by e-Patient Dave | Nov 2, 2011
Science seeks certainty. The problem in medicine is, the body is complex and our knowledge is incomplete. People who want certainty – physicians or patients – are kidding themselves. And if we expect docs to be perfect, it’s a setup for dysfunction....
by e-Patient Dave | Oct 11, 2011
Participatory medicine requires an empowered partnership, in which patients express their wants and pursue their goals in partnership with providers who hear them and work together. And that’s not just about the biology. In this powerful narrative, a hospital...
by Kathleen O'Malley | Sep 19, 2011
Guest blogger Dr. Neel Shah is the Executive Director of www.CostsOfCare.org and a senior resident in the Massachusetts General Hospital-Brigham & Women’s Hospital combined residency in Obstetrics and Gynecology. Last year, the nonprofit that I direct launched an...
by Kathleen O'Malley | Sep 12, 2011
Guest blogger Tami Boehmer shares a recent conversation with e-Patient Dave about the pitfalls of survival statistics and the power of hope. Tami’s blog, “From Incurable to Incredible,” is at www.miraclesurvivors.com. I recently had the honor of...
by e-Patient Dave | Aug 30, 2011
Today’s New York Times has a review of two new books, Doctors with Plenty of Time for Patients. Reviewer Abigail Zuger MD says “Suppose … you could actually rent the doctor’s attention for as long as you needed it?” In these books two doctor...
by e-Patient Dave | Apr 18, 2011
Two years ago we wrote “Let’s hear it for the ‘d-patients'” — doctors who become e-patients themselves. We said “D-patients prove that patient empowerment is anything but anti-doctor. Heck, sometimes it’s a doctor preservation...
by e-Patient Dave | Mar 4, 2011
Yesterday (March 3), NPR’s popular program “Talk of the Nation” covered something we discuss often: how e-patients find information and find each other, online. Featured guests were Pat Furlong, mother of two boys with a rare disease, who started an...
by e-Patient Dave | Dec 20, 2010
If you don’t truly understand how draining it can be to live with chronic illness, including chronic pain, go read The Spoon Theory right now. In 5 minutes it forever changed my own awareness of my wife’s arthritis and bone pain. On Twitter I saw...
by Susannah Fox | Nov 30, 2010
What evidence would you bring to convince cancer researchers and policy makers to pay attention to how the internet is changing health and health care? That’s my challenge for the Dec. 14 meeting of the President’s Cancer Panel, “The Future of Cancer...
by e-Patient Dave | Nov 29, 2010
Ted Eytan drew our attention to a real-time example of participatory thinking, in the case of his friend Matt, an engineer who’s recently been diagnosed with MS. His post This is what $8,000 worth of drugs looks like tells the story, including videos of two...
by e-Patient Dave | Nov 4, 2010
Josh Seidman is in charge of Meaningful Use at the Department of Health and Human Services. (Meaningful Use refers to the guidelines for how providers should use electronic medical records.) He wants input from us – that’s you: ONC is eager to get as much...
by e-Patient Dave | Oct 27, 2010
Update Jan. 18: the video has just been released – see it at the bottom of this post. TEDMED is a truly extraordinary conference in San Diego, a fall sibling of TED talks focused on medicine. TED talks are just 18 minutes long, chosen and designed to blow your...
by e-Patient Dave | Oct 23, 2010
Guest post by Erin Macartney (Twitter) of Palo Alto Medical Foundation. We would welcome similar posts from providers (or anyone else) who’s illustrating what we advocate in the Society for Participatory Medicine: truly patient-centered care, in which...
by e-Patient Dave | Oct 6, 2010
Later this month something’s coming that I have a suspicion will be wonderful. Carlos Rizo of Toronto’s Health Strategy Innovation Cell tipped me off to this October 20 webcast: The Ontario Hospital Association (OHA) and the Health Strategy Innovation Cell...
by Susannah Fox | Oct 4, 2010
I’m attending a LOT of conferences this fall and over & over I am seeing the power of having patients in the room. e-Patient Connections was a wonderful and well-documented example (in blogs, on Twitter, plus the large in-person audience) as will be Health 2.0 San...
by Susannah Fox | Sep 22, 2010
I’m going to be on a panel at the American College of Surgeons 96th Annual Clinical Congress on October 5 in Washington, DC. The session title is pretty provocative: To Tweet or Become Extinct?: Why Surgeons Need to Understand Social Networking and my part of it...
by e-Patient Dave | Jul 15, 2010
Josh Seidman, Director of Meaningful Use, sent this. It’s for a two year full time job in DC, possibly extendable. No relocation costs will be paid – you’re on yer own. :–) From what I hear, talking to people working in HHS these days, “full...
by e-Patient Dave | Jul 7, 2010
Prolific, unsinkable Maggie Mahar commented today on the Century Foundation’s HealthBeat blog about Paul Levy’s “Yes, Patients Can Help Their Doctors” introduction to my forthcoming book. Among other things she pointed out, correctly, that not...
by e-Patient Dave | May 26, 2010
As many of you know, a hard part of being in the world of cancer fighters is that sometimes we lose one. I’m sad to report the passing on April 23 of Judy Feder, who shared her powerful e-patient story here just a year ago. Please re-read how, through her...
by e-Patient Dave | May 22, 2010
Meet Donna Cryer – another person who was an e-patient before she ever heard the word. (Weren’t we all?) As with Diane Engelman’s “mama lion” story this week, we connected with Donna through the internet. I heard her speak last month at...
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