by e-Patient Dave | Mar 25, 2009
… or involved in an incident, as patient or provider, Paul Levy solicits your submission. He’s hosting the medical blogosphere’s Grand Rounds next Tuesday, and has chosen the topic When Things Go Awry. Details and instructions are here....
by e-Patient Dave | Mar 12, 2009
We’ve been known to have our minds blown, but this one started as an eye-popper and got better. A friend writes: “Even the DoD is getting in the act: Patients urged to take charge of their care.” But holy cow, there was a LOT more behind that...
by e-Patient Dave | Feb 21, 2009
At the 25th annual TEPR+ conference in Palm Springs on Feb. 2, Alan Greene (DrGreene.com) gave the opening address. It was inspiring – I wish we had a video of it. Too bad so many attendees opted to skip the keynotes and fly into town late! Like, did you guys think...
by e-Patient Dave | Feb 14, 2009
Cross-posted from my own blog, and then some E-patients, listen up. We have work to do, work we can do. For the past year I’ve been learning what I can about the American healthcare system. I started this not as an “injured” patient but as someone...
by e-Patient Dave | Jan 27, 2009
This reinforces my repeated assertion that healthcare is far, far behind ordinary enterprise in adoption of practices that work: “When computers replace paper, patient mortality rates drop 15% during hospitalization, among other metrics, according to a study of...
by e-Patient Dave | Jan 18, 2009
This topic isn’t directly in our wheelhouse here in the e-patient movement (“empowered, engaged, equipped and enabled”), but as I continue one patient’s odyssey in learning about healthcare, a discussion on Paul Levy’s blog has taught me...
by e-Patient Dave | Jan 9, 2009
I don’t get surprised these days as easily as I used to before I got “e.” But something popped my eyes open last weekend, and I dug into it. It goes to the heart of where the power is, in the doctor-patient relationship. But not just the power – the...
by Susannah Fox | Jan 8, 2009
Here is my third post in a series of look-backs at the November 2008 Chronic Disease Care conference in San Francisco. (OK, yes, it’s now January 2009 — I’m savoring the experience, not Twittering it!) The first post was about spreading improvement...
by e-Patient Dave | Dec 31, 2008
I don’t know who Stanley Feld is, but he just became my friend, with a terrific post on doctor as coach, patient as player. It starts: The role of patients with chronic diseases and their physicians must be clear to both patients and physicians. Physicians are...
by Susannah Fox | Dec 29, 2008
This is the second in a series of posts about the California HealthCare Foundation’s Chronic Disease Care conference (the first was Happy Dogs in a Pile of Sticks). Patient Voices: Managing Chronic Conditions, Living our Lives Ted Eytan snapped a photo that captured...
by John M. Grohol, Psy.D. | Dec 16, 2008
Our savvy e-patients over at NeuroTalk noticed the launch of a new service by the Michael J. Fox Foundation, one of the leading Parkinson’s disease advocacy and research organizations. The new service, called PD Online Research, is billed as a “new web...
by John M. Grohol, Psy.D. | Dec 9, 2008
What if there was a simple, old-school style procedure that could save tens of thousands of lives every year? Better yet, what if it could be implemented at minuscule costs (about $3 million to rollout nationwide), and would require very little change in...
by John M. Grohol, Psy.D. | Nov 13, 2008
Public health is different than our personal health. Most people take for granted the role public health agencies play in our lives, but its primary emphasis is tracking disease data across the country in order to prevent a nationwide epidemic or pandemic. Nobody...
by Gilles Frydman | Nov 12, 2008
Information Silo: An information silo is a management system incapable of reciprocal operation with other, related management systems… “Information silo” is a pejorative expression that is useful for describing the absence of operational reciprocity....
by Susannah Fox | Nov 11, 2008
The California HealthCare Foundation’s Chronic Disease Care conference was so packed with great panels that I needed help choosing my targets. Here is the first in a series of posts about this event. Spreading Improvement: After the Innovators/Early Adopters...
by e-Patient Dave | Oct 27, 2008
This post is prompted by a horrid subject: how do we as a society deal with one of the worst possible events – a death in our healthcare system? The immediate topic is a 37 year old woman who died last week at Beth Israel Deaconess Medical Center (BIDMC). An article...
by e-Patient Dave | Oct 16, 2008
As an empowered patient I’m willing to go to the ends of the earth to help the medical community get beyond the famed “culture of blame,” so everyone involved can learn from errors. Boston’s Beth Israel Deaconess Medical Center had a wrong site...
by Cheryl Greene | Jul 25, 2008
Most of us know Randy Pausch from his video lecture “Achieving Your Childhood Dreams”, taped at Carnegie Mellon as part of their “Last Lecture” series. His hope and optimism in light of a crushing diagnosis brought millions up short as they...
by e-Patient Dave | Jul 15, 2008
Click images to view full size originals. Last weekend I stumbled across the “attic” of Tom Ferguson MD, who was the “George Washington of patient empowerment,” as CNN put it this month, citing his work since 1975 to create a world of freedom...
by Susannah Fox | Jul 4, 2008
[Don’t miss yesterday’s related post about the founding heroes of patient empowerment.] Something important is afoot in the land when people are able to access and share “industrial strength” information instead of being satisfied with the “consumer...
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