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A “shopping for healthcare” blog

Anytime Susannah Fox tweets “I am fascinated by…,” I stop what I’m doing and click. Today it’s this: “I am fascinated by this healthcare costs blog: healthcaresavvy.wbur.org Thanks @agropper @WBUR @stephenjdowns.” It’s...
Health Literacy Missouri: Clarity is Power.

Health Literacy Missouri: Clarity is Power.

I’m visiting yesterday and today with some marvelous kindred spirits: Health Literacy Missouri (Twitter @HealthLitMo, Facebook). Their thoughts are very aligned with participatory medicine. It’s like we’ve been ships in the night – not crossing...

How about PHR = *Portable* Health Record?

I’m at the second face-to-face meeting of the Consumer Consortium of the National eHealth Collaborative, a gathering of 180+ stakeholder groups working on the consumer engagement aspect of health IT. Everyone talks about PHRs as Personal Health Records, but one...

Communication, A Vital Skill for Participatory Medicine

Guest post by SPM member Nancy B. Finn, author of the forthcoming book e-Patients Live Longer: The Complete Guide to Managing Your Health Using Technology.  Participatory medicine depends on the availability of health information to all members of a care team....

NOT an e-patient: freaks out at the first search result

An SPM member [name redacted – wishes to remain anonymous :–)] emailed this, with the playful subject line “A New e-Patient”: (Click the image to go to the high-res on the comic’s site; © Copyright 2011 King Features Syndicate, all rights...

Tune in to hear Retraction Watch on Science Friday

One of the most common questions about e-patient skills is how to tell the difference between good and bad information, as we research. A wonderful resource just passed its first birthday: Retraction Watch, a blog that digs into the details when science falls short....

Introducing Sue Woods, new SPM board member

The Society for Participatory Medicine  recently named three new board members. They’ve been introduced to the members on our private listserve, and we’ve been thinking about introducing the new leadership to the public here. One is Sue Woods MD MPH, a...

We’ve changed!

We’ve updated this blog’s design template so it’s more clearly a member of the SPM family. Specifically, we’re now using a color-modified version of our Journal of Participatory Medicine’s template, which is a lot slicker and more modern than this...

An out-of-office email – from a computer

This has nothing to do with healthcare, but it’s the most priceless example I’ve seen in a long time of Not Customer-Oriented Thinking, and perhaps Scary Workflow, both of which do apply to healthcare sometimes. As a Boston-based traveler, I have United...

How Facebook Saved My Son’s Life (Slate.com)

“Health is social,” says SPM member Phil Baumann, RN (@PhilBaumann) at HealthIsSocial.com. Slate has a dramatic story of how a mother’s Facebook network helped spot – rapidly – Kawasaki Disease, a rare auto-immune disease that the...

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