is one of the reasons I believe...
by e-Patient Dave | Jul 26, 2011
Now up on YouTube: You, the patient, are a vital component of medical decision making. Believe it or not, it’s worth your effort to find out about your treatment options! This informal FlipCam vignette models a physician encouraging the patient to ask:...
by e-Patient Dave | Jul 26, 2011
We’ve updated this blog’s design template so it’s more clearly a member of the SPM family. Specifically, we’re now using a color-modified version of our Journal of Participatory Medicine’s template, which is a lot slicker and more modern than this...
by e-Patient Dave | Jul 22, 2011
This has nothing to do with healthcare, but it’s the most priceless example I’ve seen in a long time of Not Customer-Oriented Thinking, and perhaps Scary Workflow, both of which do apply to healthcare sometimes. As a Boston-based traveler, I have United...
by e-Patient Dave | Jul 21, 2011
Update: The idea has advanced in the comments – be sure to read them. There’s a Twitter discussion bubbling right now about a “Green Button” idea that was proposed informally last year at HealthCamp SFBay. Here’s a link to our comments...
by e-Patient Dave | Jul 15, 2011
“Health is social,” says SPM member Phil Baumann, RN (@PhilBaumann) at HealthIsSocial.com. Slate has a dramatic story of how a mother’s Facebook network helped spot – rapidly – Kawasaki Disease, a rare auto-immune disease that the...
by e-Patient Dave | Jul 11, 2011
I’m short on time so I haven’t scoured this paper in the Journal of Participatory Medicine, but even from a skim I’ll say it’s important news from the front lines. Implementing an Interoperable Personal Health Record in Pediatrics: Lessons...
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