by Jon Lebkowsky | Feb 20, 2017
In 2009, along with several physicians, patients and health activists, I helped form the Society for Participatory Medicine, a nonprofit promoting “a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and in...
by Jon Lebkowsky | Apr 12, 2012
Author Mark Dery’s eloquent essay on his hospitalizations for cancer and complications is clearly one of the best – and most disturbing – patient stories we’ve read. [Link]
by Jon Lebkowsky | Mar 29, 2012
Consumer Reports notes that medical devices are rarely tested to determine whether they’re safe. Consumers Union’s Safe Patient Project is gathering stories from patients who’ve had a problem with an implant or a medical device. The Project is...
by Jon Lebkowsky | Oct 4, 2011
e-Patient Dave deBronkart is profiled in Technology Review, and at his own site responds to a “troll” whose comment on the Technology Review piece is dismissive of his e-patient experience.
by Jon Lebkowsky | Apr 21, 2011
Economist Paul Krugman, blogging at the New York Times, argues that patients should not be referred to as “consumers.” Krugman says “The idea that all this can be reduced to money — that doctors are just people selling services to consumers of health...
by Jon Lebkowsky | Jan 17, 2011
The Robert Wood Johnson Foundation, sponsor of the e-Patients White Paper that was the genesis of this blog and the Society for Participatory Medicine, is sponsoring a partnership of the Institute for the Future and The Quantified Self to build a The Complete Guide to...
by Jon Lebkowsky | Jan 11, 2011
According to Reuters, physicians often base treatments on expert opinion or anecdotal evidence. Only one in seven treatment recommendations from the Infectious Diseases Society of America (IDSA) — a society representing healthcare providers and researchers...
by Jon Lebkowsky | Jan 9, 2011
From the editors of our society’s journal, the Journal of Participatory Medicine: As we close out Volume 2 of JoPM, we’re pleased to look back at how the journal has grown. We published a total of 23 articles in 2010. We published our first two podcasts....
by Jon Lebkowsky | Jan 3, 2011
From Kathleen O’Malley, managing editor of The Journal of Participatory Medicine: We’ve got some good intellectual exchanges going on at The Journal of Participatory Medicine. The three latest Commentaries we posted have garnered several worthwhile...
by Jon Lebkowsky | Nov 26, 2010
I spoke recently at a summit organized by Consumers Union’s Safe Patient Project, and learned in detail about the persistence and prevalence of hospital-acquired infections and other safety risks. Hospitals are not as safe as they should and could be, and...
by Jon Lebkowsky | Oct 22, 2010
Texas Tribune interviewed Dr. David Blumenthal, National Coordinator of Health Information Technology, for a discussion of healthcare digital convergence (i.e. transition to electronic/digital healthcare records) and the potential impact on patient privacy. He’s...
by Jon Lebkowsky | Oct 14, 2010
We welcome members to join us for the First Annual Society for Participatory Medicine Cocktail Reception taking place on Oct 19th at the Liberty Hotel (http://www.libertyhotel.com) from 6-8pm. We invite you to share your ideas and enjoy a wine bottle service, hors...
by Jon Lebkowsky | Oct 12, 2010
This is e-Patients.net’s first opportunity to host Grand Rounds, which is a collection of some of the medical blogosphere’s best writing over the last week. We asked bloggers to look at our sister website, the peer-reviewed Journal of Participatory...
by Jon Lebkowsky | Oct 6, 2010
e-Patients.net is hosting Grand Rounds next Tuesday, October 12. We’re asking this week’s Grand Rounds bloggers to create posts inspired by, supportive of, or critical of articles in the Journal of Participatory Medicine. We have a great reason for...
by Jon Lebkowsky | Aug 19, 2010
Howard Rheingold has shared video of a backyard discussion he had with technology pioneers Doug Engelbart and Ted Nelson when they dropped by for dinner, along with Howard’s wife Judy and Nelson’s wife Marlene Mallicoat. Brief but intense discussion of the...
by Jon Lebkowsky | Feb 1, 2010
When Benn Rosales had a heart attack in December, his wife Lani, a very active member of the Twitterati, tweeted throughout the experience. Afterward she thought to compile those tweets as a record of Benn’s e-patient experience: “this hospital is...
by Jon Lebkowsky | Oct 21, 2009
Press release for the October 22nd launch of the Journal of Participatory Medicine: Improving health care: Journal of Participatory Medicine will document methods that work for patient/provider collaboration Launch at Connected Health Symposium features essays by...
by Jon Lebkowsky | Sep 28, 2009
A signal moment has happened: When a major business authority with no history in healthcare speaks up about a shift in the wind, it’s worth noting. And this time it’s a great sign for participatory medicine, because the news is that hospitals are engaging...
by Jon Lebkowsky | Jun 14, 2009
Physician Pauline Chen writes about “Medicine in the Age of Twitter” for the New York Times. The article suggests the need for our upcoming peer-reviewed Journal of Participatory Medicine:…a quick scan through peer-reviewed journals reveals only a...
by Jon Lebkowsky | May 6, 2009
At boingboing, Doug Rushkoff posted a video from C-Span of the Senate Hearings on Healthcare Reform, including a half dozen “peaceful and very articulate” protesters “demanding a seat at the table (where 15 witnesses wait to testify, not one...
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