by Cheryl Greene | Jul 25, 2008
Most of us know Randy Pausch from his video lecture “Achieving Your Childhood Dreams”, taped at Carnegie Mellon as part of their “Last Lecture” series. His hope and optimism in light of a crushing diagnosis brought millions up short as they...
by Susannah Fox | Jul 9, 2008
What are the social and psychological factors that affect how someone is treated — or even their health outcomes? This question has popped up in my reading and in my work quite a bit this week, so I wanted to share what I have learned from three leading...
by Alan Greene | Jul 8, 2008
Our dear friend, our brother, our hero, the inimitable Doc Tom, died on Good Friday 2006. Even though his untimely death came as a shock, Tom Ferguson had already far outlived the projections at the time of his Myeloma diagnosis over 15 years before. July 8 is Tom’s...
by e-Patient Dave | Jul 3, 2008
Today’s entry in the CNN.com “Empowered Patient” series, by medical correspondent Elizabeth Cohen, is titled Empowered heroes’ hard lessons now help others:This week, as we reflect on American heroes, we’re saluting a few “patient...
by Jon Lebkowsky | Jun 26, 2008
Note added afterward by e-Patient Dave:Everyone, please read this post well and understand it well. I think this is a signal moment in our history. As much as I’ve believed in the principles developed by Doc Tom and his e-Patient Scholars Working Group, this...
by e-Patient Dave | Jun 9, 2008
In February 2007 the Washington DC PBS station, WETA, produced a pilot program for a series called “Healthcare 360,” produced by George Mason University and the Agency for Healthcare Research and Quality. The pilot is about “Health IT and how it...
by Susannah Fox | Jun 6, 2008
When Keith Schorsch began suffering from facial paralysis, fatigue, and severe muscular and skeletal pain, eleven doctors failed to identify the cause. Luckily, a friend recognized the symptoms as similar to what she had suffered when she had Lyme disease – and that’s...
by e-Patient Dave | Jun 2, 2008
Cross-posted (with additions) from my own blog 5/25/08 As I talk to people about “participatory medicine” and patient empowerment, I’ve needed to think out what that term really means when the rubber meets the road – when you (the patient) get...
by Susannah Fox | May 19, 2008
For several informative empowered patient stories, see the Comments at bottom of this post. CNN’s Empowered Patient column, by medical correspondent Elizabeth Cohen, contains good, if not groundbreaking, advice, plus the occasional exaggeration or misconception. For...
by e-Patient Dave | May 6, 2008
Sheryl Stein’s e-patient interview was great in its own right, but she struck bonus paydirt when she responded to this question:You say “So I began to research ITP and CVID, and I came to find out that people with CVID often *do* end up…” Where...
by Susannah Fox | May 1, 2008
Sheryl Stein, known to many as “wrekehavoc,” dispenses her wisdom and humor on a 6,000-member online community of parents (using good old listserve technology) and on her blog. In this third edition of our e-patient interviews, Sheryl talks about the power of...
by Susannah Fox | Apr 18, 2008
Amy Tenderich is the engine behind DiabetesMine, “a gold mine of straight talk and encouragement for people living with diabetes.” Hearing her speak at Health 2.0 was a highlight of the conference for me and she just co-authored a book, so I wanted to...
by Susannah Fox | Apr 16, 2008
Cheryl Miller has written an excellent article, “Blogging Infertility,” in The New Atlantis. She brings up a lot of themes that have been echoing throughout my other reading: a once-silent group newly empowered by the internet; teaming patients with...
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