by e-Patient Dave | Feb 23, 2011
ABCNews.com has posted a great new piece by Roni Zeiger MD, “The Biggest Wasted Resource in Health Care? You.” Subtitle: How Your Internet Research Can Help Your Relationship With Your Doctor. It’s well reasoned and clearly written, and continues the...
by e-Patient Dave | Feb 18, 2011
The Institute for Healthcare Improvement (IHI) has generously released the session video of the keynote that SPM president Dr. Danny Sands and I delivered at the IHI’s annual Forum in December. At this event the IHI did two extraordinary patient-oriented things:...
by e-Patient Dave | Jan 20, 2011
Thanks to friends Kavita Patel and Brian Ahier for pointing out this sign of shifting winds, in yesterday’s Time online:Â Googling Symptoms Helps Patients and Doctors. It’s a watershed moment, because the last physician column I saw on this was the...
by e-Patient Dave | Jan 18, 2011
There are several stages in becoming an empowered, engaged, activated patient – a capable, responsible partner in getting good care for yourself, your family, whoever you’re caring for. One ingredient is to know what to expect, so you can tell when things...
by e-Patient Dave | Jan 12, 2011
From Medscape Medical Ethics: Consequences aside, from a strictly ethical perspective, if a patient doesn’t realize that his physician made a mistake, should the physician fess up?… Before you jump to conclusions (as I did!), look at the article’s...
by e-Patient Dave | Dec 12, 2010
All, if you have a story where you were affected by being involved (or not) in a medical decision, please see my request at “Help Me Represent You” below. Same if you have points you want me to bring to this seminar’s attention. I feel extremely fortunate...
by e-Patient Dave | Dec 1, 2010
Social media brings unexpected connections, which lets us combine thoughts and forces. This summer we connected with “Rheumatoid Arthritis Warrior” Kelly Young (see her great post here, Learning to use my mother-of-a-patient voice), which led to being...
by e-Patient Dave | Nov 29, 2010
Ted Eytan drew our attention to a real-time example of participatory thinking, in the case of his friend Matt, an engineer who’s recently been diagnosed with MS. His post This is what $8,000 worth of drugs looks like tells the story, including videos of two...
by e-Patient Dave | Nov 27, 2010
I’m preparing to participate next month in a seminar on shared decision making, and some homework led me to this government paper, published in July: Equity & Excellence: Liberating the NHS (PDF, 339k). I must not have been paying attention to my UK friends...
by Jon Lebkowsky | Nov 26, 2010
I spoke recently at a summit organized by Consumers Union’s Safe Patient Project, and learned in detail about the persistence and prevalence of hospital-acquired infections and other safety risks. Hospitals are not as safe as they should and could be, and...
by e-Patient Dave | Nov 13, 2010
John Moore of Chilmark Research has another great post, this time on the realities being discovered about PHR use among the urban poor – something most observers considered unlikely. It’s aptly titled Smashing Myths & Assumptions: PHR for Urban...
by e-Patient Dave | Oct 23, 2010
Guest post by Erin Macartney (Twitter) of Palo Alto Medical Foundation. We would welcome similar posts from providers (or anyone else) who’s illustrating what we advocate in the Society for Participatory Medicine: truly patient-centered care, in which...
by e-Patient Dave | Oct 22, 2010
I’m at the Connected Health conference, and more than once the question has come up: if patients have access to editing the medical record, will chaos break out? I keep thinking: Free and low-cost cloud collaboration systems can track who entered something and...
by e-Patient Dave | Oct 2, 2010
Elizabeth Cohen is surely the most visible spokesperson for patient empowerment, because she’s on CNN and CNN.com. She’s got an hour-long special on CNN this weekend. Highly recommended, especially for friends and family who don’t get what this is...
by Charlie Smith | Sep 22, 2010
The Journal of Participatory Medicine (JoPM), the online peer-reviewed, open access publication of the Society for Participatory Medicine, has released new content for its 2010 volume. The journal’s mission is to transform the culture of medicine from a delivery...
by e-Patient Dave | Sep 20, 2010
You can’t be well empowered if you hear advice wrong. That’s why, in a participatory relationship, an essential skill is accurate handoff of information. The Foundation for Informed Medical Decision Making, catchily pronounced “fimdim,” has...
by e-Patient Dave | Aug 28, 2010
Today I’m participating in a workshop, “Engaging Minority Communities in Safer Healthcare,” organized by MITSS (Medically Induced Trauma Support Services), a Boston non-profit I’ve written about before. The current speaker is Lisa...
by e-Patient Dave | Aug 19, 2010
Well, here’s a treat: Dr. Charles Smith, a founder of the Society for Participatory Medicine, recently gave a lecture at Duke titled “How to Become a More Effective e-Patient.” Here it is, in four YouTube segments. “Charlie,” as we all...
by e-Patient Dave | Aug 12, 2010
Next in our series of posts about our founder Doc Tom. Previous time capsules: 1980 and 1985. Come, ye economics buffs and algebra fans; get out your pencils and solve for x, n, and XX: Whatever else the year 19XX is remembered for, it will — without a doubt — go down...
by e-Patient Dave | Aug 10, 2010
Last Friday we dug up our founder Doc Tom’s Seven Laws of Self-Care, from 1985. At one time Tom served as medical editor of the Whole Earth Catalog, the Woodstock-era empowerment resource whose subtitle was “Access to Tools.” At left (click to...
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