by e-Patient Dave | Mar 28, 2023
The board of our Society for Participatory Medicine has voted unanimously to give the society’s “Doc Tom” award to life member Casey Quinlan, who is in hospice in Richmond VA, as we blogged this month. On Saturday former board member Jan Oldenburg...
by Eric Bersh | Mar 14, 2023
Recently, there has been a large emphasis by organizations that are interested in addressing bias, health equity, and increasing diversity. The verdict is still out if these are real structural changes, or just surface statements that have no real impact. It is...
by Eric Bersh | Feb 14, 2023
Throughout my time as a psychotherapist specializing in end of life diseases, primarily cancer, I have spent many hours talking with both patients and medical teams about the importance of authentic communication and end of life planning. I see this kind of planning...
by Eric Bersh | Feb 1, 2023
Flash back to my article for the Society for Participatory Medicine last year: Let’s Save the Date and Make Patient Engagement Official in 2022. I’m here to deliver some great news: we tied the knot! By the power vested in clinical research, the FDA now pronounces us...
by Eric Bersh | Jan 11, 2023
I recently saw The Color of Care, a documentary highlighting the disparate and inequitable care received by Black and Brown individuals during the COVID-19 pandemic. During the movie, Executive Producer Oprah Winfrey opined that one of the primary issues with...
by Eric Bersh | Jan 4, 2023
A few years ago I learned that non-profit organizations MUST have a Scientific or Medical Advisory Board in order to be listed on NIH’s website as an informational resource for patients. Likewise, many foundation grants require a non-profit to have a similar...
by Eric Bersh | Dec 14, 2022
“When someone is having an acute situation, that is not a teaching moment.” Peter Pitts I recently participated on a panel at the STAT Summit with two brilliant healthcare thought leaders, former FDA Associate Commissioner and current president of the Center for...
by John Novack | Dec 6, 2022
Editor’s note: In his new book, Open Heart, Warrior Spirit: A Man’s Guide to Living With Cancer, patient activist Trevor Maxwell explains why men go into their “man caves” when facing a cancer diagnosis; provides tips for avoiding that dangerous isolation;...
by Eric Bersh | Nov 15, 2022
Editor’s note: In his new book, The Long Haul – Solving the Puzzle of the Pandemic’s Long Haulers and How They Are Changing Healthcare Forever, journalist and patient Ryan Prior depicts the courage of patients with Long COVID who were the first to name,...
by John Novack | Oct 6, 2022
Editor’s note: In this excerpt from her latest book, Ducks in a Row, Canadian-based author, Sue Robins explains the power of storytelling for everybody invested in health care—patients and clinicians alike. A well-told story, Robins explains, has the ability to...
by Eric Bersh | Sep 19, 2022
Active surveillance (AS) for low-risk to intermediate-risk prostate cancer has been “an overnight success” that took 30 years to move from academia to mainstream practices. Since 2014, AS — close monitoring of low-risk prostate cancer with PSA blood testing,...
by John Novack | Sep 12, 2022
Embracing shared decision making in medicine will improve patient outcomes, reduce costs, increase health equity, and even help alleviate clinician burnout, Danny Sands, MD, co-founder of the Society for Participatory Medicine, said in a recent podcast interview. Erin...
by Eric Bersh | Sep 7, 2022
The journey to diagnosis for patients, particularly those living with complex health conditions remains challenging for patients, their loved ones, and their physicians. As frontline experts on the diseases and conditions affecting their lives, patients and family...
by Eric Bersh | Aug 23, 2022
Being born with cystic fibrosis, a progressive, genetic lung disease, I have had countless health encounters throughout my life. Through these experiences I have learned the power that lies in self advocating for my health in the clinic setting with my doctors and...
by Eric Bersh | Aug 17, 2022
Collaborations across healthcare can save lives – especially when working with patient advocates. For a person like me, who is impacted by a rare, neurological, and incurable disease, it’s my mission to ensure that patients’ perspectives are represented early...
by Eric Bersh | Jul 12, 2022
When I heard the words, “You have Lupus,” I didn’t know the magnitude of how much my life was going to be tested. It started in 1980 when rashes and unexplained fevers plagued my life. Seeing doctors about my symptoms led to solutions that were only temporary. Fifteen...
by Eric Bersh | May 5, 2022
We cannot always choose what happens to us in life, but we can choose how we respond and handle it. Take for example, the time that I had a physical examination with my relatively new primary care physician. They did blood work and I received a report, along with a...
by Eric Bersh | Apr 27, 2022
Curled up on her hospital gurney but unable to sleep, the middle-aged Latinx female trauma patient sighed, “I am tired of being tired.” Before daybreak, “Rosa” (not her real name) had arrived at work to open her New York restaurant but was interrupted by an intruder...
by Eric Bersh | Apr 20, 2022
Editor’s note: When oncology and hospice nurse Theresa Brown was diagnosed with breast cancer, she couldn’t believe how disorganized and unempathic her care was. Ultimately she called it D.I.Y. care, as in Do-It-Yourself: figure out the treatment process, find the...
by Eric Bersh | Apr 13, 2022
For women of color facing breast cancer diagnoses, making decisions is a precarious balancing act, a process with significant implications across healthcare and society. Diagnosis tends to occur at a younger age (that is, before 40, when many screening programs become...
In Memory of Nancy Finn: e-Patient, Advocate, Author, SPM SupporterJuly 16, 2025
A cure for what killed Doc Tom! Can people afford it?June 27, 2025
Learning Health Systems Empower Every American to Actually Make America Healthy Again Together, Part 2May 29, 2025
More important than Time and MoneyFebruary 5, 2025
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