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Erin Moore: Are Patients a Distraction? I think not…

by | Jun 6, 2013

This guest post is from SPM member Erin Moore @ekeeleymoore and is reproduced from her blog, 66 Roses, which is dedicated to finding a cure for cystic fibrosis. There was a healthcare conference last fall that I desperately wanted to go to. The conference was for...

How to be Participatory in the Face of Adversity

by | May 14, 2013

From the lens of a patient who recently experienced major surgery, I now realize how difficult it is to be participatory when you are in pain and taking large doses of pain medication which dulls the senses and puts you in a place where you are not really thinking...

How Things Change

by | May 1, 2013

SPM member Jody Schoger’s post “Cancer: Part Two” at her blog Women with Cancer landed with a big thud on April 26. Schoger was recently diagnosed with metastatic breast cancer. She’s a co-founder of #bcsm (breast cancer social media), one of the highest...

Clinicians are from Mars, e-Patients are from Venus

by | Apr 11, 2013

Are clinicians from Mars and e-Patients from Venus? My experience is e-patients and clinicians can agree that they seek best health. Yet there is such a disconnect, such frustration, so much of the time. Participatory medicine strives to bridge the gaps between...

Reading our own EKG

by | Feb 19, 2013

There’s been a great thread on Dr. Wes’ blog and the SPM listserv about patients obtaining and reading their own EKG’s.  As you can imagine — lots of pros and cons. A significant difference noted between the right to have the information...

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