by Sarah Krüg | May 23, 2018 |
We are in the midst of a loneliness epidemic that affects millions, whether you’re married, single or somewhere in between, young or old, an urban dweller or live in a remote village. Loneliness lurks in our shadows, yet unlike smoking or obesity isn’t socially... 
by e-Patient Dave | May 14, 2018 |
As regular readers know, this blog has long been friends with The BMJ (formerly the British Medical Journal), especially because of its world-leading Patient Partnership campaign including the Patient Advisory Panel, which includes several SPM members and has an... 
by e-Patient Dave | May 14, 2018 |
Posted today on our SPM Connect member forum by SPM vice-chair Joe Ternullo Join me in cheering on SPM members Lorraine and Gene Sacco, founders of the Reid R. Sacco Adolescent & Young Adult Cancer Alliance. (@AYACancerAllian) The Chronicle Episode “Beyond... 
by e-Patient Dave | Apr 18, 2018 |
Our Society for Participatory Medicine’s presence and impact in the world is escalating this year, thanks to many factors. A big one is the addition of activist board members like Burt Rosen of member company HealthSparq, and another is that our time has come. A... 
by e-Patient Dave | Mar 20, 2018 |
An important post from long-time SPM member (and former board member) Jane Sarasohn-Kahn (@HealthyThinker), cross-posted from her widely read Health Populi site. (The screen capture above is from this BBC article, which came out hours after Jane’s post below.)... 
by e-Patient Dave | Jan 25, 2018 |
The health IT sphere is abuzz with Apple’s groundbreaking announcement yesterday of the new ability, in the beta version of iOS 11.3, to download lab results, allergies, “problem lists,” etc. from multiple hospitals. So far twelve hospitals have... 
by Sarah Krüg | Jan 4, 2018 |
Language has a magical influence on the lives we lead, with an impact on our thoughts, emotions, and/or actions. The words we use are one of the most potent ingredients in the science of language. Words have the power to heal, guide and motivate. They can confuse,... 
by e-Patient Dave | Dec 29, 2017 |
In our Society’s work to evangelize the partnership model of medicine, one of the recurring hurdles has been the difficulty of compensating patients for what can be truly professional-level contributions. Last Sunday our longtime member Danny van Leeuwen (aka... 
by Sue Woods | Dec 6, 2017 |
The following is a shared Press Release from the Society of Participatory Medicine and the Journal of Medical Internet Research: JMIR Publications is the new publisher of the Journal of Participatory Medicine (JoPM) (Toronto/Boston, Dec 6th, 2017) The Society for... 
by e-Patient Dave | Oct 24, 2017 |
It’s that time again! Our friends at the Patients View Institute GoPVI.org are again running their “impact awards.” I got to be present during the award’s sessions in DC last year, and it’s just terrific what they’re doing –...
Request: Harnessing the patient voice from the ward to the boardroomJune 19, 2018
SPM on TV in Hartford after last week’s “Better Health” conferenceJune 13, 2018
Give Me My DaM Data::The RevolutionJune 10, 2018
Skeptics ask why patients would even WANT their medical images. We asked on Facebook.June 5, 2018
Cinderblocks 2018May 27, 2018
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