e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
From incurable to “We can now call you cured”: Cheryl Greene’s story
Here's another true e-patient story from one of our team. Cheryl Greene is third from the left in the banner at top of this blog. She's a long-time friend of our founder "Doc Tom" Ferguson, a board member of the Society for Participatory Medicine, executive producer...
Regina Holliday’s “73 cents” story on NPR
An interview Regina Holliday appeared yesterday on NPR's All Things Considered. More on this later, but I want to get it posted.
Why Participatory Medicine?
For most people, their impetus to be actively engaged in healthcare comes from an experience with serious illness—either their own or a loved one’s. My journey into participatory medicine began during my internal medicine residency at Boston City Hospital, a public...
Tell the FDA the whole story, please
I scan menus for keywords (fig, parsnips, salmon...) and it turns out I scan Twitter the same way, looking for anyone who is talking about my favorite topics (data, consumers, information quality...) So when I saw Jonathan Richman's tweet the other night, I couldn't...
Low-Tech Models of Participatory Medicine: The Astounding Results of Group Prenatal Care
A signal moment in the history of this blog was the arrival in late summer of a new ally, the birthing movement, represented by Amy Romano, the blogger at Science and Sensibility, the Lamaze International blog. Amy gets it: participatory medicine is not just about the...
Clinical Trial Data Rights?
“If you expose human beings to an experimental treatment, the public has a fundamental right to see the results of those experiments.” - Steven Nissen, chairman of the cardiology department at the Cleveland Clinic, quoted in The Sunlight Foundation's account of Bray...
The internet is changing healthcare – video from Reshape09
I wish I could have been at the Reshape2009 conference this month in the Netherlands. The Twitter buzz was stimulating, and the 6 minute opening video caused a lot of buzz. I didn't get it all because it was in Dutch. Now, thanks to producer Lucien Engelen (@Zorg20,...
Cindy Throop’s personal story of Participatory Medicine
Like our contributor Sarah Greene, DC resident Cindy Throop was moved by Paulo Freire's book, Pedagogy of the Oppressed. "The patient revolution must come from patients," Cindy says. "We can educate and inform patients, but ultimately only patients can speak for...
Journal of Participatory Medicine Launches at Connected Health
Press release for the October 22nd launch of the Journal of Participatory Medicine: Improving health care: Journal of Participatory Medicine will document methods that work for patient/provider collaboration Launch at Connected Health Symposium features essays by...
A quote I won’t soon forget
Marcia Angell MD is a well-known, respected physician, long-time editor of NEJM. So it was a bit of a shock today when Amy Romano, blogger for Lamaze International, sent me this quote: It is simply no longer possible to believe much of the clinical research that is...
Superheroes and rock stars at the Institute of Medicine
Update: National Cancer Policy Forum published a book based on the workshop, A Foundation for Evidence-Based Practice: A Rapid Learning System for Cancer Care, which you can buy, read online for free, or download as a PDF. The discussion portion of this panel was...
#WhyPM?
Note: if you do not use Twitter an explanation of this post’s title may be in order. #WhyPM is the Twitter hashtag we have been using collectively to announce the launch of the Journal of Participatory Medicine and to mention topics of interest from the Journal and...
