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Join #s4pm tweetchat Saturday 10/12 at 3pm ET

by Ileana Balcu | Oct 10, 2013

We’re organizing a tweetchat this Saturday – October 12 at 3 PM ET to welcome MedX partcipants into the Society for Participatory Medicine. We will discuss our communications tools, and other topics of interset to our members: e-patients, health care...

Screw HIPAA: Here’s a Look at My Doctor’s Office

by John M. Grohol, Psy.D. | Aug 27, 2013

A few months ago, I complained about the layout of one of my doctor’s offices. There’s a rough layout drawing of the office waiting area to the side there. I’m standing just in front of the number 1, while people are sitting along the wall behind me....

Erin Moore’s speech: What if CF had a Collaborative Care Network?

by Alicia Staley | Aug 25, 2013

SPM member Erin Moore (@EKeeleyMoore) is one heck of an activist parent. She sees the future, she has a stake in it – a kid with a chronic disease – and like many of us, she’s not waiting around for someone else to make it happen: she’s engaged...

Rheumatoid Arthritis Ruined Her Elbow, But Nothing Could Break Her Hope

by e-Patient Dave | Aug 16, 2013

SPM member Kelly Young is one of the most spectacular, potent, world-changing e-patients I’ve ever seen. (See our many posts here about her activism.) Aside from all her work on RAWarrior.com and her Foundation, see how she uses this case to teach. Peer-to-peer...

That is a Real Doctor

by Ileana Balcu | Aug 13, 2013

Guest blogger Peggy Zuckerman tells us a story about a young competent doctor and how transparency and openness is key to giving better care. Peggy Zuckerman never intended to be a patient advocate, not even a patient! But after her diagnosis with a “tiny,...

A parent speaks: “Our child’s disease is OUR disease”

by Susannah Fox | Jul 19, 2013

Susannah: On June 14, 2013, I attended the National Meeting on Promoting and Sustaining Collaborative Networks in Pediatrics where we discussed topics covered in a special issue of Pediatrics, among other initiatives and trends. Justin Vandergrift was one of the...