by Brian Mack | Jul 10, 2020 |
To paraphrase Abraham Lincoln, “A compass will point you to true north, but it doesn’t show you the swamps. If you get bogged down, what’s the use of knowing the direction?” When on a journey, it’s a good policy to periodically take...
by John Grohol | Jun 10, 2020 |
Join a live virtual Healing Story Session on June 22! “Pain, suffering, and ambivalence can co-exist with peace, joy, and self-love. Healing can take many forms. Sharing our stories helps others to find their way, and reminds us all that we are not alone.” —...
by John Grohol | May 19, 2020 |
The Society for Participatory Medicine (SPM) and the Health Story Collaborative (HSC) are partnering during this time to bring the power of storytelling to health care and explore what it means to practice participatory medicine in times of COVID-19. Please read the...
by geriynnbaumblatt | Mar 19, 2020 |
“Information therapy” has long been part of the participatory medicine mindset. (See our 2007 post that mentions Josh Seidman PhD’s Center for Information Therapy – he went on to be president of SPM.) In the COVID-19 era, now more than ever,...
by e-Patient Dave | Mar 17, 2020 |
“The cure for anxiety is knowledge and preparation.” That line is from the hip and edgy (and smart) Stanford doc @ZDoggMD in the amazing live conversation on YouTube he had with his 12 year old daughter last Friday. Here are some resources. Society for...
by e-Patient Dave | Mar 9, 2020 |
Six weeks ago we hosted the Patient/caregiver letter supporting proposed HHS rules on improving flow of our data. It’s a crowdsourced collection of stories of how patients suffered, were harmed, incurred costs or delays because their own health data wasn’t...
by John Grohol | Jan 28, 2020 |
Epic is a widely used Electronic Health Record (EHR) system by thousands of hospitals across the United States. There’s a very good chance that your physician uses Epic software in their everyday practice. Among many other tasks, Epic’s software helps...
by John Grohol | Dec 15, 2019 |
In a piece entitled, “Why Doctors Need to be on Twitter,” Jack Turban, MD and Jessica Gold, MD seem to have transported back in time to a world where e-patients don’t exist. The piece argues that because Twitter is such a cesspool of misinformation...
by e-Patient Dave | Oct 14, 2019 |
Hello, SPM members! – And honored guests, perhaps soon to be members. Join here. :-) Over the past few weeks, I have received quite a few inquiries about livestreaming opportunities for our conference in Boston, Tuesday, October 15. If you can’t attend...
by Michael Millenson | Oct 4, 2019 |
(This post originally appeared Oct. 2, 2019 on EngagingPatients.org) The dating site Match.com wants to help singles “find the kind of relationship they’re looking for” by providing “the tools they need to help take the lottery out of love.” The Centers for Medicare...
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Person-First Safe Living in a Pandemic #1November 16, 2020
Everyone-Included ResearchNovember 9, 2020
Checking the Compass of Participatory MedicineJuly 10, 2020
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