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Patients Like Me beats Lancet Neurology by a mile

by | May 18, 2010

Patient networks for the win! MIT Technology Review: “Earlier this month, the journal Lancet Neurology published a study showing that the generic drug lithium did nothing to slow the course of ALS … Eighteen months earlier, PatientsLikeMe, a for-profit...

The Decision Tree: How Better Health Can Scale

by | May 1, 2010

“The internet was created to connect people and groups. The first step is to share stories. The next step is to share quantitative observations.” “Health care has been locked up in regulatory amber. HIPAA was passed in 1996, almost perfectly timed to...

Health Data is Useful… if it Informs Conversations

by | Apr 12, 2010

Dr. Roni Zeiger, MD is currently Chief Health Strategist at Google where he has helped create and lead Google Health.  He continues to see patients on occasional evenings and weekends at a local urgent care center.  Roni earned his MD at Stanford and completed his...

A Patient-Centric Definition of Participatory Medicine

by | Apr 2, 2010

Participatory Medicine is a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and in which providers encourage and value them as full partners. This new definition devised by the board of the Society of...

Chronic Disease in Data and Narrative

by | Mar 24, 2010

For the past 5 months I have been immersed in data and narrative about chronic disease. The result, “Chronic Disease and the Internet,” is a report sponsored by the Pew Internet Project and the California HealthCare Foundation. We find that living with a...

Privacy can kill, openness can heal

by | Feb 11, 2010

If you follow Jeff Jarvis on Twitter or read his blog, you know (maybe more than you wanted to) about his fight against prostate cancer. I’ve mostly paid attention to what he’s written about technology and journalism, but check out this excerpt from his...

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