by e-Patient Dave | Aug 8, 2010
Next in our series on my experience with OpenNotes, a project sponsored by the Robert Wood Johnson Foundation’s Pioneer Portfolio. This item has nothing to do with OpenNotes itself – it’s what I’m seeing now that I’ve started accessing my...
by e-Patient Dave | Aug 7, 2010
Last night I got word of an unexpected treat: an hour-long conversation between some real experts about participatory medicine. It’s on Andrew Schorr’s Patient Power site – he and his team are powerhouses as well, and they produced a special...
by e-Patient Dave | Aug 5, 2010
Regular readers know that our founder, “Doc Tom” Ferguson, was an absolute visionary who saw that patients have a much bigger role in their own health than most people realize – at least in our culture. The white paper at top right of this site is...
by e-Patient Dave | Aug 3, 2010
Next in our “Why I Joined” series is Victor Montori, MD of the Mayo Clinic. My wife and I met him in May; he’s high energy, with boundless optimism. And as you’ll see, he feels very strongly about patients being at the center of healthcare. The...
by e-Patient Dave | Aug 2, 2010
Two posts have brought into wrenching relief one of the more difficult topics I’ve encountered in healthcare: the challenge of understanding diagnosis, especially when difficult pathology is involved. It started with When a biopsy cannot completely rule out...
by e-Patient Dave | Jul 20, 2010
Gary Wolf of Wired has posted a whizbang write-up that came out of a whirlwind one-hour 12-way Skype chat about personal health data. Sound frenetic? It was. (I participated. It was, well, 12-way.) I can’t imagine how to model what happened, except to say that...
by e-Patient Dave | Jul 20, 2010
Participate in a public survey here at the OpenNotes project website: what do you think will happen when notes are made visible to patients? Five weeks ago we wrote about the start of the OpenNotes project, funded by Robert Wood Johnson Pioneer Portfolio. The...
by e-Patient Dave | Jul 7, 2010
Did you know that a major aspect of the Affordable Care Act (aka the health reform legislation) was significant funding to revamp primary care? I’m embarrassed to say I didn’t. There’s $10 billion (with a B) in funding for research in the first ten...
by e-Patient Dave | Jun 30, 2010
Earlier this month I wrote that the OpenNotes project had kicked off. It’s important – if you haven’t read about it, please click that link. My primary physician and I are participating, but candidly I didn’t expect to get much out of it: as I...
by e-Patient Dave | Jun 12, 2010
The opening anecdote of the e-patient white paper tells of a patient who impersonated a doctor in 1994, to get his hands on an article about an operation he was about to have. He got busted. Two years later episode 139 of Seinfeld had something similar – Kramer...
by e-Patient Dave | Jun 11, 2010
I’ve only been studying healthcare for two years – far less than most people on this blog – and I hesitate to be overly assertive. But I have, finally, reached the point where I feel confident in citing cases where people are simply being...
by e-Patient Dave | May 26, 2010
As many of you know, a hard part of being in the world of cancer fighters is that sometimes we lose one. I’m sad to report the passing on April 23 of Judy Feder, who shared her powerful e-patient story here just a year ago. Please re-read how, through her...
by e-Patient Dave | May 16, 2010
The front page of Friday’s Minneapolis Star Tribune has coverage of the keynote address I was privileged to deliver on May 5 at the 13th Annual Colloquium of ICSI (Institute for Clinical Systems Improvement) and IHI (Institute for Healthcare Improvement). The...
by e-Patient Dave | May 10, 2010
The new definition of participatory medicine at the Society’s website notes that patients “shift from being mere passengers to responsible drivers of their health, and … providers encourage and value them as full partners.” As with any...
by e-Patient Dave | Apr 25, 2010
Actor Dennis Quaid has produced an outstanding, informative, empowering and motivating CME* program, “Chasing Zero: Winning the War on Healthcare Harm.” It’s on the Discovery Channel. Part 1 is here. This is the best-produced material I’ve seen...
by e-Patient Dave | Apr 16, 2010
There’s an important call to action below. If you care about making healthcare more responsive to us, and less responsive to vendors, please read to the end. This is short. Thanks to all of you who submitted comments on this week’s post, offering feedback....
by e-Patient Dave | Apr 14, 2010
Next Tuesday Regina Holliday and I are among those testifying to the Health IT Policy Committee’s workgroup on Meaningful Use. Please help me decide what to submit for my testimony. My session is Panel 2: Incorporating Patient-Generated Data in Meaningful Use...
by e-Patient Dave | Mar 26, 2010
Last week we posted a request from Dr. Bertalan Meskó for video messages from e-patients to his “Medicine 2.0” course. Here’s my submission. (This is my first “vlog” (video blog) so the quality’s not great – like everything...
by e-Patient Dave | Mar 23, 2010
Updated 3/12/2014 with new links at bottom. One of my personal pleasures in the first year of the Society for Participatory Medicine has been discovering people in other parts of the “patient culture” who’ve been doing wonderful, empowering,...
by e-Patient Dave | Mar 19, 2010
If you haven’t found him yet, Bertalan Meskó is one of the best new-generation doctors making the most of social media. While he was still a med student his ScienceRoll blog won Blogger’s Choice in 2007, and last month it won Medgadget’s prestigious...
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