e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Consumers talk back to CNN’s Empowered Patient
For several informative empowered patient stories, see the Comments at bottom of this post. CNN’s Empowered Patient column, by medical correspondent Elizabeth Cohen, contains good, if not groundbreaking, advice, plus […]
The Plausible Promise of Participatory Medicine
I think participatory medicine is what Eric Raymond calls a “plausible promise”: something big enough to inspire interest yet achievable enough to inspire confidence. Reforming health care is too big […]
Patient Activism
If you have doubts about the impact of social media on health care, please read this 2005 post on The Health Care Blog about a grandmother’s campaign on behalf of […]
Electronic Medical Records No Panacea
If you didn’t hear, lots and lots of people snooped into celebrities’ medical records in L.A. — the number of people who’ve been caught just at the UCLA Medical Center […]
Um, let’s start by just being polite
Maybe it’s just me, but this one’s a little astounding. According to Paul Levy’s blog, a Perspectives column in the New England Journal of Medicine “suggests that doctors enhance their […]
Randy Pausch, empowered patient / participatory medicine
Chapter 12 of Randy Pausch’s best-selling book The Last Lecture opens with a classic anecdote of what it looks like when an empowered patient practices participatory medicine with an equally […]
Consumers? Wha?
Update 5/19: Wonderful news! Today I was invited to represent the consumer perspective at this event! Kudos and thanks – I intend to add real value. Investors and disrupters to […]
Sheryl Stein’s info hunt: an e-patient odyssey
Sheryl Stein’s e-patient interview was great in its own right, but she struck bonus paydirt when she responded to this question: You say “So I began to research ITP and […]
Participate in defining “Health 2.0”
e-Patients, alert! Time to participate in creating the lexicon. Ted Eytan MD is open to suggestions on his definition of Health 2.0 – he’ll be giving a talk soon and […]
Upcoming Conferences
I’ll be in Boston tomorrow for a World Congress Leadership Summit. The organizers certainly use all the right key words to describe the event; I’m kind of hoping the presenters […]
E-patient Interview: Sheryl Stein
Sheryl Stein, known to many as “wrekehavoc,” dispenses her wisdom and humor on a 6,000-member online community of parents (using good old listserve technology) and on her blog. In this third edition of our e-patient interviews, Sheryl talks about the power of...
The Wisdom of Patients Report
The California HealthCare Foundation published a report the other day entitled The Wisdom of Patients: Health Care Meets Online Social Media (PDF) which is a nice overview of the current […]
