By
Jon Lebkowsky
| February 20, 2017
In 2009, along with several physicians, patients and health activists, I helped form the Society for Participatory Medicine, a nonprofit promoting “a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and in...
By
Jon Lebkowsky
| April 12, 2012
Author Mark Dery’s eloquent essay on his hospitalizations for cancer and complications is clearly one of the best – and most disturbing – patient stories we’ve read....
By
Jon Lebkowsky
| March 29, 2012
Consumer Reports notes that medical devices are rarely tested to determine whether they’re safe. Consumers Union’s Safe Patient Project is gathering stories from patients who’ve had a problem with an implant or a medical device. The Project is...
By
Jon Lebkowsky
| October 4, 2011
e-Patient Dave deBronkart is profiled in Technology Review, and at his own site responds to a “troll” whose comment on the Technology Review piece is dismissive of his e-patient...
By
Jon Lebkowsky
| April 21, 2011
Economist Paul Krugman, blogging at the New York Times, argues that patients should not be referred to as “consumers.” Krugman says “The idea that all this can be reduced to money — that doctors are just people selling services to consumers of health...
By
Jon Lebkowsky
| January 17, 2011
The Robert Wood Johnson Foundation, sponsor of the e-Patients White Paper that was the genesis of this blog and the Society for Participatory Medicine, is sponsoring a partnership of the Institute for the Future and The Quantified Self to build a The Complete Guide to...
By
Jon Lebkowsky
| January 11, 2011
According to Reuters, physicians often base treatments on expert opinion or anecdotal evidence. Only one in seven treatment recommendations from the Infectious Diseases Society of America (IDSA) — a society representing healthcare providers and researchers...
By
Jon Lebkowsky
| January 9, 2011
From the editors of our society’s journal, the Journal of Participatory Medicine: As we close out Volume 2 of JoPM, we’re pleased to look back at how the journal has grown. We published a total of 23 articles in 2010. We published our first two podcasts....
By
Jon Lebkowsky
| January 3, 2011
From Kathleen O’Malley, managing editor of The Journal of Participatory Medicine: We’ve got some good intellectual exchanges going on at The Journal of Participatory Medicine. The three latest Commentaries we posted have garnered several worthwhile...
By
Jon Lebkowsky
| November 26, 2010
I spoke recently at a summit organized by Consumers Union’s Safe Patient Project, and learned in detail about the persistence and prevalence of hospital-acquired infections and other safety risks. Hospitals are not as safe as they should and could be, and...
Gail Phillips: My journey to the Society for Participatory MedicineDecember 26, 2018
Meetin’ Up and Building SPM Community in ChicagoDecember 5, 2018
Pay people for their data – yes, or no?November 16, 2018
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