by e-Patient Dave | Nov 2, 2011
Science seeks certainty. The problem in medicine is, the body is complex and our knowledge is incomplete. People who want certainty – physicians or patients – are kidding themselves. And if we expect docs to be perfect, it’s a setup for dysfunction....
by David Harlow | Sep 30, 2011
On September 14, HHS released for comment draft lab results regulations that will, if finalized, effectively bathe the Achilles’ heel of health data in the River Styx of ¡data liberación! Lab results will be made available to patients, just like all other...
by Susannah Fox | Sep 8, 2011
When it comes to news sites, I love scanning readers’ comments as much as the original articles. Comments are an unfiltered feed, a window into public opinion (in other words, catnip for someone like me). One thread caught my eye recently. Ron Winslow wrote a...
by e-Patient Dave | Sep 2, 2011
Today I heard from a friend who’s had a tumor discovered. S/he decided to fire the current doctor, who would not return phone messages and was “intellectually lazy” – not interested in pursuing ideas my friend brought up that might require some...
by e-Patient Dave | Aug 31, 2011
Guest post by SPM member Gangadhar Sulkunte. We posted his family’s e-patient story two years ago. The FDA’s Risk Communication Advisory Committee has published a PDF book called  “Communicating Risks and Benefits: An Evidence-Based User’s...
by e-Patient Dave | Aug 8, 2011
Guest post by SPM member Nancy B. Finn, author of the forthcoming book e-Patients Live Longer: The Complete Guide to Managing Your Health Using Technology. Participatory medicine depends on the availability of health information to all members of a care team....
by e-Patient Dave | Aug 2, 2011
The Society for Participatory Medicine  recently named three new board members. They’ve been introduced to the members on our private listserve, and we’ve been thinking about introducing the new leadership to the public here. One is Sue Woods MD MPH, a...
by e-Patient Dave | Jul 26, 2011
Now up on YouTube: You, the patient, are a vital component of medical decision making. Believe it or not, it’s worth your effort to find out about your treatment options! This informal FlipCam vignette models a physician encouraging the patient to ask:...
by e-Patient Dave | Jun 3, 2011
SPM member Sue Woods, of Oregon Health and Science University and the Veterans’ Administration, has posted a terrific response to  CNN.com’s “Ten dumb things you do at the doctor’s office” and to our discussion of it here. Titled Dumb...
by e-Patient Dave | Jun 1, 2011
Ten days ago a post here mentioned the 14th ICSI / IHI Colloquium. I said the Society for Participatory Medicine was well represented, including: Jessie Gruman, four time cancer patient and founding co-editor of our journal, gave an important breakout session, about...
by e-Patient Dave | May 29, 2011
Additions late 5/30/11: First, once again the comment discussion has colored some people’s view, including mine, of this discussion. That’s good. Second, in response to comments, I made a couple of edits, striking through the old text, and tonight I...
by e-Patient Dave | May 22, 2011
The Society for Participatory Medicine was well represented last week at the 14th  ICSI/IHI Colloquium. (ICSI is the Institute for Clinical Systems Improvement, a small midwestern think tank that’s way too poorly known.) SPM members who presented: Jane...
by e-Patient Dave | May 6, 2011
Guest post by medical transcriptionist Kathy Nicholls, member of the Society for Participatory Medicine. This idea grew out of a discussion on the SPM members listserv. To join, see instructions at bottom. The world of health care is filled with abbreviations....
by e-Patient Dave | Apr 27, 2011
Credit where credit is due. The Danish Medical Association’s annual meeting is coming up in a few days. For the event’s blog, they requested a post about patient engagement! I wrote about the pioneers at my hospital who for many years have been saying that...
by e-Patient Dave | Apr 10, 2011
Joe and Terry Graedon, long-time friends of “Doc Tom” Ferguson, produce The People’s Pharmacy, a website and radio program on NPR. Last Saturday’s program was about the Society for Participatory Medicine, which they helped to found in 2009....
by e-Patient Dave | Apr 6, 2011
The BMJ (British Medical Journal) has posted a three-part downloadable podcast about the Salzburg Statement. Part 1: History and current status of shared decision making. [26:04] Part 2: Vision of the future, and barriers to getting there. [23:31] Part 3: Informed...
by e-Patient Dave | Mar 22, 2011
This Thursday at the headquarters of the British Medical Journal in London, an important announcement will be made about patients’ rights to be actively involved in decisions about their treatment. Below is the press release about it. The subject is shared...
by Dan Hoch | Mar 7, 2011
I don’t hide the fact that I am a dyed in the wool liberal. I read, and agree with, pretty much everything Paul Krugman writes. But, it’s rare for me to discover the kind of synergy between my Krugman-inspired ire over economic policy and politics generally and the...
by John M. Grohol, Psy.D. | Mar 5, 2011
I’ve heard this sentiment more than once… “Doctors should participate more in social media. They should be Facebooking and Twittering and Tumblr-ing far more often than they do!” Houston Neal makes the case again over at The Medical Blog,...
by David Harlow | Feb 23, 2011
The Health Research Institute at PricewaterhouseCoopers released a report today entitled Putting patients into “meaningful use.” It begins with the anecdote I’ve blogged about previously regarding a diagnosis by Facebook in lieu of a PHR, which some...
Learning Health Systems Empower Every American to Actually Make America Healthy Again Together, Part 2May 29, 2025
More important than Time and MoneyFebruary 5, 2025
We Can Change the US Healthcare System: Your Health, Your VoiceJanuary 15, 2025
The Killing of Brian Thompson was AwfulDecember 30, 2024
Recent Comments