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If you have been the victim of clinical harm…

… or involved in an incident, as patient or provider, Paul Levy solicits your submission. He’s hosting the medical blogosphere’s Grand Rounds next Tuesday, and has chosen the topic When Things Go Awry. Details and instructions are here....

Let’s hear it for the d-patient e-patients. :-)

Update 3/21: For easier reference, I’m editing this to incorporate some goodies from comments below. Here’s a little game that just might turn into something transformational. Since I started learning about this world of participatory medicine, I’ve...

A thousand points of pain

Cross-posted from my own blog, and then some E-patients, listen up. We have work to do, work we can do. For the past year I’ve been learning what I can about the American healthcare system. I started this not as an “injured” patient but as someone...

“Physicians are coaches. Patients are players.”

I don’t know who Stanley Feld is, but he just became my friend, with a terrific post on doctor as coach, patient as player. It starts: The role of patients with chronic diseases and their physicians must be clear to both patients and physicians. Physicians are...

Internet diagnoses: Trust them or toss them?

This guest post is an article written by Lisa Neal Gualtieri, published in her local paper. It’s an example of widening distribution of principles and practices documented in the e-patient white paper. I’m grateful to Lisa for sharing these true stories of...

“You can do it. We can help.”

That’s Home Depot’s slogan and the subject of an excellent essay by Amy Tenderich of Diabetes Mine. Be sure to read the comments, where there is a healthy debate going on about mental illness, triple cheeseburgers, and paradigm shifts.  

When the Patient is a Yahoo

There’s been a lot of talk about Scott Haig’s November article in Time, When the Patient is a Googler: Alan Greene wrote on this blog; it was a hot topic on the NY Times “Well” blog; and Susannah Fox said: I’d love to hear what people...

“Succeeding in online health” lunch meeting

Today outside Boston I attended a “lunch-n-learn” session of the Massachusetts Technology Leadership Council, titled “Patient, Heal Thyself: How to Succeed with Online Consumer Health Sites.” At first I thought it was going to be about creating...

Two Views on e-Patients, and the Doctors who See Them

In November 2007, Scott Haig, MD, an orthopedic surgeon and medical columnist for TIME, wrote an article for the magazine called “When the Patient is a Googler”. He described a patient of his he called Susan, whom he felt was emblematic of patients who research...

Rate a Doctor?

For years Doc Tom urged us to facilitate patients’ publicly rating doctors as a way to accelerate e-pateints movement. Alan (DrGreene) was excited about this, even though he was a physician, but I was afraid it would open Pandora’s box. In the winter of...

Visiting hours

An article in a recent issue of the British Medical Journal traces the history of visiting patients in hospitals in England, from the 18th century to the present. Sadia Ismail and Graham Mulley paint quite a picture in their opening lines: From 2 pm they gather at the...

Is Your Diagnosis Wrong?

One of the greatest benefits of the internet is its empowerment of patients by providing them with health information. We all know that doctors are human and make mistakes. Furthermore, the office practice of medicine is often as much an art as a science, so a...

Three Simple Rules

Don Kemper, CEO of Healthwise, calls on us to continue the debate that he & Tom began many years ago with a post about his “Three Simple Rules”: The Self-Care Rule: Help people do as much for themselves as they possibly can. The Guidelines Rule: Help...

How Far Should Patients Go in Self Management

In the discussion of patient empowerment, it is worth considering how much care the patient should take on their own shoulders, and when they should turn to their doctor for help. Physicians often do more than would be required if the doctor and the patient was...

The Voice of the Patient

This January 12, 2005 interview with Don Berwick, at the Health Affairs web site, underlies the importance of doing all we can to make the “voice of the patient” directly accessible-to the press, health policy planners, government officials, and medical...

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