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Physician, Teacher, Farmer

Alan Greene emailed this dispatch from Italy: While attending the 16th IFOAM Organic World Congress, Cheryl and I met a delightful man from the Netherlands named Martien Lankester, executive director of Avalon. He is a physician, teacher, and organic farmer. He...

An e-Patient discusses how technology helped him

In February 2007 the Washington DC PBS station, WETA, produced a pilot program for a series called “Healthcare 360,” produced by George Mason University and the Agency for Healthcare Research and Quality. The pilot is about “Health IT and how it...

Randy Pausch, empowered patient / participatory medicine

Chapter 12 of Randy Pausch’s best-selling book The Last Lecture opens with a classic anecdote of what it looks like when an empowered patient practices participatory medicine with an equally participatory care team: CT scans revealed I had pancreatic cancer, and it...

e-Patients Lead The Way at Health 2.0 Conference

The Health 2.0 Conference in San Diego, CA (March 4, 2008) was a buzz with ideas of innovation and connectivity. Matthew Holt and Indu Subalya, MD managed to cram more presentations into one day than most conferences do in two days. The almost-overwhelming day was...

Go online. Not too much. Mostly…?

Michael Pollan’s answer to diet angst is to “Eat food. Not too much. Mostly plants.” Is there an equivalent maxim for information angst? If not, does someone out there want to make one up? Because a new study published in Cancer argues that e-patients can take a...

Consumer Resources

As we continue our discussion of the definitions of 2.0 and user-generated content (UGC), I thought I’d highlight some other buzzwords and link to a few consumer-oriented resources. I still trust librarians to help me judge information sources, so my first set...

It’s Not Just about Healthcare…

All this talk about Health 2.0/ Web 2.0 and the wisdom of crowds has got me noticing things I probably would not have noticed before. For that reason I am directing readers to the following article by Craig Morris at truthout...

The WELL

Join the e-Patient Scholars for a conversation on The WELL. Here’s a great quote: “When the Internet industry is booming and investors are interested, we start focusing too much on the technology, because there are so many new technologies hoping to attract users and...

Two Views on e-Patients, and the Doctors who See Them

In November 2007, Scott Haig, MD, an orthopedic surgeon and medical columnist for TIME, wrote an article for the magazine called “When the Patient is a Googler”. He described a patient of his he called Susan, whom he felt was emblematic of patients who research...

Rate a Doctor?

For years Doc Tom urged us to facilitate patients’ publicly rating doctors as a way to accelerate e-pateints movement. Alan (DrGreene) was excited about this, even though he was a physician, but I was afraid it would open Pandora’s box. In the winter of...

Patient Centered Health Information Technology

Does anyone else remember those Reese’s Peanut Butter Cup commercials from the 1980s? “Your peanut butter is in my chocolate!” “Your chocolate is in my peanut butter!” I knew I was getting older when I referred to a partnership as a...

The Democratization of Academic Medicine

A post many weeks ago by Andrew Leonard in his blog “How the World Works” mused about the significance of the declining number of publications from “top” academic economists. It was July 26, so the original post is in the archives here. (a day...

Where Online Health Will Be

Tom Ferguson’s White Paper, “e-patients: how they can help us heal health care,” was many years in development. Early in the process Tom convened a gathering at Commonweal in Bolinas, CA. He invited many of the people who came together to form the “e-Patients Scholars...

E-Patients And The Participatory Internet- Part I

I’ve recently been attending some very excellent conferences that I will describe in more detail over several future posts. What follows here will, I hope, set the stage. As most people reading this blog are well aware, the World Wide Web and the Internet itself are...

e-Patients Don’t Fit Stereotypes!

If doctors think about e-patients at all, they may imagine that they are Web-savvy young or middle-aged people. Assertive baby boomers waving pages of print-outs from the Internet send shivers down some doctors’ spines. That stereotype is rapidly becoming obsolete....

At least one Medical School starts to “get it”

If you’re like me and wonder why- oh- why our medical education system is not embracing the information age more quickly, then an editorial recently written by Dr. Joe Martin at the Boston Globe is for you. Dr. Martin is the retiring Dean of Harvard Medical...

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