by Eric Bersh | Aug 8, 2023
Editor’s note: In her new book, Communicating Through a Pandemic: A Chronicle of Experiences, Lessons Learned, and a Vision for the Future, Amelia Burke-Garcia, PhD, MA explores the many and varied roles that communication has played over the course of this pandemic,...
by Danny van Leeuwen | Mar 1, 2021
Trust in COVID19 times depends on context: circumstances, historical identity, tolerance for risk, comfort with uncertainty, attitude about individual rights and social responsibility, critical thinking & more. Introducing a trust label. Podcast episode here...
by Danny van Leeuwen | Dec 21, 2020
How do regular people find evidence-informed guidance to help make decisions about safe living in a pandemic? Questions answered when needed in a useful manner? Part 2 in this Person-First approach. Join our journey. Proem A few weeks ago, on this podcast, I...
by Danny van Leeuwen | Nov 27, 2020
Stories are powerful because they foster human connections, transparency, and innovation, ultimately leading to better experiences for those giving and receiving care. Healthcare workers’ perspectives are critical to creating a shared vision of health care that...
by Danny van Leeuwen | Nov 16, 2020
How can laypeople find up-to-date, trustworthy answers to questions they have about living safely in an emergency, when they have them, in a useful manner? Part 1: a person-first approach for researchers & content creators to help people and their communities find...
by Danny van Leeuwen | Nov 9, 2020
Person-included research, co-production, tragedy, grief, health equity, and relationships in life and research. Chat with Amy Price of Stanford and BMJ Proem Research follows life. Life comes before research. My diagnosis of Multiple Sclerosis preceded my need for...
by e-Patient Dave | Jun 6, 2020
Guest post by SPM member Pam Ressler RN, MS of Stress Resources LLC. See bio at end. I have just finished co-teaching a month-long elective on the topic of pain to a group of rising 4th year medical students. In collaboratively planning the curriculum with my...
by John Novack | May 29, 2020
Guest post by empowered patient Howard Chang. See bio at end. I’m a highly engaged patient advocate who has faced many challenges. To my unhappy surprise, the coronavirus pandemic and lockdown has revealed once again how much I still struggle with the need to be in...
by John M. Grohol, Psy.D. | May 19, 2020
The Society for Participatory Medicine (SPM) and the Health Story Collaborative (HSC) are partnering during this time to bring the power of storytelling to health care and explore what it means to practice participatory medicine in times of COVID-19. Please read the...
by e-Patient Dave | May 12, 2020
This morning the New England Journal of Medicine released the latest publication about OpenNotes. The news: an innovative pre-visit form created for the “OurNotes” study has been released before the study is completed, for other providers to use to improve...
by e-Patient Dave | May 7, 2020
Editor’s note: This post is from Amber Soucy MSN, RN, a board member of our Society for Participatory Medicine. Like many front-line health workers she hides the stress (see her profile photo at right), but this era is tough in ways nobody ever signed up for,...
by Geri Lynn Baumblatt | Mar 19, 2020
“Information therapy” has long been part of the participatory medicine mindset. (See our 2007 post that mentions Josh Seidman PhD’s Center for Information Therapy – he went on to be president of SPM.) In the COVID-19 era, now more than ever,...
by e-Patient Dave | Mar 17, 2020
“The cure for anxiety is knowledge and preparation.” That line is from the hip and edgy (and smart) Stanford doc @ZDoggMD in the amazing live conversation on YouTube he had with his 12 year old daughter last Friday. Here are some resources. Society for...
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More important than Time and MoneyFebruary 5, 2025
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