by Jon Lebkowsky | Feb 20, 2017 |
In 2009, along with several physicians, patients and health activists, I helped form the Society for Participatory Medicine, a nonprofit promoting “a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and in...
by Jon Lebkowsky | Apr 12, 2012 |
Author Mark Dery’s eloquent essay on his hospitalizations for cancer and complications is clearly one of the best – and most disturbing – patient stories we’ve read....
by Jon Lebkowsky | Mar 29, 2012 |
Consumer Reports notes that medical devices are rarely tested to determine whether they’re safe. Consumers Union’s Safe Patient Project is gathering stories from patients who’ve had a problem with an implant or a medical device. The Project is...
by Jon Lebkowsky | Oct 4, 2011 |
e-Patient Dave deBronkart is profiled in Technology Review, and at his own site responds to a “troll” whose comment on the Technology Review piece is dismissive of his e-patient...
by Jon Lebkowsky | Apr 21, 2011 |
Economist Paul Krugman, blogging at the New York Times, argues that patients should not be referred to as “consumers.” Krugman says “The idea that all this can be reduced to money — that doctors are just people selling services to consumers of health...
by Jon Lebkowsky | Jan 17, 2011 |
The Robert Wood Johnson Foundation, sponsor of the e-Patients White Paper that was the genesis of this blog and the Society for Participatory Medicine, is sponsoring a partnership of the Institute for the Future and The Quantified Self to build a The Complete Guide to...
by Jon Lebkowsky | Jan 11, 2011 |
According to Reuters, physicians often base treatments on expert opinion or anecdotal evidence. Only one in seven treatment recommendations from the Infectious Diseases Society of America (IDSA) — a society representing healthcare providers and researchers...
by Jon Lebkowsky | Jan 9, 2011 |
From the editors of our society’s journal, the Journal of Participatory Medicine: As we close out Volume 2 of JoPM, we’re pleased to look back at how the journal has grown. We published a total of 23 articles in 2010. We published our first two podcasts....
by Jon Lebkowsky | Jan 3, 2011 |
From Kathleen O’Malley, managing editor of The Journal of Participatory Medicine: We’ve got some good intellectual exchanges going on at The Journal of Participatory Medicine. The three latest Commentaries we posted have garnered several worthwhile...
by Jon Lebkowsky | Nov 26, 2010 |
I spoke recently at a summit organized by Consumers Union’s Safe Patient Project, and learned in detail about the persistence and prevalence of hospital-acquired infections and other safety risks. Hospitals are not as safe as they should and could be, and...
Experts at Meeting in Quebec Ask “Who Chooses How Much of What?”August 18, 2017
WikiProject Medicine three years on: “converting clinicians to active digital contributors”August 7, 2017
WikiProject Medicine: med students join in producing high quality Wikipedia articles. (You can, too.)August 3, 2017
Lived Experience + Expertise = ValueJuly 22, 2017
#BMJDebate tweetchat: “terms of engagement” for patient voices, noon Thursday ETJuly 12, 2017
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