by Kathleen O'Malley | Dec 6, 2011
Guest blogger Kathy Kastner shares her experience as an SPM member. Her website, Ability4Life, offers resources for participatory family caregivers. When I first heard the words “Participatory Medicine” I felt fully in synch, even without delving into its...
by Kathleen O'Malley | Nov 21, 2011
Guest blogger Ken Spriggs talks about how he made sense of his medical data by creating a graphic electronic health record, the DIYEHR. [Update 11/25: the data visualization that Ken created is so extraordinary that we’re adding it here, four days after the...
by Kathleen O'Malley | Nov 11, 2011
This guest post by Kari Ulrich, RN, originally appeared in a fibromuscular dysplasia e-patients’ blog. The November 2011 issue of Reader’s Digest reads in big, bold print, “50 Secrets Nurses Won’t Tell You.” Articles like this create fear...
by Kathleen O'Malley | Nov 9, 2011
Guest blogger Nancy Finn reports on the popularity of health apps. She is the author of e-Patients Live Longer. The Pew Internet & American Life Project conducted a national telephone survey of 2,277 adults in May 2011 and found that 83% own some kind of cell...
by Kathleen O'Malley | Nov 1, 2011
The Journal of Participatory Medicine has published a research paper entitled “Promoting Participatory Medicine with Social Media: New Media Applications on Hospital Websites that Enhance Health Education and e-Patients’ Voices.” The study analyzed the...
by Kathleen O'Malley | Oct 28, 2011
This guest post by Lisa Gualtieri originally appeared in the author’s health blog. “By the time you see the doctor, you’re either dead or you’re better,” my mother-in-law told me. She had to have multiple tests, all with long waits to get the appointments and...
by Kathleen O'Malley | Sep 27, 2011
Guest blogger and SPM member Nancy Finn looks at ways to improve patient-physician communication. There has been a lot of discussion about patient/provider communication, partly driven by the move to electronic health records and the question of who has access to the...
by Kathleen O'Malley | Sep 25, 2011
Guest blogger Beth Austin shares her professional and personal advice on choosing the right doctor. She is the principal of Crescendo Consulting Group. I’ve spent a lot of time in my professional life knee-deep in articles on healthcare quality and medical...
by Kathleen O'Malley | Sep 21, 2011
The Journal of Participatory Medicine recently published a new commentary, “A Skydiver Jumps, and an Online Community Exults,” about the unexpected power of storytelling in a lung cancer support group. After sharing an uplifting story with her online...
by Kathleen O'Malley | Sep 19, 2011
Guest blogger Dr. Neel Shah is the Executive Director of www.CostsOfCare.org and a senior resident in the Massachusetts General Hospital-Brigham & Women’s Hospital combined residency in Obstetrics and Gynecology. Last year, the nonprofit that I direct launched an...
by Kathleen O'Malley | Sep 15, 2011
E-Patient Dave’s post about the Green Button idea generated a lively and substantive discussion in the Comments section. The idea of making it easy for patients to anonymously share their data online for the benefit of research is apparently one whose time has...
by Kathleen O'Malley | Sep 13, 2011
The Journal of Participatory Medicine has published a new case study entitled “Autonomy in Jeopardy: Contrasting Participatory Health Models with Patient Decision Making Under Mental Health Law.” The authors examine the problem of how to achieve patient...
by Kathleen O'Malley | Sep 12, 2011
Guest blogger Tami Boehmer shares a recent conversation with e-Patient Dave about the pitfalls of survival statistics and the power of hope. Tami’s blog, “From Incurable to Incredible,” is at www.miraclesurvivors.com. I recently had the honor of...
by Kathleen O'Malley | Sep 9, 2011
Jonena Relth submitted this guest post to share her very positive experience with her surgeon. I was being prepped for surgery last week and my surgeon, Dr. Davies, came in to discuss the procedure. He explained to me that he had reviewed my file several times and...
by Kathleen O'Malley | Sep 7, 2011
The Journal has just published a commentary by SPM member Kathy Kastner, “My 8-Point Participatory Philosophy: What Makes Me a Participatory Patient.” The author describes the “aha moment” when she decided to become a participatory patient and...
by Kathleen O'Malley | Sep 2, 2011
Nancy Finn submitted this guest post about the challenges facing doctors and patients who want to have clinical conversations online. The quest for the right communication formula and balance that will satisfy doctors and e-patients who want to experience continuous...
by Kathleen O'Malley | Aug 29, 2011
The Journal of Participatory Medicine has just published a research paper, “Exploring Everyday Health Routines of a Low Socioeconomic Population through Multimedia Elicitations.” Participants in this novel study used smartphones to capture pictures and...
by Kathleen O'Malley | Aug 22, 2011
The Journal of Participatory Medicine has just published a Media Watch piece about a new initiative from the California HealthCare Foundation called Team Up for Health. This website is a good example of an online tool that helps primary care providers support patients...
by Kathleen O'Malley | Aug 16, 2011
The Journal of Participatory Medicine has just published a review of “Out of Her Mind: Women Writing on Madness.” Writer Meredith Linden, who lives with bipolar disorder, describes how the selections in this book can help validate people struggling with...
by Kathleen O'Malley | Aug 9, 2011
Social media is well established in our society and it shows much promise as a tool of patient-physician communication. But despite some cases of good and enriching rapport between patients and physicians in social media, the medical world, on the whole, is still...
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