by e-Patient Dave | Jul 15, 2018 |
TONIGHT: 9 pm Eastern time. #BCSM Twitter chat on the latest Facebook privacy issue. This time the data leaked is from a patient group. FB says it’s a nothingburger. What do you think? Facebook has a record of privacy leaks. The poster shown here (click to... 
by e-Patient Dave | Jun 27, 2018 |
This is the first of two posts about this important policy issue regarding portability of our medical records. The second is by Michael Millenson, who did the lion’s share of this work, as noted below. Our Society’s Advocacy and Policy chair Vera Rulon... 
by Sarah Krüg | May 23, 2018 |
We are in the midst of a loneliness epidemic that affects millions, whether you’re married, single or somewhere in between, young or old, an urban dweller or live in a remote village. Loneliness lurks in our shadows, yet unlike smoking or obesity isn’t socially... 
by e-Patient Dave | May 14, 2018 |
As regular readers know, this blog has long been friends with The BMJ (formerly the British Medical Journal), especially because of its world-leading Patient Partnership campaign including the Patient Advisory Panel, which includes several SPM members and has an... 
by e-Patient Dave | May 14, 2018 |
Posted today on our SPM Connect member forum by SPM vice-chair Joe Ternullo Join me in cheering on SPM members Lorraine and Gene Sacco, founders of the Reid R. Sacco Adolescent & Young Adult Cancer Alliance. (@AYACancerAllian) The Chronicle Episode “Beyond... 
by e-Patient Dave | Apr 18, 2018 |
Our Society for Participatory Medicine’s presence and impact in the world is escalating this year, thanks to many factors. A big one is the addition of activist board members like Burt Rosen of member company HealthSparq, and another is that our time has come. A... 
by e-Patient Dave | Mar 20, 2018 |
An important post from long-time SPM member (and former board member) Jane Sarasohn-Kahn (@HealthyThinker), cross-posted from her widely read Health Populi site. (The screen capture above is from this BBC article, which came out hours after Jane’s post below.)... 
by e-Patient Dave | Jan 25, 2018 |
The health IT sphere is abuzz with Apple’s groundbreaking announcement yesterday of the new ability, in the beta version of iOS 11.3, to download lab results, allergies, “problem lists,” etc. from multiple hospitals. So far twelve hospitals have... 
by Sarah Krüg | Jan 4, 2018 |
Language has a magical influence on the lives we lead, with an impact on our thoughts, emotions, and/or actions. The words we use are one of the most potent ingredients in the science of language. Words have the power to heal, guide and motivate. They can confuse,... 
by e-Patient Dave | Dec 29, 2017 |
In our Society’s work to evangelize the partnership model of medicine, one of the recurring hurdles has been the difficulty of compensating patients for what can be truly professional-level contributions. Last Sunday our longtime member Danny van Leeuwen (aka...
What Healthcare Can Learn from Mr. RogersAugust 7, 2018
Biomedical Knowledge Must Be Mobilized to Save Lives, Not Privatized in the “Last Mile”August 5, 2018
Announcing SPM’s new Doc Tom Awards. Nominations are open!August 3, 2018
Study: Engaging patients in co-design works. Join us at our conference!July 26, 2018
Patient Ownership of Data?July 22, 2018
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