by Ileana Balcu | Nov 23, 2016
Coming from Romania 15 years ago, Thanksgiving was not a big thing for me. I didn’t quite grasp the holiday. My husband cooked and celebrated, and I helped and observed it in a detached way. 11 years ago, it was the Wednesday before Thanksgiving. I was 22 weeks...
by e-Patient Dave | Nov 21, 2016
As kindlers and promoters of a social movement, our Society for Participatory Medicine keeps a keen eye out for signs of traction in credible places for what we’ve been advocating since 2009: Participatory Medicine is a model of cooperative health care that...
by e-Patient Dave | Aug 9, 2016
As regular readers know, for years we’ve been blogging here about OpenNotes, in which patients and their designated caregivers can read every word their clinicians write, so they can be more informed. The OpenNotes tagline, “Doctors and patients on the...
by e-Patient Dave | Aug 9, 2016
We’ve written often about uncertainty, which is a recurring challenge in medicine and especially in participatory medicine, where issues of relationship and decisions are core. Some doctors have told me they were trained to display certainty even when things...
by Michael Millenson | Jun 3, 2016
On social media and at meetings like Health Datapalooza, our favorite federal bureaucrats assure us of their commitment to open data and patient empowerment. But those are just soothing words; federal regulations are law. On April 30, I posted on e-patients.net an...
by e-Patient Dave | May 24, 2016
As regular readers know, we’ve written many times about OpenNotes, the project funded by Robert Wood Johnson that blew the doors off of beliefs that bad things happen when patients see their charts. (We blogged about the original results in 2012.) Now a new...
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Technology, Health Equity, and Participatory Medicine in the Care Management of Sickle Cell PatientsApril 26, 2024
Driving Transformation: Change Management Strategies for Integrating Participatory Medicine in HealthcareApril 6, 2024
The Challenge for Medicare Part D Patients: Inability to Utilize Pharmaceutical Programs to Reduce Medication CostsMarch 29, 2024
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