by Amy Camie | Sep 21, 2021 |
Years before the first of my two breast cancer diagnoses, I shared live harp music in chemotherapy infusion units, spoke to support groups about the healing power of music, and developed a clinical trial exploring the effects of specific music on patients undergoing...
by Carly Flumer | Sep 13, 2021 |
I didn’t want to tell anyone about my diagnosis. I thought my family and a few close friends were enough. But I got brave one day four years ago and posted about it on social media. The outpouring of support was incredible. I thought, if I’m receiving this much...
by Jay Spitulnik | Sep 7, 2021 |
Throughout the history of the Society for Participatory Medicine (SPM), the discussions have focused on two groups of participants. The first is the patient and caregivers. SPM’s work, as illustrated in the Manifesto, has been dedicated to ensuring that members of...
by Eric Bersh | Aug 30, 2021 |
Conversations between SPM co-founder and Chief Advocacy Officer, Danny Sands MD and Annie Brewster MD, founder of Health Story Collaborative. Here they discuss meeting patients where they are. Did you enjoy this video?...
by Tim Blevins | Aug 23, 2021 |
Having been in healthcare for over 30 years as a clinician and working for four health plans, I am fortunate enough to have had exposure to a very broad network of healthcare professionals and have a deep understanding of healthcare systems and structures. I have...
by Randy Houk | Aug 16, 2021 |
I am so honored and excited to introduce myself to you, SPM Blog readers, SPM members and friends, and to share with you a preview of coming attractions. By that I mean that since I’ve been the new Executive Director for SPM for a day and a half, my vision for what...
by Jessica Zitter, MD MPH | Aug 10, 2021 |
I received an uncharacteristically anxious text from my friend Aileen: “I am having an emergency with my Mom. Please call ASAP.” When I last talked to Aileen, her mother’s dementia had been worsening slowly. A little more confusion, a stovetop left burning after...
by Eric Bersh | Aug 2, 2021 |
Conversations between SPM co-founder and Chief Advocacy Officer, Danny Sands MD and Annie Brewster MD, founder of Health Story Collaborative. Here they discuss the meaning and intent of Participatory Medicine. Did you enjoy this video? Sign the Manifesto and learn...
by Richard G Kahn | Jul 29, 2021 |
Usually, I write from the perspective of a patient advocate diagnosed with Wolfram-like syndrome, a rare disorder of the endoplasmic reticulum that typically manifests first with optic atrophy, then insulin-dependent diabetes. For the purposes of this blog post,...
by Eric Bersh | Jul 22, 2021 |
Conversations between SPM co-founder and Chief Advocacy Officer, Danny Sands MD and Annie Brewster MD, founder of the Health Story Collaborative. Here they discuss what it means being a doctor and having to say “I don’t know” to a patient. Did you enjoy this video?...
How Empathy, Education, Communication and the PAST Model transformed Sickle Cell Patient CareDecember 7, 2021
Understanding the Impact of Medication Storage Locations on AdherenceNovember 22, 2021
Video Series: Doctor to Doctor – The Future of Tele-HealthNovember 15, 2021
The Power of StorytellingNovember 8, 2021
Reflecting on the Importance of Ethics in Clinical Care and ResearchNovember 1, 2021
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