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Erin Moore’s speech: What if CF had a Collaborative Care Network?

by Alicia Staley | Aug 25, 2013

SPM member Erin Moore (@EKeeleyMoore) is one heck of an activist parent. She sees the future, she has a stake in it – a kid with a chronic disease – and like many of us, she’s not waiting around for someone else to make it happen: she’s engaged...

That is a Real Doctor

by Ileana Balcu | Aug 13, 2013

Guest blogger Peggy Zuckerman tells us a story about a young competent doctor and how transparency and openness is key to giving better care. Peggy Zuckerman never intended to be a patient advocate, not even a patient! But after her diagnosis with a “tiny,...

“Apprenticeship” for developing patient skills: results from the CollaboRhythm platform

by e-Patient Dave | Jul 31, 2013

I’ve just attended John Moore MD’s “defense,” as they call it – his presentation of the results from his PhD thesis project at the M.I.T. Media Lab. The project has participatory medicine written all over it: it’s about Developing...

A parent speaks: “Our child’s disease is OUR disease”

by Susannah Fox | Jul 19, 2013

Susannah: On June 14, 2013, I attended the National Meeting on Promoting and Sustaining Collaborative Networks in Pediatrics where we discussed topics covered in a special issue of Pediatrics, among other initiatives and trends. Justin Vandergrift was one of the...

On the road to shared ofﬁce visits

by Ileana Balcu | Jul 1, 2013

Guest blogger Peter Elias, MD describes his journey on opening up his office notes to patients. Peter is a family physician in active primary care practice since 1977, co-founder of a group practice now owned by a hospital-based multi specialty group, with a...

Erin Moore: Are Patients a Distraction? I think not…

by Kathleen O'Malley | Jun 6, 2013

This guest post is from SPM member Erin Moore @ekeeleymoore and is reproduced from her blog, 66 Roses, which is dedicated to finding a cure for cystic fibrosis. There was a healthcare conference last fall that I desperately wanted to go to. The conference was for...