by Casey Quinlan | Oct 13, 2018 |
If you’ve been paying attention, you know that yours truly got the chance to attend the annual Cochrane Colloquium in Edinburgh in September this year, thanks to a travel stipend from SPM, a #PatientsIncluded bursary from Cochrane UK, the hosts of the 2018... 
by e-Patient Dave | Oct 3, 2018 |
Here’s the latest in a series of posts about the Society for Participatory Medicine’s second annual conference on Oct. 17 in Boston, attached to the prestigious Connected Health conference. Register here. (Our #SPM2018 series has more about the speakers and... 
by John Novack | Sep 24, 2018 |
Here’s the latest in a series of interviews with outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct. 17 in Boston. Register here. And see this blog’s #SPM2018 series for more about, or by, the speakers and... 
by e-Patient Dave | Sep 17, 2018 |
For updates, follow Casey’s tweets on the #CochraneForAll hashtag – tweets by her and tweets tagging her. Casey will be a speaker at #SPM2018 on Oct 17, in a session with Ivan Handler of the Insightamation blog – “Thoughts and provocations on... 
by John Novack | Sep 7, 2018 |
The Society for Participatory Medicine advocates for transforming the culture of care, so we watch for signs that the culture is changing. A newly released peer-reviewed article hints at progress: formally introducing patient perspectives into not just the practice of... 
by e-Patient Dave | Jul 15, 2018 |
TONIGHT: 9 pm Eastern time. #BCSM Twitter chat on the latest Facebook privacy issue. This time the data leaked is from a patient group. FB says it’s a nothingburger. What do you think? Facebook has a record of privacy leaks. The poster shown here (click to... 
by e-Patient Dave | Jun 27, 2018 |
This is the first of two posts about this important policy issue regarding portability of our medical records. The second is by Michael Millenson, who did the lion’s share of this work, as noted below. Our Society’s Advocacy and Policy chair Vera Rulon... 
by Sarah Krüg | May 23, 2018 |
We are in the midst of a loneliness epidemic that affects millions, whether you’re married, single or somewhere in between, young or old, an urban dweller or live in a remote village. Loneliness lurks in our shadows, yet unlike smoking or obesity isn’t socially... 
by e-Patient Dave | May 14, 2018 |
As regular readers know, this blog has long been friends with The BMJ (formerly the British Medical Journal), especially because of its world-leading Patient Partnership campaign including the Patient Advisory Panel, which includes several SPM members and has an... 
by e-Patient Dave | May 14, 2018 |
Posted today on our SPM Connect member forum by SPM vice-chair Joe Ternullo Join me in cheering on SPM members Lorraine and Gene Sacco, founders of the Reid R. Sacco Adolescent & Young Adult Cancer Alliance. (@AYACancerAllian) The Chronicle Episode “Beyond...
A Family’s Guide to the ICU: Series IntroductionJuly 15, 2019
#HCLDR chat on the 100th anniversary of women’s suffrage: 8:30 ET TuesdayJune 1, 2019
Fast-Paced Compelling Topics at Atlantic Pulse: The Atlantic Summit on Health Care, BostonMay 2, 2019
Manage your health data, or trust blindly? Setting the stage for a data disaster, part 2April 11, 2019
It’s the 10th anniversary of trying to get our health data: “I’m putting my data in Google and HealthVault”April 10, 2019
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